posted
I am getting so tired of posting about weird/bad things happening....
Today I looed in the mirror and it looked like my right upper eyelid is drooping slightly. I confirmed this with my fiance as I thought I was going crazy.... When I looked to see what this could be the only thing I could find is Ptosis...
I did a search on here but I could not find much about it, have many of you experienced this? Is it permanent? Could a herx do this, I have been on abx for a week and a half now...
Thanks for any info you can provide, I am trying to see how common this is in lyme since I dont have a definitive diagnosis right now, just a really strong clinical one... When reading the medical documents on this condition they mention eye tumors causing this, which is damn scary cause I have optic neuritis in this eye..... I has a CT scan and it looked clear, I assume something like that would have showed up right? I have a MRI next week......
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
| IP: Logged |
posted
Bob, I've had what sounds similar to what you describe since long before Lyme dx and treatment.
Haven't looked up the name you gave, but I always attributed mine to (1) consequence of encepholapathy and pressure within the skull and/or (2) edema in the eyelid not allowing it to fully retract.
Since being on abx's this symptom seems to show up especially with neuro herx.
I have a lot of vision/focus fluctuations which could indicate some motor neuron involvement also.
FWIW
Posts: 20 | From DFW,TX, USA | Registered: May 2005
| IP: Logged |
posted
Could also be Bell's Palsy - I got Bell's Palsy right before I was diagnosed with Lyme.
Posts: 416 | From Southeastern PA | Registered: Sep 2003
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Bob. I so hate the stress you're having. I know you will be one relieved dude to see that western blot come back!
Drooping eyelid is a symptom of Lyme.
Here's a little link to an exhaustive list of Lyme symptoms. Ptosis is in there too, with a citation.
It could also be part of a herx.
Expect all manner of weird stuff to pop up when herxing -- it really can get worse before getting better, but just hang on and have faith!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/