posted
Hi All, Its me again...wanted to thank you all for the great responses i had on my 4 messeges on here...this is the greatest group that i have found soo far...as you know im looking for alot of info for my friend, she got lyme dz about 15 years ago..gave her 1 round of antibiotics and that was it till recently..now there saying she has 2nd stage lymes..which we really dont have any idea about what that means or symtoms or what it will do to her...well mainly on this subject, she goes to a infectious diease doc on tuesday, and we would like to know what questions we should ask him, and any suggustions we should ask him to do for her...im am soo worried about my friend, we have been best friends since a young age...and some people talk on here like u might be able to catch it from drinking after each other if thats true i might need tested too..but any information u can give us that she can use to talk with the doc would surely be appreciated...and once again ty all for the wonderful responses i got on my recent messeges...ty again chass:) MAY GOD BLESS YOU ALL AND BRING HEALTH BACK TO YOU:)
posted
I haven't been on here lately, so I haven't read your other posts. I hope the doctor is an LLMD (Lyme Literate Medical Doctor). Many infectious disease specialists are not experts in treating chronic Lyme. You and your friend should make a list of things you want to know. Keep a copy for yourselves and give a copy to the doctor at the start of the visit. Leave some space after each question to write the answer. (It's hard to remember everything the doctor says.) By giving the questions to the doctor, he won't cut the visit short before answering them. If the doctor is not an LLMD, you may want to print off the "Basic information" at www.ilads.org to give to him. Read it and be familiar with what it says before the visit. Some doctors are stumped by Lyme and appreciate information; others feel insulted when their patients give them literature. The doctor will probably prescribe antibiotics. If it's a 3 week course of antibiotics, that is not enough to do much good, but will tide your friend over until finding an LLMD. The doctor should also suggest taking probiotics for intestinal yeast and should recommend something to detox the body to modify the Herxheimer reaction (which makes symptoms worse for s few days of longer whilc the bacteria are dying off and releasing toxins. There are products that help get the toxins out of the body and give some relief to symptoms.) She should also give the doctor a list of symptoms she is having, a written list of any medicines or supplements she is taking and the dose, and a brief outline of her history (telling about any known tick bite or rash or other symptoms) with approximate dates. She should xerox all this information for her own records before the visit or request that the receptionist make a copy for the doctor. She should keep a daily diary of her symptoms, their severity, and what pills she is taking. This can start after the doctor visit and will be helpful in the future to review before each doctor visit. Then she will be able to determine whether she is having monthly herxes (the bacteria reproduce once a month and cause symptoms to increase at that time) and how she responds to various treatments. Lyme bacteria are not known to survive in saliva, so it's not supposed to be transmitted through kissing or sharing a drink, but I, like many others, are not totally convinced that it can't happen. The Bowen lab says on their website at www.bowen.org that they have found Lyme bacteria in blood, urine, tears, and other places, but they make no mention of saliva. Enzymes in saliva are supposed to kill some germs and prevent some diseases from being transmitted that way. I still think it would be wise to avoid French kissing and sharing food and drinks, just in case, although there's probably not much transfer of saliva when sharing drinks. Ruthanne
Posts: 18 | From Kansas | Registered: Jun 2005
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Have your friend ask if he treats for longer than 4 weeks. Many, if not MOST, ID ducks do not believe in chronic Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
Also, on the note you give them, request that a copy of his medical dictation & any blood tests/xrays be sent to you always!
A reminder to other newbies that have recently joined, please shorten your LONG paragraphs to 6-8 lines of text only and DOUBLE space between paragraphs so we chronic lymies are able to read this. Thanks so much!
posted
Am thinking this ID Duck is just that........a Duck. Haven't seen or heard of many that are Lyme Literate. Wouldn't be surprised if he says she has Fibro and was "cured" from Lyme with the first dose of antibiotics she received years ago.
Probably wouldn't hurt if you went to the seeking a doctor flash and posting for LLMD's in your friend's area, just to cover her.
Good Luck and ask HARD questions at the appointment. Go to ILADS and read, read, and read some more so you don't get confused by his Duck talk.
GOOD LUCK!!
-------------------- ICEY Posts: 468 | From Las Vegas NV | Registered: Jun 2005
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