This spring: I tested positive for lyme on an Igenex test;
Had a low CD-57 count; and
Had an inconclusive for MS cerebral spec span

Anyone's thoughts on this matter would be greatly appreciated.

I have never heard of any neuro curing or helping anyone with exception of Dr. K I was dignosed MS 1988...saw 8 neuros througout the years.

NOT ONE bothered to do a Western Blot, knowing my history, enviornment, etc.
Just cause I had weird symptoms and lesions in brain "I HAD MS". Thank God I met a woman who directed me to a llmd.

She was dx MS in 1992 found out lyme. She still makes appt. with neuros and trys to teach them but makes her self sick with the stress of hearing them fluff her off.

Only thing I suggest is you dump the neuro and get to a good llmd.

I am now taking 100mg of Minocycline 2x a day and hoping to start feeling some improvement soon.

Dr. P thinks that lyme causes MS and he had endorsed my current antibiotic protocol.

My appointment with the MS neurologist will be the first time that I have seen him since testing positive for lyme in May.

Since then I have seen to LLMDs, 2 LL neurologists, and now my MS neurologist.

Lots of doctors; why?

I am convinced that the more opinions I can get, the better decisions I will be able to make about my health in the future.

From Cheryl's excellent website -- Lyme Misdiagnosed as Multiple Sclerosis
http://www.lymeinfo.net/multiplesclerosis.html

"Controversies in Neuroborreliosis" -- http://www.ilads.org/goldings.htm

There should be something in all this info that will help you make sense of what is going on in your body.

Hubby has never been given possible MS diagnosis although he has "several" white matter lesions. His symptoms are actually more Parkinsonian in nature.

You may want to read list of hubby's supplements to get an idea of ways to slow down the brain inflammation. This is posted in answer to the Multiple Diseases question at http://flash.lymenet.org/ubb/Forum1/HTML/036654.html

Keep us updated.

Bea Seibert

Your MS neuro said "go for it" with the Minocycline because there have been studies since 2002.

It's tough when you have to educate the so called specialists.

link to a google search of the articles http://www.google.com/search?hl=en&q=minocycline+for+MS&btnG=Google+Search

may help others dx MS to get abx.

I consider him to be very enlightened and willing to try new things if there is a reasonable chance they will work.

My problem with him is that his practice has gottened so large it is hard to get to him in a timely manner.

Told him I was dx MS but tested positive for Lyme. Said Dr. P. believe I have an MS response to lyme. Since no one knows what causes MS...disease for symptom etc...

Surgeon said never heard of that but that it made sense. He was willing to do surgery.

Prior to seeing him...4 orthos said couldn't help "you have MS" even one after the positive WB. One even said "what's the point if you're gonna be in wheelchair anyways".

Had surgery June 8th...noflare-up on ANY symptoms either "MS" or lyme. Feel wonderful but still no real weight bearing.

Surgeon said six month recovery...got 4 screws in foot. In cast for 10 weeks with absolutely no weight bearing, just got a soft cast and starting walking with crutches. Just think, I get to do the other foot next spring. Yahoo.

Would never have been able to do this is if hadn't been under proper treatment by Dr. P.
He was an answer to prayers.

I looked up the article that was referred to. Here is the link:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=11787831&query_hl=2