Topic: find out if you have a Arachnoid cyst on Pineal gland
livinlyme
Frequent Contributor (1K+ posts)
Member # 3773
posted
http://www.medhelp.org/forums/neuro/archive/11229.html I found out by accident when my neurosurgeon had a complete MRI of my brain cervical thorax and lumber spine done for my herniated discs and I most likely had it since birth. I suffered chronic headaches since my teens... see if there is a tie in here to the headaches most Lymies suffer...and seizures between age 13-21... Neuro said it is probably nothing, that it was probably there since birth...
can this be a cyst form or a nest of lyme or whatever you might call it...or some form of metamorphisis going on in the body.. like eggs, larvae, pupae, and callows?
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I've often wondered if the arachnid cyst had to do with lyme. My 10 year old has a positive ANA, speckled, was on orals for about 3 years, is currently off treatment, but sees different color flashes, spots, every day. Went to opthomologist - said he has mild iritis - nothing to cause the flashes...Going to neurologist Wednesday. I wonder if the cyst has anything to do with the colors, shapes, ana...Don't know much about arachnid cysts except every doc told me it's common in boys and does no harm. I wish I had an answer for you.
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
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livinlyme
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posted
Thanks Cigi, I dont know either I was jsut wondering if anyone else was familar with this term or had mention of it..I am not male so I'm not sure it is not just common in everyone not just males.. Linda
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posted
Livinlyme...can't say I have heard about the cyst you mentioned, but wanted to address cigi's concern about her 10 year old. cigi.... The eye symptoms your ten year old is having are exactly the same as my grandson described before he was diagnosed and treated for lyme disease. He was seen by a neurologist who ruled out a brain tumor; and by several opthamologists who were afraid he might have a torn retina. All these tests showed NOTHING! One doctor suggested he might be looking for attention.
It was then that I suggested he be tested for lyme by my llmd. Sure enough....he had an active case. With treatment the vision problems ceased within a few months.
Could he be having a relapse? Do you see any other signs? It took six years of treatment for my grandson to get well. Keep lyme in mind just in case, while they rule out other things.
Best of luck....nan
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cantgiveupyet
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posted
I also had a 8mm pineal cyst found in Sept during a catscan at one of my many ER visits. they said it could not be causing my symptoms. Dizziness...light sensitivity...wierd feeling througout my body like everything was moving. I was really suprised to see this listed on this site. Since the doctors have said not to worry...i have put this out of my mind for now...but i wonder if this is somehow related to lyme in someway.
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pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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livinlyme
Frequent Contributor (1K+ posts)
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cantgiveupyet, I am not sure many people would be familar with this since it is only found if a neurologist would find cause to rule out by running a brain scan... not many do this as a standard proceedure.. mine just happened to run them as a standard procedure...complete spinal MRI... brain, cervical thorax and lumbar... That is why i thought I would mention it .. if anyone has chronic headaches ask if your MD or LLMD would be willing to run a brain scan..I wonder how many people really have these benign cysts that absolutely have nothing to do with symptoms.. ??????? yet the origin is "UNKNOWN" sounds like another Lyme symptom to me... unknown... blah blah blah
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posted
I wanted to add my 2 cents here since I have not seen the term arachnoid cyst come up here yet. I'm new to this still (3-4 months since being treated empirically for lyme with doxy).
Since I've been sick for years, I had two separate MRI's of the head when they were mostly looking for sinus stuff. Each time they came back with the arachnoic cyst thing but all MD's, (ENT, neuro, FP) all said is was nothing.
Had a lot of visual problems, light sensitivity, flashing, blurring, etc. and always wondered if they were just blowing me off and really didn't know anything about this arachnoic cyst thing. Antibiotics are improving visual symptoms.
Are they all located in the same space? Is the arachnoid area descriptive of a certain place in the head/brain? Where is the pineal gland?
I don't have any info to add but will ask my LLMD when I see him next. Thanks for bringing it up. Posts: 460 | From Illinois | Registered: Aug 2005
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