posted
Hi , I just wanted to get some general support.Maybe this should be in the support column aren't you guys sick of being mistreated by these healthcare professionals? There is so litle competence out there and so much impudnece. They just want to laugh at us and makes us look like we're crazy. Had a real bad day concerning a dentist that treated me in such a manner because i'm switching to Disability like I was worthless and a nut.now I know what poor people are trated like. Wouldn't even listen to my concerns. I know I have a dental problem and no one will give me a CT scan when my bone scan clearly sates that there's somehting going on with my mandible. A simple x-ray won't cut it. Just real angry and I can no longer sustain the lyme rage. I don't know why people are so freakin bitter, mean, and cruel. If I would be healthy I would be vibrant with joie de vie and would be so nice and if I'd be a doctor I would do my job, for what I get paid for and would keep my problems at home. But these people , they force us to be angry, I am perfectly happy even this sick- my life is based on the bed and barely getting to the washroom and I'm happy. But when i go out and see some of these ppl everyhting has to be a problem i find. Even going to a cyber cafe and asking for help with their comp cause I have neuro lyme has to be a problem, not even the docs, but just ppl in general. Why are healthy ppl so angry with themselves, clearly they are because they project how they feel on others. They don't even suffer 10% as much as sick ppl do, wow their daily issues? What do you do to prevent depression. I'm not on anti-depresants and don't wish to be, always had too many endorphins. But one year has gone by of abx and there's so little progress that I'm overwhelmed. So little money ... want to travel and see dr. J, still 18.know I have coinf. Now with the whole Igenex thing and blabla I'm lost and plus we canadians had this huge globe article that was great in substance but Mentioned our LLMd's name's so we've pretty much lost them. It is terrifying to be alone in thins, no one understands. i don't know what step to make next, where to invest my money. Should I travel and get the coinf. issue over with? Or should I get a Ozone steam sauna with that money which btw I heard is great . If I get a Ozone steam thign then My possible aerobic stuff will get stronger like bart and babs..... But will kill lyme and any dental stuff. So what do I do here guys? How can i know for sure if I have bart and or babs , the tests are unreliable and have so little money to do them. How can I know? it would be nice to exclude them because that way I can hit the anearobes with oxygen and feel better. Any advice sad and hopeless, L
Posts: 82 | From canada | Registered: Apr 2005
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posted
The first thing I would do is post a list of your main symptoms and then others could give you a better idea of which coinfections are most likely. Also some general info on which antibiotics you have had.
I have seen others suggest taking Artemesinin to see if you herx. If you do then you probably have babesia. A good brand is Nutricology. Good price at http://www.vitacost.com
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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I left nursing (before I got sick) mainly for that reason. I don't think I had ever worked in a field with such cruel, impersonal people and this wasn't the same hospital or area. Unfortunately, I come to expect bad treatment at most doctors offfices until I know them better. Had a really weird experience when I saw a MD for a routine eye exam which I thought would be a pretty benign and routine procedure. I have neuro lyme and walk around in dark sunglasses everywhere holding on to my husband. I explained my whole way through the doctor's office to each nurse and tech, that I have extreme light sensitivity. Didn't make any difference to them, they are programmed into a routine and kept attempting to shine light into my eyes, flipping on overhead lighting so they could see better, even put drops in one eye that dilated my pupil without telling me what it was. I lost it. Started crying. I will never go there again. I've promised myself to make a packet of my test results of Lyme with documentation to send to each doctor I've seen. Don't care whether they care or not, maybe one of them will want to see the results and the end of the story. I keep the majority of energy for my recovery but have an obligation to educate. By the way, I have met some beautiful people along the way too and I try to keep thinking of them. Good luck.
Posts: 460 | From Illinois | Registered: Aug 2005
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