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Hey all, Going into 3rd week...and noticing my small positive have stopped. For me, these are GI and neuro issues. I was having regular Bowel movements from 1-2/day...now, not so much. And even with regular movements again, still had/having lack of appetite.
Was better first week, bowels finally getting to move again, but now...back to upset, irritated tummy and not hungry. Lost another 4 pounds last month...so this is very discouraging.
The neuro stuff had a breakthrough the first week too...more awareness, attention to detail, alertness...now back to extreme brain fog/Dizziness and lack of focus. In addition, the extreme coldness over body is back...especially hands/feet (even have some fingers/toes kinda purplish). That had been gone for months. Eye blurriness is coming back on strong again too.
Did have have periold during last week (plus full moon same week! hmmm..) And then things just stopped going on the uphill swing...so maybe hormones just unbalanced everything again?
Only other changes, is ND adding some amino acids and melatonin to help with sleep,(tests show exteme lows on adrenals, hormones, seratonins etc...).
How about you others...how you all doing? I'm wondering if I have a co-infection..possible bartonella due to GI/extreme loss of weight issues..(I've lost over 50 pounds since becoming ill about 2 years ago..) and neuro stuff.
Anyone have some ideas/thoughts to offer? Feeling abit discouraged, know it's way early yet, but feeling like I'm already losing what little I've gained.
Thanks friends, JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
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Java, I hope you are feeling better each day. It is tough and a real downer when you are doing so much and not having positive reactions.
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Hi Ann, Sorry I didn't see your post earlier..I accidently hit my post twice, and hadn't seen your response. I greatly appreciate your kind words and encouragement.
You're right, it's hard to do so much, without alot of progress(yet!) to show for it. I'm really hoping the IV's do something...I feel like we've pulled out the big guns here and am really needing something to "give" in a positive direction to show there's some light in this tunnel.
Are you doing IV's as well? If you'd like to share your thoughts and/or experiences, they'd be greatly appreciated and I hope you're finding progress and health with whatever you're currently working with.
Thanks again Ann for the encouragement...some days that's just what you need.
Health and Healing, JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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My 15 year old daughter is doing the IV Rocephin. She is going on 9 weeks. At 6 weeks she was showing some improvement, though slight. (Been sick 11 years.) But had another herx (maybe?) last week followed by her period and has not bounced back.
I am clinging to the posts on this board about it taking months but then improvement seen. Hoping our insurance sticks with us till she improves. This is the first abx that she is herxing on, so we feel it is working...
Hang in there. Sure is a long up and down road.
Posts: 55 | From USA | Registered: Sep 2005
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quote:Did have have periold during last week (plus full moon same week! hmmm..) And then things just stopped going on the uphill swing...so maybe hormones just unbalanced everything again?
How uncanny! I was just getting ready to do a new post about your quote above, as I am also at my wits end. Was doing extremely well with rocephin, but got hit by the full moon and menstrual cycle at the same time you did! Same problems, plus anxiety is through the roof with me. Didn't have any anxiety at all until the full moon/menstrual cycle.
Sure hope you're feeling better soon! I have been down this road before, but thought everyone would think I was insane when I posted about it. Anyway, I bounce back after about a week.
Full moons and periods are evil!
Poor us! Hopefully we'll both snap out of this soon.
-------------------- Posts: 703 | From Almost Heaven | Registered: Aug 2004
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iv going well but a cold has now knocked me down...argh! I had to sleep with tissue stuffed up[ my nose last night!
no laughing please...
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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Thanks for your replies and support. Seems to a trend of menstrual cycles disrupting things. I've read other posts regarding this, keep hoping that there's some adjustments that can be made in advance that would help the body prepare (other than HRT and other such applications).
It does seem that with each menses cycle, the body has to readjust again and again. For me, it seems each time hits my system harder than the month prior. Perhaps it's the 'chete load? Perhaps it's the nutrients and hormones that just keep getting knock more and more off balance? Wish I knew...hoping there's answers out there, we just gotta keep looking.
BB- So sorry to hear you're going through this as well! Does make you wonder how these reactions are related. You're so right about the anxiety "going through the roof". Seems like the normal flucations that occured before we were ill, just seem to amplify with lyme.
Hoping that with time, this will lessen. Have you had the nausea and lack of appetite with your treatments as well? Glad to hear you're feeling better...hopefully, we will all have more of these days as we go along.
Thanks again friends for your support...hanging in there with all of you, day at a time.
Health and Healing, JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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