As I am allergic to all the others, I see there is one group I haven't tried yet, the Chephalosporins; Ceftin, Rocephin and Claforan.

Do these work as well as tetracyclines and are they easy to tolerate? My last chance!

I used Claforan IV and then Vantin orally. The only caution I would give is to take a lot of probiotics. I got lax about it and developed a yeast overgrowth. And you also can get a C.Diff problem. So take probiotics by the handful.

On the Marshall Protocol, be careful. Benicar helps a small subset of Lyme patients. But it is not tolerated by a lot of people. My son was on the MP for 5 months. And it was not successful.

I've had a couple of weeks without antibiotics now and I can feel my self sliding down the pole again. I couldn't get an appointment to see my doc until mid Sept so I'm getting myself armed with as much info as possible!

Just going back on the Samento and trying out oregano until then.

If I had to, I would do another round of IV Rocephin.

Bc

I find cephalosporins(sp?) much easier to tolerate than tetracyclines(ugh!).

I felt the best on Claforan but had my treatment cut off mid-stream so don't know how it would have all turned out. Rocephin didn't make me feel as good but I did well with it. (It was my very first treatment, also cut off midstream. Heh, anyone see a pattern here?)

The oral, Suprax, made me feel pretty good and the herxes were tolerable. I don't know that I gained any ground, I was using it for maintanence, but I felt pretty good for quite some time.

mmm...I'm following you around because I'm going to start Ceftin next month. I noticed you were pulling up threads for me to read, Thank you!

Good luck I hope it goes well for you. Please let me know how it goes and thanks for trailblazing.

My doc and I are experimenting because I've had allergic reactions to all other abxs. Should take about three days to see if I have hives from them.

Trublue; keep in touch & let me know how you get on...

quote:

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Originally posted by Lyme ED:
Suprax is now back on the market, after being unavailable for a while.

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If they're making it in tablets, any idea who's doing it?
(I called Wyeth/Ayerst/Lederle first and they aren't. Too bad they have/had a very nice patient assistance program.)

Thanks

You might want to start slow and work up, in the beginning, and see how you do. (Alright, that's just wimpy me.)

I hope it works for you. When are you starting?

I am glad you're starting the new treatment. I'm very newly diagnosed, and the LLMD put me on cefzil then ceftin.

At 28 days, my herx landed me in the ER and threatened to do it again 28 days later.

So I figure it's working. I've had some gastrointestinal distress, but aside from the herxes, that's been the only thing.

Three months on abx, and I'm working pretty steadily and able to walk. I can't walk without limping, but I can walk, which I wasn't sure was ever going to happen.

Hope your allergies don't flare. Keep us posted and know we're thinking about you.