As you know, there is a great opportunity October 12 in Massachusetts. The joint health committee is holding hearings in Boston on Lyme disease. This committee held a small hearing in Ayer this past summer. They asked representatives from the Lyme community to sit on the hearing panel, including LDA. They were motivated to do more after hearing patient testimony (go to LDA website photo album 2005 and scroll through for pictures from the hearing http://lymediseaseassociation.org/PhotoAlbum_2005.html).
This is our chance. We are trying to win the war state by state, and Massachusetts is a key one. Officials need to hear what you have to say about how Lyme has affected you. You will have 5 minutes to tell your story, but this could be one of the most important 5 minutes you have had. We all want a cure, but in the meantime, we need help for ourselves and/our our families. John Coughlan has been working hard on this issue and the LDA has been working with him and the legislators.
John is working to set up the buses along with other Lyme community members. Go to www.LymeDiseaseAssociation.org homepage and click on the Mass hearings for details of the buses. Please register for the buses ASAP, since they must be secured in advance. Parking is a distance away from the statehouse so buses may be your best choice.
Please try to attend. Do not do it for John or for the LDA, do it for yourself, your family, and the Lyme community in general. I am. Pat Smith, LDA President
Posts: 24 | From Southwick, MA | Registered: Sep 2005
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Posts: 308 | From new bedford,Ma. | Registered: Dec 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I cant do it but wish you all luck at this hearing!!!! about lyme to those who need to know!!!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Thanks! I can't make it, but will be in Boston the week before. I'm trying to set up a meeting with legislator on the committee that I know.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
To those who attend: Please make it clear that it is a TRAVESTY that Boston, arguably the finest city in the country for medicine & research, is in the dark ages when it comes to Lyme & related vector borne illness research.
Boston/Ma is an endemic region. Why is there no dedicated Lyme & Vector borne illness research center at one of Ma's leading teaching hospitals?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Good grief, lymeblue, you are something else. Maybe this will be a good learning experience for when your state has hearings!
Posts: 8430 | From Not available | Registered: Oct 2000
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Mass. has been a great help in previous state hearings.
Please, everyone, help them (and all of us) now!!
-------------------- "Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today! Posts: 1265 | From does not list | Registered: Jun 2004
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