Hi Barb - For me I am unable to completely correct the problem.... But I am able to do things to help with it.I take between 6 and 10 grams of salt tabs a day....as well as salting food.. I go by how my body is feeling.
I also seem to to have the most probles with this when I have a virus. When I get really ill I get home IV fluids ( sodium Chloride) This helps keep me hydrated as well as helping to keep the sodium in some sort of check.
I also never drink plain water...That was the first leson I learned way back... I always add electrolite solution to it ( electromix) as well as take a salt tabe or 2 for every liter of fluid I drink.
I have also found compression hose work very well. definetly help to keep my blood flow even.
I have seen the 2 top autonomic Dr's in the country. There are meds available..I tried some of them, but never have good experiences with drugs since I am med sensitive.
One of the newest is called Mestinon. It has been used for years to treat a condition called Myathius Gravis but just recently has been used for peoplw with Dysautomic Conditions...Mestinon helps constrict the blood vessles withouth raising your BP to high. The other drugs such as midrodine can cause BP to spike.
I have also tried florinef ( did not tolerate)
Some beta blockers ( Also did not tolerate)
There are also ceratin antidepressents that actually target that area of the brain and some peopel have had success with... Iknwo 2 are Wellbutrin and Zoloft.. But again I have not tried these yet b/c of med intoerance.
I am hoping to try themestinon as soon as I get my Lyme treatment to a level I can tolerate... I have to do things one at a tome so that my body does not get too overloaded.
I think abx definetly exacerbated the problem. I think its a 2 fold problem since The abx in itself can cause dehydration etc that cam lead to this problem, as well as the Lyme disease responding to the abx...
Its a catch 22....
My LLMD has been working with my dysutonomic Dr for a while now and he has sent many people to him.... he has seen this problem in many Lyme patients as well.
E mail me anytime.