About 3 months ago, I also gotten a horrible cramp in this same area out of nowhere, which went away 15 minutes later.

Stabbing pains in my hands and feet as well.

I know this could all be due to the lyme, but do any of you have a high tendency to clot caused by lyme disease?

I found APS (hughes syndrome) on the web, but this looks like a different animal.

Are there any blood tests that I should ask my doctor to do, now that I know I have lyme?

Any info appreciated!

I would suggest you ask to get your mag. levels tested - although this only tests your blood levels, not your cells. My guess is this is what's causing the cramps. I get foot cramps - that's when I know it's time to get another IM shot... which I'll be doing next week.

I recently found out that I have a clotting disorder and was shocked. My llmd had ordered the specific blood test because he is aware that lyme patients (not sure if it is chronic lyme patients) have this particular condition.

Please refer your dr. to www.hemex.com for the appropriate labs (ISAC panel). Most drs. and even llmds are not aware of this condition, so they are not aware of the correct bloodwork or treatment.

Per Hemex Lab physicians, "this hypercoagulable state does not result in a thrombosis, but rather in fibrin deposition. We suggest that an appropriate name for this antiphospholipid antibody process would be Immune System Activation of Coagulation (ISAC) syndrome."

This topic has been discussed here in the past few months, but I can't recall the title.

Hope this is helpful. I would suggest getting yourself checked asap.

The only test that came back out of range in the first panel was fibrinogen, which was high on the Hemex scale but when I had fibrinogen retested a few months later at LabCorp, it came back at the same level and was within their normal range.

I think that this is a distinction made by Hemex between "normal" (what is seen in the wider population) and "optimal".

Doctors who are familiar with Hemex testing know which tests to order from commercial labs which can save you a lot of money. My doctor needed to rely on Dave Berg's expertise and so I needed to be tested at Hemex.

I ended up not doing anything about the results because I could not make myself comfortable with using Heparin based on a conversation with a relative who is a hematologist. I have, however, seen many people discuss the good safety profile of the low doses which are used.

I did use Nattokinase for a while last summer but can't really say what role it played. I am considering adding it back as I have seen many people say that it has helped them.

I couldn't seem to get jellybelly's email address, so I am hoping she will stumble upon this...

I will check out hemex in the meantime, and try to use a cheaper alternate if possible.

Since I had the symptoms, I decided to try systemic enzymes and see if anything happened.

I hit the jackpot with Wobenzym. http://www.iherb.com/wobenzym.html

This product has reduced my headaches. I used to wake up with a headache almost all the time, and now I don't.

What I really want is something that will give me back my mind.

Another blood test to test your clotting factor is called a D-DIM. Anything above 200 or so indicates a high clotting factor. (Last checked my D-DIM was 616, but may have been the results of taking prednisone for asthma.)

If you're bruising very easily, or feel like you have a constant "charlie horse" in your calf or thigh, or you have numbness and coldness in your arm or leg, then have it checked out by the doc ASAP. If you have a history of blood clots in your family, then get the Factor V blood test.

I have a little website where I store research. There is a whole topic on hypercoagulation/ISAC and another topic on Digestive Enzymes which can do a real good job of fixing things up, IF your blood isn't to badly messed up. You would likely want to talk to a doc first, but the Nattokinase is considered very safe.

As stated above there have been some conversations here and you could look them up in the archives, but the search feature doesn't work all that often.

So here is a link to my website, then you can come back here and ask any questions you have.

There are test for it I would try a asprin a day untill you talk to a LLMD