posted
I was diagnoise with lyme diseae on July 18 and took doxyceline for 21 days. I am still experiencing the joint pain, fatigue, back pain, some depression, heart palpation. my dr now say I have cfs. My question is all these symptons started since I had the lyme is that possible. I ask for another treatment of antiobitcs am I going in the right direction. Is there a cure for lyme
Posts: 8 | From Princeton, NJ USA | Registered: Aug 2005
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posted
well i ecperience the same symptoms, back neck pain ,chest pain ,depression,cognitive problems ....
My diagnosis is depression, chipochondric syndrome, nervous syndrome. I do not have CFS cause i dont think in POland sth like that is diagnosed at all. Doctors says it is all in my mind cause "i was put on I.v. ceftriaxone month theraphy so i can`t be sick anymore"
Posts: 641 | From Wroclaw, Poland | Registered: Mar 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hi you are not done with treatment you need way more than doxy for 21 days get a LLMD .
Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. "Lyme literacy" means, first and foremost, knowing how to diagnose the disease accurately. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead. Lyme Disease symptoms 2005 Lyme Symptoms 2005 Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer. Support Links LLMD's
posted
I'm so sorry that both of you are having problems with Lyme disease.
myrna55, welcome to LymeNet. There's a lot of reliable info for new members.
According to recommendations by Lyme Literate Med Drs (LLMDs), your treatment for Lyme was not long enough. What was your dose per day for Doxycycline? 200 mg a day is the typical dose, but LLMDs recommend more.
The International Lyme & Associated Diseases Society has info you should read. www.ilads.org click "Basic Info" #10 begins: "There has never.....been one study that proves even in the simplest way that 30 days of antibiotic treatment cures Lyme disease." www.ilads.org/burrascano_1102.html "Diag Hints & Treatment Guidelines..." Print a copy & read it several times. Has 32 pages of great info written for drs to use & patients to learn about Tick-Borne Diseases (TBDs). Too much for just one reading.
About page 16: Antiobitic Choices Doxycycline: Adults - 400 mg/day with food
Treatment should continue until ALL symptoms have been gone for a minimum of 4 weeks. Many LLMDs are now treating for 6 to 8 weeks (after symptoms are gone) just to be sure.
I recommend that you have an evaluation by a LLMD. It may be necessary to travel some, but it is definitely worth the effort to get the care you need. (My father & I had to travel to New Jersey.)
Go to "Support Groups" on the left & ask for names of LLMDs near you.
Go to "Seeking a Dr" here on LymeNet & put your location in the title. Info about Lyme drs will be e-mailed to you.
If your dr prescribed 21 days of antibiotics & now says that you have CFS, then it is not very likely that you'll get what you need.
How long do you think you've had Lyme? Did you have the bull's eye rash or have a positive LD test?
Posts: 4638 | From South Carolina | Registered: Mar 2001
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quote:Originally posted by cbb: I'm so sorry that both of you are having problems with Lyme disease.
myrna55, welcome to LymeNet. There's a lot of reliable info for new members.
According to recommendations by Lyme Literate Med Drs (LLMDs), your treatment for Lyme was not long enough. What was your dose per day for Doxycycline? 200 mg a day is the typical dose, but LLMDs recommend more.
The International Lyme & Associated Diseases Society has info you should read. www.ilads.org click "Basic Info" #10 begins: "There has never.....been one study that proves even in the simplest way that 30 days of antibiotic treatment cures Lyme disease." www.ilads.org/burrascano_1102.html "Diag Hints & Treatment Guidelines..." Print a copy & read it several times. Has 32 pages of great info written for drs to use & patients to learn about Tick-Borne Diseases (TBDs). Too much for just one reading.
About page 16: Antiobitic Choices Doxycycline: Adults - 400 mg/day with food
Treatment should continue until ALL symptoms have been gone for a minimum of 4 weeks. Many LLMDs are now treating for 6 to 8 weeks (after symptoms are gone) just to be sure.
I recommend that you have an evaluation by a LLMD. It may be necessary to travel some, but it is definitely worth the effort to get the care you need. (My father & I had to travel to New Jersey.)
Go to "Support Groups" on the left & ask for names of LLMDs near you.
Go to "Seeking a Dr" here on LymeNet & put your location in the title. Info about Lyme drs will be e-mailed to you.
If your dr prescribed 21 days of antibiotics & now says that you have CFS, then it is not very likely that you'll get what you need.
How long do you think you've had Lyme? Did you have the bull's eye rash or have a positive LD test?
I had the rash on my right leg and I beleive I was bite on July 4, 2005. He prescribe augmentin. I am looking for a llmd in my area for a second opionon. I had the 200 mg of doxyceline. should I cont with that or take the augmentin? Posts: 8 | From Princeton, NJ USA | Registered: Aug 2005
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posted
Since I'm not a dr, I would not want to tell you which antibiotic to take.
However, I will say that IF you have Ehrlichiosis along with Lyme disease, the Doxycycline would be the abx of choice. I believe I've read that 200 mg/day is sufficient for Ehrlichiosis, but not for Lyme.
In Dr B's "Diag Hints...Guidelines" read about Ehrlichiosis (page 23) under Co-Infections.
I don't know much about Augmentin for Tick-Borne Diseases.
By all means, see a LLMD - ASAP. The earlier the treatment, the better the results, but ONLY IF treatment is strong enough & long enough.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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quote:Originally posted by myrna55: [QUOTE]Originally posted by cbb: [b]I'm so sorry that both of you are having problems with Lyme disease.
myrna55, welcome to LymeNet. There's a lot of reliable info for new members.
According to recommendations by Lyme Literate Med Drs (LLMDs), your treatment for Lyme was not long enough. What was your dose per day for Doxycycline? 200 mg a day is the typical dose, but LLMDs recommend more.
The International Lyme & Associated Diseases Society has info you should read. www.ilads.org click "Basic Info" #10 begins: "There has never.....been one study that proves even in the simplest way that 30 days of antibiotic treatment cures Lyme disease." www.ilads.org/burrascano_1102.html "Diag Hints & Treatment Guidelines..." Print a copy & read it several times. Has 32 pages of great info written for drs to use & patients to learn about Tick-Borne Diseases (TBDs). Too much for just one reading.
About page 16: Antiobitic Choices Doxycycline: Adults - 400 mg/day with food
Treatment should continue until ALL symptoms have been gone for a minimum of 4 weeks. Many LLMDs are now treating for 6 to 8 weeks (after symptoms are gone) just to be sure.
I recommend that you have an evaluation by a LLMD. It may be necessary to travel some, but it is definitely worth the effort to get the care you need. (My father & I had to travel to New Jersey.)
Go to "Support Groups" on the left & ask for names of LLMDs near you.
Go to "Seeking a Dr" here on LymeNet & put your location in the title. Info about Lyme drs will be e-mailed to you.
If your dr prescribed 21 days of antibiotics & now says that you have CFS, then it is not very likely that you'll get what you need.
How long do you think you've had Lyme? Did you have the bull's eye rash or have a positive LD test?
I had the rash on my right leg and I beleive I was bite on July 4, 2005. He prescribe augmentin. I am looking for a llmd in my area for a second opionon. I had the 200 mg of doxyceline. should I cont with that or take the augmentin?[/B][/QUOTE]
I printed the article and will read what is the echiloidas?
Posts: 8 | From Princeton, NJ USA | Registered: Aug 2005
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posted
The symptoms for Ehrlichiosis & Lyme are so similar, it's difficult to tell them apart. Some people have both. Others only have Lyme. Then there are some people who have several Tick-Borne Diseases at once.
A little info about responding - You know how to quote what the person says & add your response. But if you do not need to quote, look at the top & bottom of the page. Click "Post Response" & type what you want to say. It won't include the quote.
Hope you can see a LLMD soon.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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quote:Originally posted by myrna55: thanks I have an appointment with a lldmd on 8/22
Good job, Myrna!! Did your LLMD come with several recommendations of other Lyme PATIENTS? YOu want to hear from happy satisfied customers before committing to a particular LLMD.
Some drs SAY they are LLMD's when they aren't. You must have someone who will treat you until your symptoms are GONE for at least 2 months.
Continue reading here so you will know what to expect and what you need to advocate for your own care.
PS....you can reply by clicking on "POST REPLY" rather than the quote icon.
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
posted
thanks, I will call and ask for that I have an app't with a clinic that works with just that. I hope this really works
Posts: 8 | From Princeton, NJ USA | Registered: Aug 2005
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posted
Just want to add a few words to the good advice Miss TuTu gave you.
The best way to find satisfied customers is through the Support Groups & people here on LymeNet who have had a good experience with a LLMD.
I know nothing about the clinic you have an appt with, but unfortunately, a lot of clinics SAY they're Lyme experts when they're not. There are a few exceptions, but not many.
Generally speaking, the opinions & recommendations you need would not be available by asking the clinic. They're selling a service, so they'll have a good opinion of their work.
Posts: 4638 | From South Carolina | Registered: Mar 2001
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posted
Myrna, You can go to Seeking a Doctor and ask in the subject line...."Anyone seeing Dr G in [state] or [city]" Use whatever initial is appropriate.
You can also click on "support groups" to the left of this screen and get help there. We don't want you to waste money on a dr who will not treat you after 3-4 weeks.
[This happens all the time, believe me.]
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
[This message has been edited by Lymetoo (edited 12 August 2005).]
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cause "i was put on I.v. ceftriaxone month theraphy so i can`t be sick anymore"
oops! 
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