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» LymeNet Flash » Questions and Discussion » Medical Questions » "Unproved Lyme Disease Tests Prompt Warnings" New York Times (Page 2)

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Author Topic: "Unproved Lyme Disease Tests Prompt Warnings" New York Times
Lymester
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Member # 5848

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I try to think optimistically, but in this situation it's (the secret behind the illness) so much larger and has so much power that it WON'T catch on fire.

AIDS is about homosexuals and needle sharing. The govt and certain medical education facilities did not give these people AIDS. Okay, so they say, but they can at least pretend to be liberal and open minded to different lifestyles.

LYME is not about feeling bad for a victim or being liberal about a sect or part of society. No one feels bad when something happens to "just anyone". It's just not a good story.

What about the text used from Amy Tan's hallucination? Did it have to be a G-damn naked guy? Can someone say something in print that everyone will read without it having to do with genitalia? Jeeze, I'm sorry, but I wanted to scream "not again!"

Just for fun, If I thought I might hallucinate about naked guys coming to me, I'd start picking out who it was I wanted and what lyme strain or abx to take. Come on!

I think a lot of these MDs are afraid of losing their status from old fraternity days. They are living a hazing that happened between Meds and Govt. They cannot release this story. They can't go into hiding or under govt. protection... right?

When you are in the service, you report when told. It is not out of the ordinary to be tested for pharmaceutical trials, studies.

Lyme was tested on animals and the anticdote was working as far as the scientists eye and research could determine, but it can not be proven until tested on a human subject.

How many military bases, sites, are on the east coast with recruits easily available for human testing? Why does it appear the east coast is the endemic area?

The above is purely speculation, but still my gears get worked overtime. (of course if I'm not fogged)


Posts: 519 | From CT | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Lishs mom
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quote:
Originally posted by lymeloco:
Only in America......do we use the word
'politics' to describe the process so well:
'Poli' in Lating meaning 'many' and 'tics'
meaning 'bloodsucking creatures'.

Couldn't pass this one up!



and for those of you who may subscribe to the theory that Lyme was biologically altered and placed within the tick .....

antibiotics are great!
anti- against
bio- tics- ticks biologically altered or manipulated.


Posts: 1918 | From Central, Oregon | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
ivebeentricked
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I have faith in nothing, I can't even allow myself to get too upset about such a poorly written, completely biased and innacurate article because I feel that I have nothing to do with my anger.
Posts: 99 | From California | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
Lymied
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This is just BAD journalism!!!! I am hoping that most people read it and could see the bias represented. What idiots!!!!

I did write to the publisher before the article came out begging that they research the entire story...told them that my treatment is the proof that IgeneX was correct with their results.

I have such limited time and energy these days. Debating whether I will spend hours on another letter...

We must all when we feel well do what we can. I have helped start a second organization here in N.C. and we are hoping to keep a patient registry of those people that have gotten bitten and ill here in the state. We plan to use it as a tool to educate officials and the medical community.

I have to do something now that I am back on one foot at least...the anger and just complete disgust at how lyme disease and coinfections are being disguised is enough to make me spontaneously combust. So I have to stay busy and do my best to do something about it.

It is amazing to me that the propaganda wheel just keeps on turning...

This journalist is not a journalist but a sheep. He just follows his orders not getting at the truth. It is amazing to me how so many ignoramasses (sp?) have such power they have not earned nor know what to do with. Scary...

Mr. Courcier is quoted, "Its been a hell of an emotional roller coaster" - as if the ride is over...He needs to realize it has only just begun if he doesn't follow through on some kind of treatment...

I also love how the article ends here with absolutely no diagnosis for Mr. Courcier...I realize they could be protecting his privacy but I bet it is more a matter of they have no explanation for him.


Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
bg
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I sent off my rebuttal letter a little while ago today.

ps - Mayo Clinic, Minn. showed me negative on 2 bands and 5 bands of IGG & IGM on western blot! Very disgusted since I was posiitive thru IGX and lately BOWEN labs for lyme disease!

bettyg, Iowa


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lpkayak
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you know...as bad as this is...at least we're not being ignored...there was a time when west nile made all kinds of news, but no one would say anything about lyme.
Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
newlymepatient
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I'm a journalism major in college, and while I don't agree with this article--I can definitely see how it happened. Many journalists are taught to compare what they consider unusual situations to the status quo. Because the CDC and the New York State Department of Health are associated with the government, what they say is considered the norm/status quo.

I do, however, think that this article was written with bias.

This quote, for example; "But Robert Kenny, a spokesman for the State Department of Health, said the agency was not convinced that IGeneX was performing the recommended tests for the public in the same manner as it has been performing them to pass the state's proficiency review." is hersy. Additionally, they didn't follow it up with what Dr. Harris had to say about the claims.

Additionally, they ended the article on this note, "At the same time, it's clear there are tests out there for which there is really precious little to support their accuracy."

Hmmm... I wonder who the reporter believed.

Plus Courcier didn't really have an explanation for why he didn't accept the Lyme diagnosis--was it just because he was sick of taking medicines? Was it because no one explained to him that you feel worse (ie. herx) when you start taking the medicines.

When I was diagnosed with Lyme disease last summer I told my journalism teacher about how much trouble it took for me to get diagnosed. I told him about how I went to the doctors with a bunch of symptoms and they told me they didn't think anything was wrong with me--even though I had told them I had recently been hiking where there were ticks.

He was immediately skeptical of the doctors who had no answers and ignored me--not the doctor who helped--and he does an occasional article for the NYT (--he did NOT write this article). I have been thinking about bringing this up with him, but I am not sure what to say.


Posts: 50 | From San Diego, CA, USA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
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