Do any/all of these cause such bone pain? I wonder if I'm not getting enough calcium or Vitamin D.

That is one of my symptoms also...at least at hope it WAS...and is gone now.

Trout

It is constant, and it is everywhere. It is a deep aching in the bones, if you will, but I do get stabbing pain at times.

Trout: I'm thrilled to hear that your bone pain is gone! It had better stay gone, or I'll want to come and get Midevil (don't ask me to spell that!) on it! You're a great guy.

At first they would come and go, we thought they were sports injuries for a very long time. For about the last 2 years the pain seems to have just settled in to stay.

She has been in treatment since March and she did have a time when it went away briefly, but it is back full force again. Seems to be a pretty common Lyme symptom.

I was told today that my shin bone pain and other bone pain is bart.

Here in the MD, VA area the Baltimore doc said they are seeing tons of bart.

I'm seeing a new practitioner (PA) soon, and I hear that the folks at this center take Bart seriously.

NOT saying you have this, too..
just that it would lend thought to whether Lyme can indeed do the same, and also that I personally don't think they have all the bacerial agents identified in TBD conditions..and/or that some opportunistic infections can also result.

*sigh* It's a maze...........

This is from the Merk mannual:

Leptospirosis



Leptospirosis is a potentially serious illness caused by species of the spirochete Leptospira.

Leptospirosis occurs in many wild and domestic animals. Some animals act as carriers and pass the bacteria in their urine; others become ill and die. People acquire these infections through contact with infected animals, their urine, or soil and water contaminated by infected urine.

Although leptospirosis is an occupational disease of farmers and sewer and slaughterhouse workers, most people become infected while engaging in outdoor activities such as swimming or wading in contaminated water. The 40 to 100 infections reported every year in the United States occur mainly in the late summer and early fall. Because mild leptospirosis typically causes vague, flu-like symptoms, many infections probably go unreported.

Symptoms and Diagnosis

Leptospirosis causes mild disease in about 90% of infected people, whereas 10% have severe, potentially fatal, disease that affects many organs. The first phase starts 2 to 20 days after infection with Leptospira. Symptoms begin abruptly with a fever, headache, severe muscle aches, and chills. The eyes usually become very red on the third or fourth day. Nausea and vomiting are common. Symptoms involving the lungs (including the coughing up of blood) occur in 10 to 15% of infected people. Episodes of chills and fever, which often reaches 102� F, continue for 4 to 9 days.

The fever clears for a few days, marking the beginning of the second phase. During this phase, the body's immune reaction against the bacteria causes inflammation, producing many symptoms. The fever returns, and there is often inflammation of the tissues covering the brain (meningitis), causing a stiff neck, headache, and sometimes stupor and coma. In the severe form of the infection, people may also have inflammation of the liver, kidneys, and lungs, resulting in jaundice, kidney failure, and bloody cough. Sometimes the heart is inflamed, causing palpitations and dangerously low blood pressure (shock). A pregnant woman who develops leptospirosis may miscarry.

Weil's syndrome is a severe form of leptospirosis that causes a continuous fever, stupor, and a reduction in the blood's ability to clot, which leads to bleeding within tissues. Blood tests reveal anemia. By the third to sixth day, signs of kidney damage and liver injury appear. Kidney abnormalities may cause blood in the urine and painful urination. Liver injury tends to be mild and usually heals completely.

A doctor can confirm the diagnosis of leptospirosis by identifying Leptospira in cultures of blood, urine, or cerebrospinal fluid samples or, more commonly, by detecting antibodies against the bacteria in the blood.

Prognosis and Treatment

Infected people who do not develop jaundice usually recover. Jaundice indicates liver damage and increases the death rate to 10% or higher in people older than 60.

The antibiotic doxycyclineSome Trade Names
VIBRAMYCIN
can prevent the disease and is given to people who were exposed to the same source as an infected person. Penicillin, ampicillinSome Trade Names
OMNIPEN
POLYCILLIN
PRINCIPEN
or similar antibiotics are given to treat the disease. In severe infections, antibiotics may be given intravenously. People with the disease do not have to be isolated, but care must be taken when handling and disposing of their urine.

Yesterday, I was at a "cruise night," viewing beautiful old cars. I had to walk through grass, but it was exposed to the sun and short. I felt okay about it, mostly, but I still had some nervousness. I check my legs.

I don't do picnics anymore, either.

Steph (I have had to edit this so many times! AAARGH.)

[This message has been edited by Starphoenix (edited 21 August 2005).]

[This message has been edited by Starphoenix (edited 21 August 2005).]

I have bone pain that comes and goes. mostly in my arms and thighs. One day, it was in my thighs and it hurt terribly.

Of course, I turned to Lyme net and someone ( can't remember who, sorry! ) gave me a great idea for relief.

Get a nice long.... sport sock.
fill it with rice or oatmeal ( both uncooked) tie the end of it and pop it in the microwave for a few minutes. ( don't burn yourself, it can get REAL hot if put in for too long)
you can get real creative with this, I'm drawing a face on mine! I haven't tried making a doghnut shaped one yet though.

I hope you feel better soon!

quote:

---

Originally posted by troutscout:
Star,

That is one of my symptoms also...at least at hope it WAS...and is gone now.

Trout

---

Dear Trout,
this is a selfish question, but how did you rid yourself of the bone pain? Are you in remission?

quote:

---

Originally posted by lou:
Bone pain was one of my earliest symptoms and years later is still with me intermittently. Less than in the past, but still there.

---

DITTO, and I'll add that I am now doing quite well after over 3 years of aggressive treatment. Am I well? Who knows...Am I in remission? Who knows that one either...

But, I am here to say I am far better than I was when I arrived to this BB a few years back. Hello everyone.

quote:

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Originally posted by rosesisland2000:
DITTO, and I'll add that I am now doing quite well after over 3 years of aggressive treatment. Am I well? Who knows...Am I in remission? Who knows that one either...

But, I am here to say I am far better than I was when I arrived to this BB a few years back. Hello everyone.

Rosemary

---

I'm editing here to add, I'd forget my head, that for the past 4 years I have been on pain meds, including Duragesic and Hydrocodone...my last Duragesic patch was in the spring of 2004 and as of Wednesday of this week, I have not had my daily dose of Hydro.

Don't be afraid to use pain meds...that is what they are for...you don't be the high that folks taking advantage of them do that aren't in pain. If you need them, take them. Everyone around you will certainly appreciate it, greatly, I'm sure.

I quit smoking after 38 years in January and now off most anti-depressants and all pain meds. I am bi-polar and will keep taking my Seroquel, but, I'm now off all meds even hormones.

Do I believe that I'll need them again? Maybe, but, then maybe not...YEAH!!!!

Didn't mean to imply you had bart, just wanted to add on one more person who has had similar bone symptoms.

Since you said you tested positive though, I'm so, so sorry if it turns out this is what's been troubling you. Even though we all wish we could take a "silver bullet" drug and be cured tomorrow, in a way, that's also infuriating and much too easy for all the problems we've been through. While it's way too soon to say I'm cured or anything, a lot of my symptoms have changed since I started rifampin and ketek a month ago (bartonella was responsible for about 50% of my so-called Lyme symptoms, it seems) and I've been FURIOUS. Losing all this time to Lyme is one thing. Losing it to cat scratch, the wimpiest sounding disease on earth next to tapeworm, is unacceptable.

[This message has been edited by liz28 (edited 21 August 2005).]

You mentioned being bipolar. I am heading that way, too. My Lyme psychiatrist put me on generic Neurontin (gapabentin), but it makes me want to eat everything in sight, and I often do! It is like being on steroids, which I was taking for such a long, unfortunate, time. I keep eating fat and sugar.

I wish I could tolerate painkillers. My experience has been that they either have no effect (other than severe constipation), or I get respiratory depression. I do have a history of addiction (personal and family), so that worries me, too. About the "no effect": my mother is this way, too. Either she gets no effect, or terrible side effects. Maybe my reaction is genetic.

Liz: Ticks were discovered as a vector for Bart only in recent years. I guess since "they" are still trying to figure out Lyme and other co-infections sufficiently, it may be awhile before the majority "get it" about Bart.

Isn't bartonella notorious for causing bipolar symptoms? That's a hefty diagnosis to give yourself, especially if you've tested positive for bart in the past.

quote:

---

Originally posted by rosesisland2000:
DITTO, and I'll add that I am now doing quite well after over 3 years of aggressive treatment. Am I well? Who knows...Am I in remission? Who knows that one either...

But, I am here to say I am far better than I was when I arrived to this BB a few years back. Hello everyone.

Rosemary

---

I'm editing here to add, I'd forget my head, that for the past 4 years I have been on pain meds, including Duragesic and Hydrocodone...my last Duragesic patch was in the spring of 2004 and as of Wednesday of this week, I have not had my daily dose of Hydro.

Don't be afraid to use pain meds...that is what they are for...you don't be the high that folks taking advantage of them do that aren't in pain. If you need them, take them. Everyone around you will certainly appreciate it, greatly, I'm sure.

I quit smoking after 38 years in January and now off most anti-depressants and all pain meds. I am bi-polar and will keep taking my Seroquel, but, I'm now off all meds even hormones.

Do I believe that I'll need them again? Maybe, but, then maybe not...YEAH!!!!

Ok...on my bone pain....

It got worse...then better after....

Doxy
DMSA(Metals Chelator)
Fluconazole

However...about any time..it kicks up a 'little' actually almost non-existent

Now....

I have been asking for a list of Bart vs Lyme vs Babs symptoms list for quite some time...can anybody help?

Trout

I haven't taken the generic Neuronin for long. I haven't had any effect except side effects yet. Sigh. I'll see.