posted
I have just received my WB results from Igenex, and I am positive for Lyme! I haven't been tested yet for coinfections, but I'm sure I have Bart and probably Babs as well.
So far I have not found any Kaiser doctor who knows anything about Lyme disease (or coinfections),or is willing to treat it appropriately (i.e. more than a month of doxy).
I was wondering if anyone in CA who is a Kaiser member has succeeded in finding a doctor willing to treat with IV Rocephin, Mepron/Zith for Babesia, etc?
If so, would you please let me know his/her name and number?
I live in Los Angeles, but would travel if necessary.
I am seeing a LLMD now (Dr. H, thanks again everyone who recommended him!) but I need coverage of the meds he will prescribe as they are beyond my means other wise.
Thank you in advance for your help!
Posts: 39 | From california | Registered: May 2005
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minoucat
Frequent Contributor (1K+ posts)
Member # 5175
Yes, I have seen that website, which is why, after many battles with kaiser Ducks (unfortunately, that's an insult to ducks!)in which I insisted that Lyme is a CLINICAL diagnosis, and that the negative Elisa and WB they ran were meaningless, I went to an LLMD and was tested through Igenex.
When the results came back positive for current active infection, they sent them to the CDC, where they retested at their own lab. Again, it was positive by their standards.
I was hoping that with this strong evidence, and the bit of encouragement provided by this statement from the site you linked:
"If you are independently diagnosed with Lyme Disease, Kaiser MAY provide medical treatment, but only if you go outside of Kaiser and spend the money for the testing"
that perhaps I could get treated.
I also remember someone saying on one of the threads here that they had heard that there were a few Kaiser doctors in San Franciso that were treating Lyme patients, so I was hoping someone could give me their names.
Probably futile, but I thought I'd give it a try!
Posts: 39 | From california | Registered: May 2005
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posted
Over a year later, I am convinced that KP is a collection of med school flunkies. bufoons, one and all.
After having 40+ years of solid health, I went to my KP GP dx. I had a list of terrible symptoms (see my other posts) which I laid on him. The first thing out of his mouth was, "Do you have stress?". I answered "Yes. My health has failed me. With four mouths to feed on one self-employed income, I think that qualifies as a stressful event." He respoonded, "There's only one thing that causes all those symptoms. It's stress." I was Lyme illiterate at the time. But I new with every fiber of my being that he was wrong.
Five ducks and two of their fuchtarded ELISA tests later, I use the KP ducks to (seperately) treat my various symptoms. Perhaps one day soon they may come to the conclusion that there's something "else" wrong....but I'm not holding my breath.
My experience with them has been almost identical to the website linked above, which I have seen before.
If you find a methodology which compells them to treat you for lyme, please share it, as there are many on this board who could use some quality care from their Health Care "Providers".
Posts: 294 | From nevada | Registered: Sep 2005
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I don't believe that Kaisers doctors are actually incompetent; I believe that the pattern of incompetence they and staff display is intentional and they know exactly what they are doing: avoiding providing medical care.
Here are some more links with information about Kaiser.
I just found out from my LLMD that I have kidney disease when I showed him copies of my most recent blood tests.
I had similar results last year. Not one of my Kaiser doctors told me about it. Even when I explicitly asked my gynecologist what it meant when it said I had moderate kidney impairment, he told me I was just dehydrated.
That was a lie, it is kidney disease.
I'm going to be quitting Kaiser as soon as I can. I'm even considering moving to the Republic of Ireland for their excellent free medical care.
Posts: 39 | From california | Registered: May 2005
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