I was dx in Jan w/Bb and Erlich after being sick for approx 1 year. Recently tested positive for mycoplasma and a bunch of viral things. I've been on a wide range of abx since Jan: Rocephin, Doxy, ketek, Rifampin, Zithro. Also may have osteo of the jaw...have had debridement surgery for this.

I have some days that are bearable and many more where I can't even get out of bed.

I just started doing weekly infusions of glut/vit C and other vitamins and minerals. I'm also doing daily shots of b12 and glut and taking tons of oral supplements.

I'm seeing very little improvement and am REALLY REALLY discouraged.

I'm working with 2 "excellent" LLMD's and various other MD's.

Does anyone have any ideas as to what my next steps should be. Doc is considering adding Mepron to routine. My husband tested pos for Bb and Babs. He's currently on zith/mepron..asymtomatic : )

I'm thinking of adding heparin (nasal spray). Also want to explore IVIG, but this looks like a tough one to get approval for.

Anyway I'm desperate to get better and am just looking for some good advice.

Hope it helps

Sometimes it takes the dr's quite a while to come up with the right combo of meds for you-try and hang in there. I feel miserable too so all I can offer you is a hug ((((((((((hug)))))))))).

Babesia- have you had any tests or symptoms?

Thanks for the kind responses and suggestions.

I tested negative for babs and bart, positive for Bb and erlich. I have had some babs symptoms night sweats, chills, all over body pain

...but the clincher in perhaps pursuing babs tx is the fact that my husband tested positive for babs.

LLMD's think this means there's a strong chance I have it too. They're just waiting till I settle in w/the zith b/f starting mepron since i tend to herx really badly on all new tx.

I took rifampin for about 2 months and never felt good on it...always felt like crap.

Any thoughts on adding nasal heparin to tx.

I know several others who use ivig and have had a good response...just need to figure out a way to get docs to give it a roll.

Oh yeah, I had a spectracell blood test which showed what vtis/minerals/amino acids etc i am low on...these have all been added to my protocol.

What babs testing did you do?

Have you tried artemisinin? We took that, 300 mg 2x day, and reacted so strongly to it that it confirmed the babs dx, which was also based on our babs sx.

I always think coinfections when I hear someone isn't getting better.

I have no experience with heparin nasal or with IVIG.

I've also done well using the steam sauna.

You may have been infected a long time or more than one strain ,plus a coinfection.