Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I had minor surgery on Friday (cystoscopy, dilation) which was day surgery. I have been feeling awful since. My neck, shoulders and back hurt terribly, I am exhausted, my appendages are numb, I have a headache, no appetite, etc. Could the procedure have made my Lyme symptoms flare up worse? If so, how long should I expect to feel so awful? Any feedback or experiences would be appreciated. I have chronic Lyme, one year now, am on Doxycycline 400 mg per day. I just completed 3 months of Amoxicillan, 1000 mg 3x a day with no success. Just started a 3 month course of the Doxy.
Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
OH,YES!...for sure! I've had major flares from past surgeries. One 11 yrs ago caused me to be forced into retirement from teaching. I didn't know at the time that I had lyme disease.
My most recent setback was due to gall bladder surgery. I did very well following surgery, but then got one of those "hospital infections." That was a complete nightmare.
I don't have any suggestions for you....but for sure, keep up with your doxy. If you have an LLMD, it might be better to get onto something like Biaxin or zithromax for awhile.
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
posted
My mother was pretty healthy for a 70 year old woman until she had knee replacement surgery in May 2004. She is now bedbound.
Last fall, she tested + for Lyme, Babesia, and Ehrlichia. I believe that she was harboring Lyme from a tick bite a few years ago which had been successfully kept at bay by her immune system, until the surgical assault.
You are fortunate to have already been on abx when you had your surgery, so perhaps the flare will not last too long.
You might want to consult your LLMD to see if you should increase or add anything for a while until things settle down. In the meantime, a lot of rest would probably be a good thing.
Posts: 977 | From Austin, TX, USA | Registered: May 2004
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Had foot reconstructive surgery June 8th. No flare-up of lyme/ms symptoms. Everyone is different, I am/was on different antibiotics than you, been on abx for 20months before the surgery.
My son sufered a relapse that took 10 months to get back to where he was pre-surgery. He was on aggresive treatment for Lyme for many months prior and post surgery.
The surgery, concurrent infection, anesthesia, impact on immune system and all his body was already fighting caused a significant relapse. His LLMD, was not surprised.
Close watch and contact with LL over this would be wise, as well as detox and immune building efforts.
Best,
Mo
[This message has been edited by Mo (edited 21 August 2005).]
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
While surgery can certainly flair things up, I have to say that the misery you are describing is exactly how I felt from taking doxy in the absence of any surgery! Just wanting to offer another possible option...
Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004
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posted
Surgery stirs up the lyme. Since it hides in organs and tissues the surgery disturbs it and it gets back into the bloodstream where it loves to reproduce the best.
People who do the best in surgery walk the lyme walk very closely with diet and LOTS of abx. A close friend just had a section of her colon removed due to abcess. It was a close call for a time there and this is a lymie who is impeccable in their lifestyle.
She went to a surgeon who would listen to her about the complications of lyme and surgery and she got the best of care with constant IV abx. They definitely covered their bases with her.
We are much slower to recover but just like finding out you have lyme, it can be a relief to know that you're not imagining feeling worse than you should after surgery. Now that you know it can complicate lyme, you are armed and can get the rest you need and let your body heal. from the trauma.
I see you are switching around quite a bit with abx and are currently only on doxy. Will your LLMD add biaxin or flagyl to help break up the cysts for the doxy to work more effectively?
I'm sorry you are experiencing this awful setback. I hope you find some relief soon, it's very scary, I know.
posted
I have had several surgeries since Lyme...Including a cycstoscopy, wisdon teeth removal, endoscopy procedure, and appendectomy.
I the only surgeries that bothered me were the wisdom teeth and appenectomy...took a little while to get back to base line....
The cystoscopy Thank God had no repecussions.
But yes it is possible to have a flare for a while afterwards... I guess anything that messes with your nervous system and causes stress mentally and physically to the bosy has that potential. I hope you feel better and get back to base line quickly
posted
Have had this happen more times than I can count due to surgery and supposedly minor procedures.
Any type of stress, be it physical or emotional will affect your immune system. I know because I just asked our LLMD about surgery last week. He said to wait it out if at all possible.
Baby yourself for now and take care!
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Posts: 703 | From Almost Heaven | Registered: Aug 2004
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
Surgery is hard on the body so you have to weigh the benefits vs. the risk.
I have had several surgeries. I dont regret a one of them because overall my life improved.
posted
Hi, I read this post and became very scared! I am under going a laposcopy for my endo on 09-02-05. After reading this post it made me so nervous and scared! I almost want to cancel everything but I know I have let my endo go for too long!! Its a catch 22! I do not want to feel worse than I am now?
Any helpful hints on how to cope would be apperciated. You can also email at [email protected]
Thanks in advance!
Posts: 16 | From Long Island, NY, Nassau | Registered: Jun 2005
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posted
Chloenstein! If it makes you feel any better- I had a laporoscopy done last year and I felt OK. Whatever they gave me really helped all my symptoms. Feel free to email me. Best of luck, I'm sure it'll be fine. Mil Mol
Posts: 229 | From United Kingdom | Registered: Jul 2005
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posted
Cholenstien - I know that a laparospic procedure does not take that long so you will not be under for long...
WHen I had my appendix out I was out about 45 minutes...although I had some set backs..all in all I did good and went back to baseline pretty quick.....
Also they usually give you either valum or Verded for relaxation and I felt great on those since I take a low dose xanax for help with my neuro symtoms...
posted
Oh, so that's why I've relapsed! I just had a c-section 2 1/2 months ago. I was doing somewhat ok before the pregnancy. Then, during the pregnancy, it was almost like the lyme was dormant. Now, unfortunately, it's definitely in full force again.
Posts: 43 | From GA | Registered: Jan 2001
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I feel alittle better today. It's not like I had a major setback or anything, I was already pretty sick with the Lyme, it just seems like it made it somewhat worse, which I basically expected it to do anyway. I just have been more tired and brain foggy and more pain than I had been, although I've been in a pretty yucky state since mid April. I just applied for disability and hope and pray I get it. I think the surgery just exacerbated things; hopefully it won't last too long. Today was a bit better; definitely getting sick to my stomach from the Doxy though! I barfed twice yesterday. Oh, and I don't have an LLMD> I have an appt with Dr. D in Boston in October, waiting for that, and have a call in to Dr. P in Wilton but no call back yet, it's been two weeks. Meanwhile I see a regular infectious disease doctor who knows very little but has had me on antibiotics for three straight months, which is more than my PCP would do.
Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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