We all know that Lyme is a multi-systemic illness. Some of us have learned that the hard way.

My hubby spent 1 1/2 years looking for the cause of his nausea/vomiting/dry heaves and tremors. A friend just emailed me that one of her early unexplained symptoms was a "frozen shoulder". beach4so mentioned a high sed rate in another thread -- thanks Starr.

What about you -- I am sure there are more strange symptoms out there that weren't initially recognized as Lyme disease symptoms.

Had to nearly threaten a duck with her life to get her to do a WB on her. No really, she was actually pretty cooperative. After the positive test came back she said she didn't have time to learn about Lyme.

All the symptoms seemed odd, they just showed up for no reason one at a time from age 10.

Arthritis in right foot, hip and shoulder. The shoulder felt like it dislocated sitting in a movie theater. The A/C joint was shot, I didn't see an x-ray until a year after diagnosis and it freaked me out.

My first symptoms were extreme dizziness, rapid heartrate (that lasted for 45 minutes) and a 30 hour bout of extreme fatigue that repeated itself twice thereafter.

Since it took me a year and a half to get a diagnosis, I ended up with about every lyme symptom one can have.

Two articles that helped me determine lyme was a cause of my issues are www.canlyme.com/patsymptoms.html and www.canlyme.com/donta.html

Besides that...twiching muscles, sinuses, pleuresy, bronchitis...on and on.....

My strange syptom was recurring meningitis going on 13 times now since July 2004.

I would always get that in winter.

Remembered my tick bite from 1987 (13 years earlier) but had negative Lyme test at that time (but had severe knee pain after the bite).

Both boys had vague beginning symptoms. Oldest son started getting headaches in 2nd grade, which progressed to being daily headaches after 3 yrs of intermittent type h/a's.

Youngest son woke up the day before his 5th birthday (Aug. 27th, 1997) and couldn't walk! His right knee was so painful, he got up out of bed (in Lake Tahoe mind you)and fell down on the floor. We were due to leave the next day. I simply could not believe that his knee hurt him so bad that he said he could only crawl on the floor to get from room to room.

It breaks my heart. My mothers heart aches that this has been my children's childhood.

I was a nature girl, loving this Northern CA landscape. But no more. I'm in, probably for good. Hoping to move to Paris permanently when the youngest is 18 in 5 yrs so I can love the city I live in.

So, for me, muscle twitching, for oldest son, headaches that progressed to daily ones, youngest son, severe, sudden onset knee joint pain.

My daughter...she would lie in bed for hours unable to go to sleep. No symptoms during the day other than really tired from not sleeping. Also, she only got a period ever 3-4 months.

My husband...had every symptom under the sun. Some odd ones are TMJ, sleep apnea, mitral valve prolapse, etc. etc. etc. etc. etc.

Jordan's symptoms were pretty normal - extreme fatigue, vomiting every morning, memory loss etc. etc. etc. etc. etc.

My oldest son has not been tested - as soon as he takes the dental school entrance exam we'll send him to the lab - don't want to stress him out right now. Just a week and a half to go! He's having a lot of trouble sleeping and some memory problems but I don't know how much to attribute to the intensive studying that he's doing. We'll see soon.

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Originally posted by shazdancer:
IN 2000, my hand swelled up and turned red. It was hot and very tender. I thought I might have broken my hand.

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Ditto for me and the added carpel and tarsel tunnel syndrome in all four quadrants with me not having a job where this would be happening. Looked up those symptoms, and wala, this site came up.

Searched for three (3) years for what was making me sick.

You may want to just check out the Alligator Pit over in General as it has this pretty covered, I think.

Rosemary

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Originally posted by HopeHelps:
Just Julie, I'm a Mom with questions about my kids too, would you be willing to chat by email?

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Sure, I'm at [email protected]. Both my kids haven't been on abx for almost 3 yrs now, and I've been off of abx for almost 2 yrs, so don't know how much help I can be!

Our LLMD is the famous S.F. one, though. I also have a husband who, while Lyme positive (by Igenex standards) has refused all but 3 months of 300mg/day of doxy. And that was over 3 yrs ago. Lovely.
Julie

I think the weirdest one, though, was the sensation that someone was pouring tepid water down my right leg. It felt so real that I was always compelled to look down at my leg, even though I was alone.

The other strange ones were the body vibrations, sudden onset of migraines at age 49, getting nauseous in shopping malls (due to the flourescent lights), sudden feeling like my head was going to implode. All that fun stuff.

The thing that made me serious about the Lyme diagnosis, though, was when the usual knee pain turned into crippling pain that made it almost impossible for me to walk. Kinda makes you sit up and take notice!

Jumping out of my skin at loud noises. (DX'd with "anxiety" and put on antidepressant.)

Periods abruptly stopped. Developed hypothroid problem.

May never have figured it out but for a very smart radiologist who read my brain MRI and said 'multiple lesions consistent with lyme disease.'

Bless that man!

Michelle

In elementary school I would stagger out of the exercise line while doing jumping jacks. Loss of Balance. Oh, the other one was I thought going under water (we snorkeled) had an interesting ringing sound, no kidding, I was that dumb. Today I had significant ringing in my ears.

You can imagine how symptomatic I was by time I got diagnosed at age 44!

Maybe this will help relieve some of the weird symptoms caused by lyme....

Remember: Drugs cannot replace the Immune system, they can only aid the system...
The immune system is a living thing. It needs nutrients and proper food to keep it working... (Google "Dr. Mary Enig")

I can't imagine anyone using aspertame at this point . . . Ouch!

But why no soy? My LLMD has mentioned this before but I never followed why because I don't use it. HOWEVER, I just bought some soy milk and was looking forward to some Shaklee Protein Shakes.

An MRI was done which revealed a small white spot on the brain. Saw a neurologist who ran alot of tests..even a lubmar puncture to rule out MS.

Doing okay on and off never geting rid of neuro symptoms and baffled. Break my shoulder 12/03 and out of the blue start having ankle pain. Go to a podiatrist for a check up and he suggested PT and to do 2 steroid injections.

Two weeks later I woke up one and the inside of my knees hurt so bad and I progressively start getting worse. Body vibrating all the time and feeling like someones squeezing my arms and legs.

Two months goes by and I see a DO who is also alternative. She mentions lyme disease and I get on the internet and realize I have or have had 90% of symptoms. I Asked her to do a test from Igenex and she agrees. Positive test...finally diagnosed.

Niki -- Maybe you should think about having your 7 year old tested for Lyme etc.

Lesley1954 -- Welcome to LymeNet.

How about it -- Are there any more strange and unususal symptoms out there?

But it was just one post on one forum that I read. Before that I was totally clueless. One little post on curezone.com that read:

"Fibromyalgia/CFS may be Lyme"

I owe whoever posted that more than I could possibly say.

...right...

Jordan's weirdest unexplained symptom is paper sensitivity. His body reacts to the touch or sound of paper similar to how people react to fingernails on the chalkboard.

He is OK with coated paper like magazines and newspapers are the worst.