posted
Have any of you experienced less fasciculations or the disappearance all together while on antibotics for Lyme?
Posts: 25 | From Crawfordville, Fl U.S. | Registered: Jul 2005
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
Okay. I thought I knew plenty about these diseases.
What are fasciculations?
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Fasciculations = Muscle twitches
Less yes, not gone. 2 full years and counting.
Overall, I'm still not symptom free but I am substantially better than I was even 1 year ago.
I sure hope the antibiotics will eliminate them.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Hi Nancy,
I began my lyme journey with muscle twitching (my symptom that led me to find a LLMD and my diagnosis in Sept. 2000).
I was told by my a neuro doc that my muscle twitching was called "benign fasciulations" and then he kicked me outta his office after his VERY DETAILED (not) 15 minute neuro exam. this exam was scheduled to last an hour, but hey, I couldn't make my muscles twitch on demand for him right there in the exam room, so out I went after a cursory shallow/skim the surface neuro check.
This neurologist was the last of the quacks in my line up to see before finally hitting on my LLMD way back when.
I counted almost 5 YEARS OF MUSCLE TWITCHING before it finally just stopped. I had stopped all abx almost a year before they muscle twitching stopped, I think this time last year, so 9-2004 was the end of my abx taking. And Spring 2005 was the end of the constant muscle twitching.
I noted that I had about 3-4 months of no muscle twitching at all (I almost did not want to consciously acknowledge this happening because I somehow thought if I "thought" about them stopping long enough, they'd come back!!!! how nuts is that?!)
Anyway, after months of nothing, I noticed about early summer that when stressed, or high adrenaline rush, a muscle would twitch. When this started happening often enough, I'd get very still and see if my muscles were gonna start doing their dance again, but it would only be a single muscle, and then it would be nothing.
My LLMD could never ever tell me if the muscle twitching was going to stop, and when I did stop all abx, it was because the muscle twitching was not subsiding, and I thought if that was all I was taking all those meds for (couldn't really say any other symptom was giving me grief at the time) then I would do a trial and see if just stopping the abx taking would affect the twitching.
Concurrently, about the time I had noticed the twitching to JUST STOP, I saw a post on here asking how long people's muscle twitching lasted, and there were about 6 posts from people saying "mine lasted 5 yrs".
I almost peed my pants!
I thought, ya know, every single gosh darn symptom or weird physical body something or other, I have found here in someone else on Lymenet, and how unbelievable is that, that the most confounding symptom I've ever had, is in someone (more than one even!) else, at the same time I was seeing it (twitching for 5 yrs, and then just stopping suddenly, with no abx taken at the time).
Lymenet continues to amaze me, in that I come here, and find someone else that has the exact same thing I have, and I take comfort in that I am so not alone in this. Julie
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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WildCondor
Unregistered
posted
Muscle twitching can be greatly reduced by taking magnesium sulfate injections. You get a precription for 1 gm Mag sulfate and a Rx for the syringles and needles too. Inject 2-3 times weekly. Also, taking oral mag tab SR is a great way to stop the twitching. I always used to twitch when I started herxing, it was the first sign. You can get Mag tab SR ordered from CVS, Rite Aid of Walmart. Niche makes the Mag Tab here is the link http://www.niche-inc.com/niche/magtab.html
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ticked in ri
Unregistered
posted
Yes. Less twitching on abx. For me I had lyme symptoms for about 10-11 months before being clinically diagnosed and started on abx in early Aug 05. My muscle twitching started in late May 05. Neurologist said I was "a variant of cramp fasiculation syndrome". After looking at another forum for benign fasiculations I saw some discussions of lyme. I did more research on Lyme and realized the Neuro was very wrong.
Found a lyme doc and after 1 1/2 months of abx, I'm doing better. The muscle twitches are 90% better. Just feel an occasional twitch in the calf or the foot. This was the first evidence I had that the abx seemed to be working. My muscles still aches (legs, arms, hands, & feet) but are improving. My stamina is improving. I don't need to sit down as much because my legs are hurting.
I take a multi vitamin and when I think of it I take a magnesium supplement.
Hope you feel the same improvement soon.
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Foggy
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posted
Yes, one of my first symptoms to come, and first to go. Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Just like Foggy, the muscle twitches were the first thing to show up, and they were the first to go after I started treatment! What has been the most helpful for me is magnesium in large dosages. I take Xymogen OptiMag, 2 morning, and 2 evening. (I think that the brand of supplement really does matter as I had taken TwinLabs magnesium and didn't have the same result.) It has helped with the muscle spasms as well. Good luck!!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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Sue vG
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Member # 3143
posted
Fascics were my first and worst symptom, and did get better with treatment. They're nowhere near gone, though, and now that I understand what they are, I don't worry about them.
I do take magnesium, but adding another drug to my regimen to treat a basically benign symptom is out of the question for me.
Posts: 1307 | From TX | Registered: Sep 2002
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posted
Hi, I have fasciculations, is this pretty common with Lyme? Has anyone ever looked on www.aboutbfs.com ? It is about benign fasciculations. A very good website and I was convinced that was what I had until my friend who I had called to compare my symptoms with her's (she has MS) introduced me to a woman who has all my symptoms and was diagnosed with Lyme. I live in a wooded area and my dog had Lyme 2 years ago and my neighbor was diagnosed with it this summer. My other symptoms come and go (sharp shooting pains, pins and needles, foggy headed) but the fasciculations are constant. So is it Lyme or benign fasciculation? My Lyme test came back negative. Should I keep pushing for more tests, etc? Julie Snyder
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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posted
Jsnyde....keep seeking a diagnosis. I was infected with lyme in Wisconsin (was raised in Wisconsin) more than 9 years ago. It is very common in that area of the country. I had 2 ELISA tests come back negative before I found a doc who knew what to look for, and I got a big fat positive. Don't give up! Educate yourself so that you can advocate for yourself because you will need to. Docs know that the shortest distance between a patient and the door is a prescription (ie. treating symptoms rather than investigating a cause). Good luck!! (and in the meantime, try magnesium for your muscles)
Posts: 393 | From Washington, DC | Registered: Jun 2005
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David95928
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Member # 3521
posted
Like Wild Condor, magnesium sulfate works for me. David
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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posted
It's weird, because just today I started having a bad case of the "twitchies". I don't know if I'm herxing or what, but they came on pretty strong.
I'm not on abx yet, but am taking supplements but am not sure which one might have caused this.
I discovered, completely accidentally, that when I put 2 foot pads on my feet (gold), the twitchies stopped within about 15 minutes completely.
After about 8 hours I noticed the return of the twitchies so I just put 2 new foot pads on and it stopped again! Bizarre.
I'm wondering if the tourmaline in the pads somehow helps regulate the body's electrical system to the extent that it normalizes the fascitu...the faschis....the twitchies.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Make sure your taking Vitamin B complex,cq10,magnesium,and a multi, it helps repair damage. Yes mine took a while but there gone.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
It did mine.
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
BIAXIN!!! Made me Herx like crazy twitching and then helped take it away!!!!!!!!!!!!!!!!!!! I was so twitchy!! Yikes!!! facial twitching, limb twitching and finalyl I began having whole body seizure twitches which really sucked- myoclonus really- but the muscle twitching ripples those were affected with me by BIAXIN!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Just Juile: Great post, your story sounds exactly like mine except for having the twitching stop. I'm not at the 5 year mark yet so I guess there is still hope.
I take a B complex along with a multi and some additonal magnesium and none of that helps.
I've done large doses of B12, coQ10, IV vitamins, Mag Tab SR in the past, that didn't help either.
The only thing that seems to help is antibiotic treatment and time. They have lessened in intensity and quantity with both.
At this point I'm convinced it both damage being done and being healed.
-------------------- Mathias Posts: 1250 | From New Jersey | Registered: Feb 2004
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