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My daughter has had several picc lines. The last time, she had problems with clotting. Genetic testing found a deficiency related to this. Given this, her doctor again ordered a picc line. They couldn't even get it in because of clots! They suggested a medi port; but we aren't doing anything else until we see a hemotologist. Have any of you had similar problem? And what experiences have you had with medi ports? This is getting scary!
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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Is that the same as hypercoagulation? I don't know much of anything about this except I have seen numerous references to people with Lyme having hypercoagulation.
A.
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The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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My daughter went through at least 7 picc lines because of clotting. She now has a por-a-cath in her chest. Had a minor problem with that until the surgeon extended the line further into her heart.
She takes a baby asprin every day now (not while on the picc lines) and uses 2 saline flushes and 2 heparin flushes after every dose of antibiotic. She has not had a problem in a long time ( 1 1/2 years).
If you are using the picc line for blood draws that supposedly can cause a problem. We were told to flush with four saline and two heparin after a blood draw.
Hope this helps!
Laura
Posts: 132 | From Kentucky | Registered: Dec 2004
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Inflammation {LYME} can cause hypercoagulation. You can go to www.hemex.com for more information on this. Lots of Lymies have it and don't know it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
You must also be careful of too much heparin..Our daughter went thru a period of having the opposite problem from the heparin..She would have had a problem clotting if she had been injured..
This was from too many heparins for the picc..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004
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I had a problem with hypercoagulation. A blood test can pick up high, out-of-range fibrinogen levels. Fibrinogin is part of the clotting mechanism, and is affected by chronic inflammation. When my cardiologist heard that I had Lyme, he was not at all surprised at the high fibrinogen level. Also, fibrinogen is now being looked at as a possible predictor for cardiac problems. My doctor had a pharmacy that could make heparin lozanges, which made it easy to take. We continued to monitor the fibrinogen levels and I am not now taking it. We were trying to figure out if the fibrinogen levels shifted with flare-ups, but I moved and am inbetween doctors now, so never had the chance to really study it. Hope & healing to all....Justice
Posts: 3 | From pennsylvania | Registered: Sep 2005
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