I've only had two bouts with meningitis , the first bacterial the second viral. Although I then had another brain infection that led to Guillan- Barre syndrom. Not fun.

I am on IV antibitics for 2 months, so don't really know if it is helping.

I hope that you get some releif soon. I know that it is a common side effect of lyme.

So sorry to hear how sick you have been.

Hubby does see Dr C in Missouri. If you can't make the trip or if you want to stay with your current doctor, why not have him call Dr C for consultation.

Don't know if he charges a fee for this, but he seems very willing to help educate other doctors and he does require that you have a local primary care doctor even if he is your LLMD.

Hubby has had many crazy symptoms, but thankfully he has never actually had meningitis unless that was what he had when he was in the hospital in Kansas City and the neuro's said not Lyme despite prior positive tests from both IgeneX and MDL.

Even if you have a negative test from IgeneX that does not mean you do not have Lyme. No test is 100% or even close.

It sounds to me like you need to do some supportive things for your brain nutritionally. See my recent post under Multiple Diseases question at
http://flash.lymenet.org/ubb/Forum1/HTML/036654.html

The COQ10 (yes I know it is expensive) and the essential fatty acids would be the best places to start and should help with your illness even if you do not have Lyme.

Don't know if you have been tested for coinfections -- babesia and bartonella etc are almost as common as Lyme. It is very unusual to only have Lyme.

You might want to post another question titled something like "Did my kids get Lyme thru pregnancy?"

There are others here who could answer that question better than me. If the kids have any physical symptoms or learning difficulties etc include that info in your post.