LymeNet Flash: Jerking awake all night????Help

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Jerking awake all night????Help

UBBFriend: Email this page to someone!

Author

Topic: Jerking awake all night????Help

Tnagel
Member
Member # 7328

posted

For the last three days I have been jerked awake about 10 times, I cannot stay asleep. I was on Mepron and Zith, went off it, and no I am having these problems along with difficulty breathing and TMJ. Help what's going on?

Posts: 50 | From washington dc | Registered: May 2005 | IP: Logged |

Erica
LymeNet Contributor
Member # 4619

posted

Hi,

I definitely experienced this heavily for the several months of this disease. The abx helped me get it under control, but I have noticed that with the occasional relapse, my whole body jerks, and it is always at night...

For me, this dissipated with my abx use...

hang in there!

Posts: 100 | From St. louis, MO | Registered: Sep 2003 | IP: Logged |

Erica
LymeNet Contributor
Member # 4619

posted

by the way, I moved from Georgetown to missouri 2 years ago, and miss is sooo much! Did you get your lyme there?

Posts: 100 | From St. louis, MO | Registered: Sep 2003 | IP: Logged |

BJG
LymeNet Contributor
Member # 4723

posted

Hi
Mag helped my jerking and twtiching.

Good luck
Peace,
BJG

Posts: 468 | From IL | Registered: Oct 2003 | IP: Logged |

dmc
Frequent Contributor (1K+ posts)
Member # 5102

posted

I had the leg jerks too. Used magnesium and the amino acid GABA in powder form.

Started the GABA again since I recently had foot surgery. The cast is uncomfortable and I started the leg jerks again.

You do need to take magnesium if you have lyme.

Posts: 2675 | From ct, usa | Registered: Jan 2004 | IP: Logged |

Ms. Myoclonus
LymeNet Contributor
Member # 6750

posted

Hello,
It sounds like it could be myoclonus (involuntary muscle jerking), which can be caused by Lyme. Nocturnal myoclonus is a common manifestation of myoclonus. Check out the following websites for more info.
http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm
http://www.mdvu.org/library/disease/myoclonus/

My myoclonus is worse when I drift off to sleep, and immediately jerks me awake. I take Zonegran (an anticonvulsant) to control my myoclonus. Prior to Zonegran I took Ativan with limited success. It did help me sleep at night.

Lavender essential oil massaged into the jittery limbs seems to help calm them somewhat.

Antibiotics made my myoclonus worse, and I attributed it to herxing.

Take care,
Ms. Myo

Posts: 122 | From Texas | Registered: Jan 2005 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

I had this in the beginning of my acute attack....after it sat somewhat dormant.

Mine happened when the 'relax' signal would hit...I would chest convulsions...and jump like the people do that get shocked for heart attacks.

It went away with time...and treatment..it does flare when I get worn down though.

Trout

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

My LLMD thought that this was a strong sign of Babesia.

Trout

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

Tnagel
Member
Member # 7328

posted

Trout,
How did you trat your babesia and is it a herx or a symptom?
Thanks

Posts: 50 | From washington dc | Registered: May 2005 | IP: Logged |

troutscout
Frequent Contributor (5K+ posts)
Member # 3121

posted

I believe it is both.

Trout

Posts: 5262 | From North East Iowa | Registered: Sep 2002 | IP: Logged |

KeyLymePie
Member
Member # 7434

posted

Yes! OMG, that is my major Lyme symptom! for 17 years I've been jerking awake, and no doc could figure out what it was until ONE doc I recently started seeing, who is supposed to be a brilliant diagnostician, finally tested me for Lyme.

When my Lyme test came back CDC positive I was stunned. I had never heard that jerking awake was a major symptom of Lyme before - I always thought Lyme symptoms were swollen knees etc.

It does get worse with herxing. My worst attack was brought on by taking Zithromax for a sinus infection, before I knew I had Lyme.

The only thing I found that would reliably stop it for me was Xanax, sometimes mixed with a really really small dose of percoset.

It also allegedly is a Babs symptom, so its probably worse right now b/c you were hitting the Babs. Maybe you shoud continue treating Babs?

I am doing the crazy Salt/C treatment - and my sleep is getting slowly better and better.

Good luck to you!

KLP

Posts: 47 | From New York, NY | Registered: Jun 2005 | IP: Logged |

johnnyb
Frequent Contributor (1K+ posts)
Member # 7645

posted

After 2 days of Biaxin, I was waking up at 4am for no reason- sometimes short of breath, sometimes not.
Just saw my LLMD, who said it could me a herx brought on by the ABX....

- JB

Posts: 1197 | From New Jersey | Registered: Jul 2005 | IP: Logged |

Tnagel
Member
Member # 7328

posted

I have started cats claw, gobs of garlic,and a bunch of herbs from the Lyme free book, this seems to be making it worse

Posts: 50 | From washington dc | Registered: May 2005 | IP: Logged |

docjen
LymeNet Contributor
Member # 7510

posted

This is the WORST! I know what you mean. I have had restless leg syndrome for about 5 years now (and just diagnosed with Lyme in May). At my worst I was literally ready to hit myself in the head to knock myself out so that I would stop jerking around. I take Klonopin .5 to 1 mg at bedtime for it, and it helps manage it. Also, loads of magnesium at bedtime. It seems to get worse as you get more tired, so it is really important to get some sleep! See your doc if it continues!

Posts: 393 | From Washington, DC | Registered: Jun 2005 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/