posted
Howdy- My first time here. This has all been very helpful for me. I am glad to know I am not alone in my trials. I was diagnosed Lyme and Bartonella in May. I have been on Rifampin and Minocycline since then with some improvement. I have neurologic involvement affecting my speech and gait, among other things. I was seeing a LLMD in NY, but need help with IV therapy. He says I need it, but I can't find anyone to help me at home (North Carolina). I have an allergy to Rocephin, so that is not an option. All of the docs around here are shying away from using Primaxin or Merrem, which I understand are often used instead of Rocephin. I am on a wait-list to see Dr. J (NC), but who knows when that will work out. My questions are:
1. How do those of you who live far away from your LLMD work out the logistics of IV therapy? 2. Does anyone have experience with drug desensitization? This has been proposed as an option.
thanks, kristen
Posts: 24 | From Oxford, NC | Registered: Oct 2005
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posted
Most locations have a list of helpers under Home Health Care in the yellow pages.
tj
-------------------- tj Posts: 296 | From Portland, OR | Registered: Jun 2003
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
KSparks--
I only have an answer for your first question. I live in Nashville and my LLMD is in Missouri. I used IV Rocephin (which I know you can't use). My insurance company would not cover home health visits. Therefore, I called different hospitals to get recommendations for IV infusion therapy clinics. I could get the IV treatment covered by my insurance company as long as I would visit them once a week to have the PICC line cleaned. It was really simple once I found this clinic. Good luck to you. Sorry I don't have an answer for your second question.
Posts: 1155 | From Southeast | Registered: Oct 2005
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