Now, someone will be along to post the link to the Western Blot explanation of individual bands so you can compare yours.

Do you have other Lyme symptoms? It's different for everyone, of course. You may not have all of 'em, but you'll likely recognize some of 'em.

I can't imagine how your dentist would have given you Lyme; I have never heard of that kind of transmission! (Exception being VERY friendly dentists :-) and I assume you don't mean that!) Much more likely is you being unaware of a tick bite, as many (perhaps half) of Lyme patients are unaware.

Lyme and cranial nerve involvement (all of which is over my head) can really do a number on teeth. You probably need to deal immediately with the teeth, but please don't put off the Lyme treatment either. It likely will NOT go away! A CDC positive Western Blot "ain't easy to come by" and is NOT accidental or happenstance, fer' sure!

Best of luck to you...

:-)

Michelle

Here is a good thread on Western Blot bands:
http://flash.lymenet.org/ubb/Forum1/HTML/026659.html

What does your LLMD recommend? What does the dentist think needs done? Do they have any ideas as to what might provide relief? Seems I have heard somewhere about some type of bone infection of the jaw related to Lyme but can't say for sure.

Please hang in there and hopefully someone who knows more than me will pop in here. Don't doubt your Western Blot, though -- it's possible to have that going on PLUS the jaw thing, both at once.

I'll pray you find relief soon.

Here's a doctor's explanation of the testing.
http://www.drcharlescrist.com/testing.htm

I imagine many hear/recognize the fear, hurt and isolation that you face daily. I wish I could say the right words to give you relief and make you feel safe. Probably so many read your post and wished the same.

This board will help you. Already you know Gigi will help with all she knows. So there are friendly people to turn to.......in the middle of the night.

While this kind of treatment has the potential to help, many people need treatment with antibiotics from a variety of classes or families, and you have not had that.

It also looks like you have not been checked for coinfections, or treated for them.

So, I can't tell you for sure that is the problem, but if the list you are giving is your only treatment, you could very well have Lyme, yet not respond to that particular treatment protocol.

Some example of other antibiots that are used just for Lyme are doxycycline, Minocycline, Ceftin, Omnicef, Bicillin, Amoxicillin, Rocephin, and lots more. They are all in different classes than the ones you have already taken.

Aren't macrolides supposed to be the most effective and if they don't work nothing does?

Also....don't give up now...it took me almost...a year to really notice a difference.

quote:

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Originally posted by lynliz:

Aren't macrolides supposed to be the most effective and if they don't work nothing does?

---

NO! I don't know who told you that, but macrolides are seldomly effective by themselves, or even just with a drug like flagyl or tinidazole. You need another drug like a cephlasporin or a tetracycline.

If you have coinfections, you need a whole different type of therapy.

If your doctor is the one telling you this about the macrolides, then he needs to do some research. For you, I recommend you read Dr. Burrascano's protocol thoroughly, as a start, and then keep learning, so that you know what is in store for you.

Dr. Joseph J. Burrascano's Treatment Guidelines

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Sonoma County Lyme Support
[email protected]

Welcome to this 24/7 educational & support group board, www.lymenet.org !
Here's TREEPATROL's and TINCUP'S combination newbie links.
http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.

print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

I was told it was the trigeminal nerve, and any slight cold draft...can set it off.

About thirty years ago, I would get extreme pain in my left ear.

I went to peridontist, orthodontist, and they made me a bite plane. I can't go without it at night!

I have a dual bite, and back then the orthodontist wanted to break my jaw and bring it forward. I said no way!!

I was a grinder and clencher. I was told by an e.n.t. doc that it was bruxism. I went because I was dizzy, and she said it was from that. That was way pre diagnosis for lyme!

I found warm moist compresses helped my cheek bone.

Hope you feel better soon!
My question is...how do you find out if it's gum infection?
Do exrays show infection?