posted
Ok I am not new here I just haven't posted in awhile. I have been dx for almost 2 years now and I am having a heck of a time working. Every joint and movable part in my body hurt. When I sit to long I can hardly stand. I am trying to get disablity, my doctor knows and agrees with me. I was just wondering how many people here are on disablity/ Thanks Annette
-------------------- Annette Posts: 117 | From Greensburg Pa USA | Registered: Oct 2003
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posted
Hi Annette Well it took me 3 yrs to get my SSD approved. I applied in 1993 and got it in 1996 after being turned down once.. There could have been a few reasons for that. One, I was pretty young when I applied I was only 22 yrs old and the government doesn't like putting anyone that young on permanent disability if they can wiggle out of it because once you're on it they then have to prove somewhere down the line in your reviews that you are well enough to go back to work. The burden then falls on them once you are approved. Also, the first time I applied I didn't have a lawyer. I dont know how old you are but I've seen people who were in their 40's an 50's get it alot faster than I did.. One piece of advice I would give you though is if you're going to apply do it with a GOOD SSD lawyer. They dont get paid unless you're approved and then they only get a certain portion allowable by law. Good Luck!
quote:Originally posted by Annette5: Ok I am not new here I just haven't posted in awhile. I have been dx for almost 2 years now and I am having a heck of a time working. Every joint and movable part in my body hurt. When I sit to long I can hardly stand. I am trying to get disablity, my doctor knows and agrees with me. I was just wondering how many people here are on disablity/ Thanks Annette
posted
Hi Annette! I'm sorry you're not doing well. There are many people on this board who are on disability. Many choose not to advertise it.
You can find alot of good information which may help you by doing a search. I would try typing in "disability" and see what you come up with.
bettyg has alot of info too
welcome back!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
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posted
Annette,
Tutu, thanks for the plug! Yes, it took me 5 years of he!! to finally be approved; was approved 7-1-05! They went back 3 yrs. so now I'm on medicare too since I'd already waited 2 yrs.
These are things I want to emphasize now to you/all:
1. you want to furnish ALL important drs. documentation from the beginning.
2. have a RFC, residual function capacity done by your primary care dr. & rheumatologist.
3. have a MFC, mental function capacity done by psychiatrist; psychologist was of NO help to me. Psychiatrist's comments were used in APPROVEING me!
4. Remember, it's not the illnesses to emphasize; it's the 8 things:
sitting, walking, standing, holding, working with your fingers, bending, crawling, etc.
Now read the below and especially the female MD's detailed report for you to use as a template. Good luck.
Bettyg
IF YOU ARE TRYING TO GET SS DISABILITY INSURANCE or LONG TERM DISABILITY BENEFITS ==================================================
This message is sent upon subscription, and again monthly. Please let the moderators know if any of the links have changed. There are several links found by clicking on 'Links' on the website or by going directly to http://groups.yahoo.com/group/Disinissues/links
There are many more links, as well as advice, in the "useful" messages in the Files area of the website. Go to http://groups.yahoo.com/group/Disinissues and click on Files.
BETTY NOTE: Look at the female MD's DETAILED BACKGROUND right below this paragraph. Print off her detailed responses as to why she could NOT do her job, and then apply that to YOUR own job as to why you no longer can do any type of sustainable work now nor in the foreseeable future!
Betty's note: Here is EVERYTHING about the complete SSDI process; their rules/regulations! BOOKMARK IT PLEASE as you will come back often to read up on the next steps! http://www.ssa.gov/OP_Home/cfr20/404/404-0000.htm
These links are a compilation of several areas of interest which are commonly requested and mentioned. They reflect the collected wisdom of this group. Check them out - you just might find the information you were looking for! Take a look at Files that are not specific to your situation, because they might be helpful anyway - what works for Social Security may work for LTD claims, what applies to CFS may apply to your medical condition.
The Welcome Message and Group Guidelines are also in Files, if you need a refresher on how this group works.
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An online friend of mine from disinissues web site posted this info today, so I have copied it over here.
Subject: fibro/CFS disability info [Disinissues] what does an Functional Capacity Exam entail?
Lyme, fibro, & CFS support group members who are/will be filing for SS Disability insurance benefits, please go to the web page shown below.
There were 9 pages of info I printed below area where you can order from fibro network a 70 page packet. I too plan on including this info when I send my FINAL packet of info to chief alj before my June 16, 05 hearing...my last chance! =======================================
Please read the site mentioned on: WHY DISABILITY TESTING FOR FMS IS OFTEN MISLEADING ADVICE FOR FM/CFS PATIENTS AND THEIR DISABILITY TEAM.....
Also after this article are the following articles:
WHAT COULD BE CAUSING DELAYED-PHASE FLARES?
BENNETT'S METHOD FOR ASSESSING FUNCTION IN FMS..
TECTONIC CHANGES IN DISABILITY LAW by lawyer Joshua Potter, CALIF.
MEDICALLY DETERMINABLE IMPAIRMENT REQUIREMENTS FOR CFS & FMS
DOCUMENTIONATION...VIEW IT AS AN INSURANCE POLICY
I printed this out in larger print for my eyes....9 pages! Will read it thoroughly and mark up 2nd copy to go to ALJudge for my 2nd hearing as medical evidence also....
http://www.ilads.org/brochures.html The following is an announcement from ILADS: What you need to Know about ILADS and Lyme Disease and What Psychiatrists Should Know about Lyme Disease are now available in a PDF file on the ILADS web site (www.ILADS.org). They are in a printable version so that if you have a color printer, you can print them up yourself
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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