-Will I be able to care for my children?
-Will I be able to drive?
-Will I need to be in bed all day?
-Will I need to have someone to care for me?
-If it is dehibilitating, For how long?

Just trying to get all my ducks in a row and use the help I've been offered when I need it. I basically need to know if I need to move in to my parents house at least days while my husband works, put my kids in school(we homeschool), Have my sister fly in from California. I know no one knows what they will experience until they do but just trying to plan ahead. How bad has it gotten for you.

My medication increased before bed, so that early morning til noon could be horrible. The anxiety and questions surrounding your inability to do common everyday tasks can be the worst part of it. You may experience episodes that will last for several days every 4-6 weeks.

If you are able to keep a journal of these horrible episodes, hopefully it will show the cycle and dissipation or lessening of the symptoms during each subsequent herx.

I used the llmd's nurse or doctor and also came here quite often.

Brain fog, anxiety, flu-like and nausea were popular in my case.

If I were given the opportunity to have had help, I would have taken it when offered.

But maybe explain to everyone when there will be good days and really baaaaaad days (or even just moments that come without warning). Explain that when Mommy says she doesn't feel good, she means it, and she must go to bed RIGHT NOW. Nobody should be able to question or whine about it (hubby included).

And explain that you are not to be made to feel guilty about being sick... because sometimes well meaning family members don't quite get the concept that you can be feeling great one minute, then like total crap the next, and that the process takes many many months (or years) to resolve.

Since you've been sick so long, I would suggest (if you can afford it) to start some detoxing using the foot patches. There's lot of posts here if you do a search (hope it's working). It might help make the herxes tolerable.

Good luck to you.

quote:

---

Originally posted by niki:
what are the foot patches called, where do you get them?

---

Niki, their called Podi patches. Google it and you'll find them. For herx's ? Hot baths in epsom salts, or drink water with freshly squeezed lemon, or some claim mangosteen juice helped them.

I would check with your dr to see if you should be using that while taking abx. Some of these products wipe out EVERYTHING in your system, including your medication.

Milk thistle, however, is a must do while taking abx. (liver detox) Just take it away from your abx doses.

Green tea, ginger, epsom salt and baking soda baths and lots and lots of bottled water help with herxes. (And lots of water is a must all the time.)
www.podipatch.com - by far the most potent product, easy on the sytem, and wonderful for long term use. But a bit pricey.

You can find similar products on Ebay. Just compare the ingredient list to the ones from podipatch.

I'm newly diagnosed with Lyme and have only been on abx for three months. My LLMD prescribed oral, starting at a low dose, then increasing each week for a month.

I got a bit of a herx during the day (and day after) the abx increased. Generally, I also felt much better in the mornings; by late afternoon, I was pretty useless...even on "good" days.

I tracked all my symptoms on a chart, so I could glance at it and see exactly how this recovery progresses.

At the end of the first month, then again at the end of the second month, I had very nasty herxes which left me basically unable to function for a few days. I found those month herxes lasted for about 3 to 4 days, with the last day being the worst.

The thing about this disease, though, is that it varies with everyone, I think.

Still, I agree with others that the foot patches are a good idea. I've been using them since I first started abx, and I have them on now, actually. I think they've really helped my Lyme arthritis and my thinking.

Hope this helps.

I did have a infra red massage table treatment today. Felt totally relaxed then a few hours later felt like I had been run over by a truck.

I put the pads on early to see if it would help. A few hours later I really feel better. Wierd maybe little sticky things on your feet but if they work how cool!