troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
So...I must be doing two things at once...herxing to high heaven on Ketek....
PLUS
I unfortunately have figured out that I THOUGHT the whey protein drink called "Goatein" was causing me to herx immediately after taking it...my teeth were hurting...joints, chills...I actually do know that initially it WAS a herx (My gallbladder always acts up when I take an effect treatment..since it is infected also)...however...
Lymetoo kept asking me....are you sure its not candida? Nahhhhhhhhhhhhhhhhhh......couldn't be.
Well now my teeth hurt and feel full all the time... AND whenever I eat certain foods my cheeks become inflamed...my teeth hurt and my skin gets sensitive, nose runs...crap...crap...crap.
Boy...what a BONEhead...I just helped establish a HUGE new expansion of fungal growth.
Throwing me back...oh...let's see...sbout 2 or 3 years...on recovering from this darn crap. (I am now reacting more to paints and molds because of this...my spine is swollen....my teeth hurt..this sucks.)
Here' are my thoughts at this time;
I know this is mainly candida...but, I also feel that I am herxing...week three from Ketek...and, I am full of infection and other crap in my jaw line. The toxins have built up over time..and here I sit...stupid tough guy that I am...crap...crap....crap.
On top of this...my nervous system SWELLS up like it used to when exposed to fumes (paint, etc)......AND...my wife and I are STRUGGLING to find an inhabital house for myself as our house has been foreclosed on...full of mold...and we are getting VAERY close to when we have to move out...December 13th.
What a bunch of crap...oh...I just started working at GNC part-time also..like it...but... when I started yesterday I was sick because I golfed 9 holes on Sunday at a family tournament...felt great.....but symptoms get worse after being on the sun.
I hate this...I hate this...I hate this.
Trout
Oh......read my other post in General...its the real kicker....and, parden my whining.
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Trout, my thoughts and prayers are sent your way along with hugs for you and your wife..Wish I could do more..
And I concur, I also hate these damn diseases and what they do..
Our daughter continues to be in very critical shape..May hospitalize this week..WE are also all a wreck but do not have all that you are dealing with..
May well and happy days be ahead..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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I'm so sorry it is rotten right now...I was surpised to see your aggrivated post, after last weeks good one.
Hope you can get a blast on the yeast stuff... I've been on the anti yeast campain, myself for a couple of months now, and I think I'm finally making some headway.
As far as mold, I understand that too. We are having mold abbatement done here as we can't find a new home.... roof comes off in 2 weeks, pray for dry weather in NH. We have mold from roof sheathing down to the basement.
I'm glad you got to play golf... the reaction from sun, meds and Ld are rotten... Still really glad you got to play!
I hope you can find more playing moment, and reasons to smile
I was WALKING... on the beach the other day with hubby for our 24 anniversary and got all silly watching the sandpipers legs move faster than cartoon characters!
I hope today turns into a great one!
Just read general....Was praying before, now I'll be more specific! Posts: 663 | From NH USA | Registered: Sep 2004
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posted
yea trout, double double crap, Ld so sucks!!!!
question for you:
Well now my teeth hurt and feel full all the time... AND whenever I eat certain foods my cheeks become inflamed...my teeth hurt and my skin gets sensitive, nose runs...crap...crap...crap.
Is that yeast or is it lyme ketes dying cuz it is happening to me with rife and I have yeast under control, (but not gone by any means).
I hadn't thought of yeast, but maybe that is the culprit.
thanks Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Trout,
It sounds like you need a big old group hug.
Hopefully when you get out of the house your body will be able to take care of the Lyme and everything else. Mold toxins can cause such problems.
Maybe some detoxing would do you good? I sometimes kick off a good anti-candida regimen by eating very little for a few days...not quite a fast...but sticking to very simple and very small portions of protein with lots of water.
Good luck. Candida ain't no fun.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Been there; done that.
I got better by going OFF antibiotics. I would seriously ponder Leaky gut syndrome induced by yeast.
My orthostatic intolerance, food sensitivities AND chemical sensitivities went away AFTER i stopped antibiotics. Took some time, but they did.
I noticed, however, when I was off, that I STILL had a four week flare- right on time, every 28 days.
So my LLMD put me back on Bicillin- so that way to MINIMIZE candida/leaky gut problems ( can still cause them both though)
Anddd... after a 6 month remission from orthostatic hypotension, and chemical and food sensitivities- I am now BACK to hanging onto walls in stores and wanting to stuff my nose with cotton balls.
Herx? NO. Yeast? Yes. I did get a doozy of a herx on bicillin though. WoW! Thought my bones were gonna break.
Hang in there. And KILL THAT YEAST. I have preached yeast out the wazoo around here too
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hey Trout,
I understand the frustration. The better I get the more I seem to herx. When I am not bothering the little critters and I am not having summer airborn allergies, I feel about 95%.
If I do anything to stimulate my immune system or irritate the little buggers, BAM! With Diflucan for yeast, ache all over and joints in feet swell and become feverish. I started a new form of very accesible magnesium, and the tinitis flaired and the rest of my marbles fell out of my head. Dizzy like car sick and nausea, all from Magnesium? If I even take 3 mgs. of Mino, on comes the herx. It comes on slowly and after about 3 weeks, I can't stand it anymore and quit.
I have a thing of Goatien in my cupboard right now. Haven't had a chance to try it yet with everything else I am doing, but you have peaked my curiosty.
Sorry you feel so cruddy, maybe it isn't a bad thing. Sometimes I think my healthier immune system manages to go on killing for a while longer even after I stop treatment.
Maybe you need to back up a bit, and start over, one thing at a time. My LLMD, doesn't believe we have to be in serious pain to make progress. He was bedridden with Lyme and Babesia and is now back working and enjoying life again. He is methodical and trys to cover all bases, but one at a time. We tend to get overly exceited and cram everything down at once. I kknow I jacked myself up pretty good in the last couple of months doing to much to fast. My doc says if the herx is bad enough that you find it hard to function, back it up.
Take care, take care of yourself when you can. Don't overdo. Nine holes of golf is tempting, but you usually have to pay sooner or later.
Posts: 1251 | From california | Registered: Apr 2005
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posted
Jelly, I am right with you, mag takes me down hard, lyme vertigo is jacked up, all hell breaks loose and my marbles roll out the door and into the street.
Took a new type of digestive enzyme the other night and got hit the same way, that I cannot figure out, not on meds at all.
Also crime, my vertigo is not yeast related and only gets better when I rife (after huge herx that is, which consists of lots of wall hugging.) Hope you are doing ok Crime, we have not talked in awhile. Since we last talked, I have pretty much been to hell and actually not back but baby steps in a better direction at the moment.
But it can all change on a dime as we all know! Lymelady
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
Trout (and pardon my French, everyone), that SUCKS! I don't know any other way to say it....
At least you know what it is now, so you can fight it head-on... hope you feel better.
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Just to let you know..
Three weeks of ketek gave me a replapse from being off the biaxin and it wasnt a herx.
I thought it was but it was not because it was gradual.
I have went 3 times without biaxin. Each time after about 2-3 weeks I have symptoms return MAJORLLY with a vengence.
So after the ketek I had to go back on the BIAXIN.
I feel like Im addicted to the biaxin cause when I get of it I feel so horrible.
I have been on BIAXIN now for almost 2 years.
Posts: 2905 | From New England | Registered: Sep 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
So sorry you are feeling rotten, Trout. I sure hope you get it sorted out soon.
Sending good thoughts and wishes, Ann - OH p.s. is this post related to the unreadable one on the General board? I hope you are not having more and more problems! Is there any way to correct that one so it can be read?
minoucat
Frequent Contributor (1K+ posts)
Member # 5175
posted
Trout, couldn't get into your post in general -- could you repost? There's a code glitch.
Have you tried cholestyramine to help dump the toxins? Seems like it might be a good choice right now. Also chlorella, maybe? I've heard good reviews from reliable people on the book "Mold Warriors"--might have some good info for you?
Also -- just my experience dealing with candida reinfection -- I don't think you've set yourself back 2 years, although I'm sure it feels like it. You've done so much to detox and demetal since that time, I think you'll find the fungal stuff much easier to resolve now.
I hate this too. Hugs to you and your' other half. Deep breaths!
-------------------- ********************* RECIDITE, PLEBES! Gero rem imperialem! (Stand aside plebians! I am on imperial business.)
posted
Hang in there Trout! Ketek is potent stuff and it can take awhile for the herx to clear out. Do you have swish and swallow Nystatin you could take to keep your intestines yeast in check? Stay strong...it will get better!
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posted
Here's what Trout was trying to post in General. I just spoke to him on the phone.
Trout's wife had an ultrasound yesterday on two lumps in her breast. She was approaching her two-yr anniversary of being cancer-free this week. She is scheduled for a biopsy Thursday.
Please keep the family in your prayers, as they are really hitting tough times again.
For trout and family from lymenet
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
THANKS FOLKS..i AM EXHAUSTED....WILL UPDATE YOU TOMORROW.
tROUT
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Trout:
Hang on!
I was doing great, thought I had Candida beat. Just saw my Gastro this morning and he said, you have a yeast infection again. UGH! I have been feeling crappy too. I have eaten some dairy lately and a few glasses of wine because I was feeling so yeast free. The wine is NG but, the dairy really puts me right over the edge. Goatein is dairy - not good for yeast. I had to stop using it for a bit.
Take one day at a time. Watch your diet. Remember that Ketek and all abx will cause yeast. Eat well, curse, cry, sleep, exercise, watch stupid TV shows and, hug your wife and kids. That's the best medicine I can offer today. My MD said, get on with life even if you feel like you can't.
posted
what might help, and may not be noticeable for a month, is to stop the gotein for one month. this assumes cysteine may be a culprit base on the link to cysteine, i posted approx. 2 weeks ago, and piece of the absract. This also assumes the cysteine causing a problem of its own, let alone possibility that Bb is may be soaking it up passively and this manifesting as one or more of the Sx.
the abstract i referred to talks of pure cycteine. the cycsteine in gotein more than likely is hooked up to other amino acids. Therefore, Sx, if any, due to the cysteine content in gotein would manifest later in time(day(s),week(s), month(s)), than if one had taken pure cysteine , or N-acetyl cysteine(NAC). A little B cplx with mineral supp. to process the assumed accumulation of cysteine?
I've not taken gotein yet, but will.
Just my guess based on the abstract in medical sec.,lymenet data base on cysteine and Bb.
low dose enzymes over the course of the day should help process a lot of stuff. Hang in there.
Posts: 2708 | Registered: Feb 2005
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posted
sorry to hear about Troutscout's troubles; this is a lousy disease! maybe he should have gone flyfishing instead of the golf-it always soothes me when I'm stressed.Lymelady,see my post on enzymes.everybody, hang in there!
-------------------- ~*~ Carole ~*~ Young at Heart Grandmother of 4 Posts: 140 | From Morristown, NJ, USA | Registered: Jan 2004
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I wanted to encourage you to add some kind(s) of detox if it sounds like something you can manage with everything else going on. Candida produces a lot of toxins that can add to the load our bodies have to deal with.
Unfortunately candida is something we have to battle with from time to time because of all the abx.
Best wishes. Hang in there.
Posts: 925 | From California | Registered: Sep 2004
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