Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
This is getting ridiculous.
I have been getting to bed around 4 a.m. due to mania and nausea. I keep setting my alarm for an early time so I can get up and actually get on a medication schedule. I have to take meds throughout a normal day with a normal meal schedule. HA!
Despite the sound advice from my husband (get up, even if you're exhausted so you will get tired earlier the next night and reset your clock, etc.), I cannot get up. I have always been able to will myself up no matter how sick, but I can't seem to do it now.
I am so deeply fatigued and delirious in the morning. I keep hitting the snooze button until it's almost 1:30 p.m. I know my Zyrtec is partly to blame, but I can't move it back too much at once since it is a 24-hour med.
It's bad enough I'm not up to steam with my med schedule due to ramping. Now I'm getting so off because of missing meals.
I don't know if I'm looking for suggestions, or I just want to vent. I thought that if I could just literally roll out of bed, I could make myself get up.
Oh, I have to take some meds at least an hour before breakfast meds, too, and, today, I didn't take them until I got up.
AAAARGH.
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Hi there, I have found magnesium is really helping. The best for me is to get an IV vitamin/mineral with magnesium and b6 and other goodies plus glutathione. But when my doc was away I actually gave myself shots in the butt (mag sulfate). The nurse taught me how and it wasn't hard at all and I'm a wimp.
Magnesium kind of works like a natural valium. It should help you get nice and drowsy and relaxed. Oral doesn't do it.
Posts: 2276 | From united states | Registered: Jun 2004
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
I wish I could take Mg in other than an oral form. I have Medicare and Oxford, and they stink as far as covering certain treatments.
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hiya Star,
It is very difficult to go to bed at a "normal hour". I'm just not ready.
And getting up could just kill me.
Used to be I would force myself to get up and take a shower to wake up. Then I would just crawl back into bed and sleep somemore.
Talk about bed head.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Hey Star, Yeah don't ya just love it when someone says...just get up...like we don't want to...
This diseas messes with our circadian rythm big time...I think that's so we'll stay anxious and keep our immune system down so our bodies can't get that deep healing sleep we all need.
It sucks...you may want to try some of the drugs like provigil to kick start your rythm. I think magnesium,coq10,cordycepts,evening primrose have worked for me in the past also.
Try eating some peanut butter on crackers with milk at about 45mins before you want to sleep.
Good luck..................zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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I'm so sorry about your situation. Sleep deprivation can make everything seem worse.
About a year ago my LLMD put me on Trazodone at hour of sleep. It is an antidepressant that has a side effect of drowsiness. It allows me to sleep well, wake up refreshed and carry on.
I'm not necessarily advocating this for you. Just telling you what works for me. I am an advocate of non-medication sleep whenever possible!
You probably already know how important routine is prior to bedtime. Do whatever you can to start relaxing and "quieting down" in preparation for sleep early in the evening. (Bath, massage, aroma therapy, classic music (that usually puts anybody to sleep (=, snack)...
My family has had to adapt to lights out at ten, no t.v., etc.
Even discussing controversial subjects or watching upsetting t.v. should be eliminated if possible.
I truly hope you find your answers.
One thing for sure, with Lyme Disease, change is expected.
Blessings,
Bug
-------------------- Every experience God gives us, every person He puts in our lives, is the perfect preparation for a future only He can see....Corrie Ten Boom Posts: 343 | From Northcentral Iowa | Registered: May 2005
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Star, magnesium for injection is pretty cheap. I find half a cc does it for me. You can get preservative free 2 ml bottles (thus 4 doses), keep in the fridge, use sterile techniques (swab with alcohol, use sterile syringe and sterile needle, disposable, to draw out the solution into the syringe, dispose of that needle you just used to draw out the solution, into the proper red plastic container for such waste (I forget what they're called, but they can't be re-opened, they're self sealed containers used for all such stuff, doctors offices have to use them and you should have a small one too, and after it is filled with needles, dispose of it), then put on another sterile tiny guage needle opn the syringe (say, 27 or 28 gauge), 3/4-1 inch. Make sure no air in that, either. SLowly push until one drop comes out the needle top. Have your doc teach you how to do it--upper right quadrant of buttock, nowhere near sciatic nerve. Slowly carefully infuse into muscle. It does hurt or sting a bit but it really works. This is NOT expensive. Just need a willing doc to Rx it. I get the magnesium from wellness pharmacy. The syringes and needles are RX too and are pretty cheap. I will probably use it tonight.
Posts: 2276 | From united states | Registered: Jun 2004
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Star, I just found another site that shows how to use magnesium in a nebulizer (you'd still have to get an Rx for the magnesium sulphate, AND a nebulizer, and I have an inspiriation neb. which costs about $60 you can find it on the internet) and, sort of weird, but by using epsom salts in an enema but you have to follow that very carefully and only use a little bit as its strong.
Here's the site, with lots of info and various articles about magnesium:
posted
Hi Star, Just wondering if you started tapering the Lexapro dose. I know when my daughter tapers her dose she gets the mania, sleeplessness, naseau, stomach cramping and nightmares,
This happens about the 5th to 10th day after the reduction in the Lexapro and continues for about 10 more additional days..........then she is back to normal until the next reduction of the Lexapro.
This may not be what is happening if you have not began tapering but your story sounds so familiar to what we are going thru with the withdrawal from Lexapro.
Posts: 677 | From USA | Registered: Aug 2002
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
Thanks so much, everyone. I appreciate all of your caring concern and suggestions.
I haven't been on the site for a few days.
I have to continue ramping up with my protocol, meds and supplements. Maybe then I'll see some improvement. I want to follow it closely as I trust my new PA, and I've been sick for decades without proper treatment.
The doctor spoke of possibly adding Remeron at bedtime. It's an antidepressant that is good for resetting the biological rhythm.
I don't tolerate all meds and supplements, and I am of VERY limited income. We have been paying for some medicine with a credit card. That's how we'll pay for heating oil, too.
Aunty: I'm not tapering Lexapro at this time. Hey, is your brother interested in the Rife machine? I don't have your email addy anymore.
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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posted
I have this problem too though not as severe. What works for me is to take my sleep meds a little earlier and adjust dose according to what I feel I need. For example, before my period I tend toward insomnia so I take a higher dose for a couple of nights.
Once my cycle begins I am usually very tired and don't need a sleep med or need very little so I take a break. BTW, regardless of the situation, I take less than prescribed strength because less does the trick for me.
Posts: 925 | From California | Registered: Sep 2004
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