posted
My daughter just started on this protocol. She will take Diflucan 100mg 2X/day for 50 days then switch to penicillin for three weeks and then repeat the protocol as necessary. After five years of aggressive abx therapy and slow recovery, we're hoping to see some better results with this protocol. Just wondering what others experience has been with this.
Posts: 57 | From CT | Registered: Jan 2005
| IP: Logged |
posted
Hi, I spoke to someone who was treated with this protocol (over the phone) and she said she had great success. I've seen a number of discussions on this board regarding the use of Diflucan, most all negative, but none were with respect to this particular protocol. Apparently the Diflucan inhibits the growth and replication of the Borrelia, it does not kill them. When rotated with narrow spectrum antibiotics treatments that do kill Borrelia this is supposed to have a very positive impact on the disease. (I got this all from this article: Treating Lyme with Diflucan According to this doctor it's the order of treatment and type of antibiotic used that make the impact. The trouble is I can not find much more info on this approach out on the web. Best of luck. PS: Apologies for the redundancy's as you probably already know this info. But I thought you'd like to know that I spoke to someone who's had success with the protocol. Also, if youknow of anywhere to get more info on this approach please do share. Thanks! And again, best of luck to your daughter.
[ 05. October 2005, 09:47 AM: Message edited by: Kenny from PA ]
Posts: 76 | From South Eastern PA | Registered: Sep 2005
| IP: Logged |
posted
I think the questions raised about this had to do with whether the protocol was actually treating underlying yeast problem, which can have symptoms like lyme. In other words, hitting yeast, not lyme.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
I understand the protocol and the questions surrounding it. What I am looking for is feedback from people who have tried the protocol.
Posts: 57 | From CT | Registered: Jan 2005
| IP: Logged |
This protocol has been discussed with my LLMD. My doc says she's going to wait until the ILADS meeting this month to see if anyone has more info on it.
Maybe something will come out of that.
I've had my PCP rx the diflucan telling me that he's had patients that have recovered on it alone. I keep resisting trying it out. I guess I'll know more later this year.
Hopefully we all will.
Take care,
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
| IP: Logged |
posted
I know some LLMDs are using this protocol. It would be helpful to hear from some of the patients that have tried it.
Posts: 57 | From CT | Registered: Jan 2005
| IP: Logged |
posted
My LLMD (a very prominent ILADS top dog...woof) says that Diflucan is his latest "hot" treatment protocol. I haven't started it with him at this point but, he's recommended it if my current protocol fails.
Dave DaveinCt (now Dave in VA)
-------------------- Thx, Dave (Now in VA.) Posts: 207 | From Lynchburg, VA. | Registered: Jun 2004
| IP: Logged |
posted
I'm on Cetin and Diflican, I herx a lot worse on the Diflican then I do the Ceftin. I've had to back off the Diflican several times when the herxing got to bad, and restart it when I'm feeling a little better. It must be doing something. I think it may do something besides just kill the yeast, I don't know, but I think it's worth a try.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
| IP: Logged |
Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
I think Diflucan does more than just kill yeast..just my 2 cents worth.
I hope you see some good improvement with your daughter ticktox.
Posts: 6641 | From Michigan | Registered: Jun 2001
| IP: Logged |
Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I am not using that ABX, but I have used Diflucan for yeast and I herxed significantly on it. What was interesting is that when I herx, whether it be ABX or Diflucan, I end up with serious pain in my ankles and feet, accompanied by being fevreish to the touch and swollen.
One of two things is happening. Either I have a lot of yeast in my feet and ankles OR the Diflucan is doing something to the Lyme. My doc and I both are leaning toward it doing something to the Lyme. Having yeast overgrowth in my feet isn't something I think I've ever heard of.
When I stop I almost always seem to have made major advancement. My doc did take me down to 50 mgs. a day to avoid the discomfort of that major a herx.
Posts: 1251 | From california | Registered: Apr 2005
| IP: Logged |
mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Our llmd started my son and I on this protocol this week. He has been using it for some patients for several months now.
Yes, he believes that the diflucan will kill/remove the "granuales" and forms of lyme that don't respond to abx. We have been on abx long term with good success.
Today is only the third day, so not much to tell, except that he works us up to the full dose over time and has ordered liver function tests in one month.
Posts: 1572 | From Pa | Registered: Jun 2001
| IP: Logged |
I'm resisting because I have 2 different protocols to follow and I've been doing very well with the non-diflucan one. Also, I've only been rx'd diflucan...not penecillin with it. It's not the Schardt protocol.
So, I'm wishy washy about trying it as it stands right now. I want to talk to my LLMD about it first.
Thanks for asking,
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
| IP: Logged |
posted
Our LLMD has us (my daughter, son, and myself) on this protocol. We have taken the diflucan for two months, and are now starting the abx.
The interesting thing with me is - my liver enzymes have been elevated - even before lyme treatment started two years ago. And they have stayed elevated.
So, I was a little concerned about taking 200mg of diflucan everyday. But - after taking it for two months - I had bloodwork done and my liver function numbers went from 46 to 22!
Posts: 416 | From Southeastern PA | Registered: Sep 2003
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
My teenage son is on it. He has done the 50 days of the Diflucan and is starting the Penicillin. I had to hold the Diflucan a few times to decrease the herx. And I started him on 50mg and ramped him up to the 200mg. And he did herx on just 50mg so I was glad we didn't start at full dose.
The penicillin treatment is going ok so far. He just started it a week ago. He is herxing but not as much as with the Diflucan.
Karen
Posts: 1846 | From Maine | Registered: Jun 2004
| IP: Logged |
posted
Thanks for the replies. It certainly sounds like the Diflucan is having some effect on the Lyme and not just on the yeast. Seems promising anyway.
Posts: 57 | From CT | Registered: Jan 2005
| IP: Logged |
quote:Originally posted by Jellybelly: What was interesting is that when I herx, whether it be ABX or Diflucan, I end up with serious pain in my ankles and feet, accompanied by being fevreish to the touch and swollen.
------------------------------------------- Having yeast overgrowth in my feet isn't something I think I've ever heard of.
Maybe not, but when I have yeast overgrowth, my knees tend to hurt. My knees will be fine....then I eat sugar or something "bad" and bam, sore knees.
"Systemic" is the key word here.
-------------------------
Corgilla....you wouldn't need to take penicillin with it....but I understand. Hopefully, you can do this protocol later.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic