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» LymeNet Flash » Questions and Discussion » Medical Questions » DOING RESEARCH FOR MY FRIEND WHO IS 2ND STAGE LYME WHAT EVER THAT MEANS

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Author Topic: DOING RESEARCH FOR MY FRIEND WHO IS 2ND STAGE LYME WHAT EVER THAT MEANS
chassie1957
Member
Member # 7885

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Hi All
Doing some research for my friend, she must of been bitten about 15 years ago, was given a few antibiotics and than nothing ever said about it again till about 2 weeks ago, they did some test and now are saying she is in the 2nd stage of lymes, which she doesnt know much about..there sending her to a doctor which is about 100 miles from where were at..but didnt make her appointment for about a month after finding the results..she suffers from alot of joint pain ect..have her on loratab now but are there any natural things she can do for her body till she see's this doctor..she is also concerned she may have gave it to her husband..would appreciate any insite, or websites, suggestions anyone has..ty chass

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chassie1957

Posts: 10 | From kentucky | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
lyme_suz
Unregistered


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Welcome Chassie!

I'm touched by your concern for your friend. When I was at my lowest pt.; it was overwhelming to even figure out how to help myself.

You should look over the "Newbie Links" on this
site.

Your friend should quickly find and go to a lyme literate dr. Lose a lot of time,money going to most drs. Worth every penny. Treating is expensive, but so is mistreating or not treating.

Hope this helps,
Suz

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Tj33
LymeNet Contributor
Member # 7214

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Change the diet to strengthen the immune system..
Google Dr. Mary Enig for more info....
Get rid of veggie oils and use only natural oils to cook with.... Eggs, bacon, pork, fish, and beef provide good proteins the immune system needs...
Eggs are the best of all foods....
A good breakfest should be eggs, meat, high grain bread toast with real butter no sweets.. Drink Coffee, tea, or water. Beware fruit juices, most contain artifical syrups... Drink lots of water through the day....

Stay away from all Diet drinks and artifical foods especially those that contain aspertme..

Lots of info on the net regarding the immune system.. The Ducks ignore the immune system...

Good Luck
Tj

Posts: 192 | From Phoenix, AZ | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


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Ty, go to the left hand column, SUPPORT GROUPS, and click on the state or country you are from. There should be email addresses or phone nos. you can call to help your friend get to the closest/best LLmd...lyme literate MD! Thanks for caring about her; she's lucky to have you.

Welcome to this 24/7 educational & support group board, www.lymenet.org !

Here's TREEPATROL's and TINCUP'S combination newbie links.

http://flash.lymenet.org/ubb/Forum1/HTML/029917.html

Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.

print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.

Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!

http://www.lymeinfo.net/lymediseasetreatment.html

Some guidelines from Betty/others on using this message board:

* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.

* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.

* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.

* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.

* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
* Also, we have ``lyme'' disease; not lymes... We are ``lymies''.
* LYME SYMPTOMS - http://www.lyme.org/otherdis/ld_symptoms.html

Bettyg, Iowa [bonk]

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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130

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You'll get a better understanding of second stage lyme(no s )disease if you print out dr burrascano's guidelines on the newbie lincs found on this site...
Most I know is that after initial lyme infection the relapse is more neuralogical and fast to becom late stage lyme disseminiation...

Don't listen to those who don't know what they're talking about like most mainstream medical doctors...they have different agenda as far as we lymies are concerned....

The figures you come up with are riddiculous....
Lyme is affecting millions...it's just not recognized as such....
rather it is misdiagnosed as ms;als;fm'cfs...etc and so on.....good luck..........zman [Eek!]

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I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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15 yrs of Lyme would be "Late Stage" Lyme.

I hope your friend will find a good LLMD right away. This is serious stuff.

Western Blot explanation:
http://flash.lymenet.org/ubb/Forum1/HTML/022767.html

The cause and spread of Lyme
http://flash.lymenet.org/ubb/Forum1/HTML/032259.html

More info:
http://www.ILADS.org/

Camp A and Camp B
http://flash.lymenet.org/ubb/Forum1/HTML/021395.html

Lyme Wars
http://www.wildernetwork.org/Lyme_Wars.html

Lyme Disease State Info
http://www.lymeinfo.net/support.html

Rose's 15 Facts for Newcomers
http://flash.lymenet.org/ubb/Forum1/HTML/011977.html

Abbreviations for Lyme-speak
http://flash.lymenet.org/ubb/Forum1/HTML/020494.html

Making the most of your LLMD visit
http://flash.lymenet.org/ubb/Forum1/HTML/020605.html

Success Stories
http://flash.lymenet.org/ubb/Forum1/HTML/022173.html


http://www.anapsid.org/lyme/matthewgoss/index.html

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--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
ShadowHawk
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Hey...

I just wanna' say something about the Drs. Not all M.D.s and D.O.s are against us or part of the illiterate elite who think they're so superior.

In my experience with this diseases and the associated damage it's done to my body, I've only run into a small percentage of the Drs. who were really unwilling to admit that Lyme might have played a role in my other conditions...i.e. pituitary dysfunction, etc. My endocrinologists have all agreed that it's quite possible that the Lyme did damage to my pituitary, but...they do point out that at this point in time there's no medical evidence to show that Lyme does that. They say that doesn't mean it doesn't happen, it's just that they have to work with what they do know.

This where things get hokey. It's the CDC/NIH and money grubbing fools at the FDA you should be upset with. They're the ones who set the tone.

Anyway, I think it's ludicris of us to expect every Dr. to know how to treat Lyme. That's like expecting every general practioner to know how to do intercranial procedures as well as the neurosurgeons. Lyme is a special disease and needs a specialist to treat it, just like endocrine problems need an endocrinologist.

I think we'd all be a lot better off if we just quit bashing the family Dr. and realized that those of us with Lyme need a specialist.

Grrrr...sorry for the rant.

Posts: 67 | From Kansas City, MO | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
troutscout
Frequent Contributor (5K+ posts)
Member # 3121

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Chassie,
You must be an amazing person...here only a few days....four posts and....already rated with the highest member rating known to Lymenet.

I guess this shows your expertise and compassion....may I telephone you?

I am so miserable...I need your help.

Trout [Wink]

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Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
www.iowalymedisease.com
[/URL]  -

Posts: 5262 | From North East Iowa | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130

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Shadow Hawk,
Are you kidding or what?
These so called doctors don't have to cowtow to the cdc or nih or anyone else. They choose to to protect themselves and their practice...forgetting about the patient...the one comming to them for help...
Yeah like my original md who diagnosed me with ptsd,post polio syndrome,ankylosing spondylitis...after I went to his "specialists". Then when I proved him wrong he dropped me as a patient and wrote all kinds of crap in my medical files...
Oh ya mean the infectious disease(which is what this is) specialists...
Like the many I went to who diagnosed me with possible ms,als,fibro,etc...and would'nt take a five band positive on my IGG as proof that I was infected or a two band positive on my IGM.
Come on....you must have been extremely lucky to find any mainstream ducks that attributed your illnesses to lyme disease...
Even now after it has been well documented all I get from mainstream ducks is "we don't have that disease here(Ohio and Florida)...or we don't know how to treat it...or at least an honest internal mduck who stated that we were High Maintenance patients...and such...

Don't bash these guys....well EXCUSE ME! But I have plenty of past and ongoing reasons to bash these so called medical doctors....and they still don't or more to the point WON'T get it cuz they're afraid of the consequences. zman [Mad]

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I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
   

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