posted
it was a day like any other in this lyme patience' chronic alliance with her trembling lower lip...
does anyone else have a trembling lower lip?
abnormal sensory test?
knowing i am with lyme has cut the panic and self hatred into easier to digest slices since i know it's organic and not all in my head...but that doesn't make it any easier when i totally blank out as if neuron city in my brain space is neuron black hole.
it's good to have a diagnosis after almost three decades of invalidation and i thought hey that's half the battle, maybe it is...but now it doesn't seem so.
i am so against drugs always was so now my life has become a walking irony and i still hope to beat this in a matter of a half a year because i do not want all the repercussions to the flora in my system with prolonged biaxin.
the first herx was unbearable.
now on half a dose starting full dose back up tomorrow with just having got an atypical mole removed from my arm and my skin just does not heal....i sit having woken from a gut wrenching dream now in a mania, with a dash of cuervo.
i am writing because i know many of you will relate or understand. this lyme disease as it has been untreated in me for so long, has seemed to have gone to far for recovery, although i don't believe that all they way.
if only nueron less city would find some lights may be reading or creative writing would find its way into my heart during these times of dark isolation.
i say, huge sigh, this may be more than i thought it was going to be.
but, to the trembling lower lip...one dr. said it was significant but i haven't yet followed up because my neurologist last year suggested somatoform and hopefully i'll knock some sense into him this coming week at my appointment. i realized i could't express my symptoms becauseif i wasn't having them at the time, i wasn't really remembering them. this is the strangest disease!
forgive me for rambling, i am at a wits end with wanting some semblance of normalcy.
appreciating this website. and honestly asking about the lower lip trembling symptom...what it could mean?
posted
Suggest you do a search under cranial nerves -- don't remember which one but I am pretty sure one of the cranial nerves controls the lips.
Sorry you are feeling so bad -- it does get better if you can hang in there.
I agree that stopping or reducing meds is necessary to control a herx. Just don't push yourself too hard. Slow and steady is the name of the game.
Biaxin is known as a "gut buster" -- you may want to reconsider and try a more stomach friendly antibiotic -- maybe doxycycline.
My spouse has a trembling jaw -- it only happens when the brain is really really disturbed.
Posts: 48 | From Five Mile Creek, WV,USA | Registered: Aug 2005
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