posted
I just got a call from my doctor, the igenex tests are in. One western blot was clean the other had the following bands... I forgot which blot it was after I hung up with the doctor and he is out of the office now...
34 ind. 41+ 58+
PCR - Babesia FISH -
I am not sure what this means for me now, I was hoping for a + to know I am persuing the right thing....
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
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Linda LD
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posted
Bob,
this is not my forta but I know 41 is synificant.
L
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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bettyg
Unregistered
posted
Hi Bob, Call your drs. office back and ask that his nurse send you a copy of both western blot igm/igg results or FAX to you if you have one.
Explain to her, dr. called but you couldn't write that fast & comprehend too.
Then go to TREEPATROL'S NEWBIE LINKS found on the top page of medical, and read all about the igm/igg results.
From the 2+ I saw, you won't be counted on CDC's official lyme patients either.
Then read 9-05 NEW lyme guidelines by Dr. Barrascano; I think Treepatrol updated his list with the new link out just 1-2 weeks ago. If not, look for the post in this medical section going from ONE SCREEN TO ANOTHER page at bottom. Good luck.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
34ind:=kDa OspB [specific for Bb]yours said ind that means they at least saw something on that band but not strong enough for possitive.
41+:=kDa flagellin B a lot of bacteria have flagellin its used to move them around. Also part of spirochetes.
58+:=Heat shock protein.Bacteria use this to survive fevers.
Having a 34 even ind means they deffinatly saw something on that band I would deffinatly get treted and.
Were you on abx's during any of these tests?
If not get a LLMD and retest with a luat and WB do the luat first it takes a week its a 3 day urine test during this test get put on high dose abx's two types say amoxicillin & doxy for 7 days. Then retest WesternBlot say at the end of the luat abx's 5th or 6th day. That way the abxs free up all your antigens that were busy clinging to the bacteria and float free into your blood and urine.
You should get better results. But you know it should always be a clinical decision too tret lyme regardless of the tests.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I thought I read on here that the LUAT had been phased out for whatever reason, I don't remember what it was. I was not on antibiotics at the time, however I am on them now and have been for a little over two weeks (ceftin/doxy)...
Who does the LUAT? I did not see it as an option on the Igenex order form.
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
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Read what it says about the "IND", or "equivocal" as it used to be called.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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treepatrol
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posted
quote:Originally posted by bob_ffxi: Treepatrol,
I thought I read on here that the LUAT had been phased out for whatever reason, I don't remember what it was. I was not on antibiotics at the time, however I am on them now and have been for a little over two weeks (ceftin/doxy)...
Who does the LUAT? I did not see it as an option on the Igenex order form.
-Bob
Igenex did mine yeah your right some have phased it out but dosent mean if done right it dosent work.
Abx the same week as the 3day urine test high dose's. When they did mine it showed tons of antigens.
Since your on abx's right now your freeing up antigens but remember a early infection wont show as many antigens your body hasnt built them yet and a really old infection your body has allready elimanted a lot of them because spirochetes change the longer there in you the more they learn to hide from the immune system so then no or lower antigen count.
I might have been calling it the wrong name heres what I meant.Below
What is the Lyme DOT-BLOT Assay for Antigen The LDA is an immunoassay for the direct detection of Lyme antigen in urine that reacts specifically to rabbit anti-B. burgdorferi antibodies. The rabbit antibodies are specifically targeted to the following B. burgdorferi antigens: 23kDA-25kDA (Osp C), 31 kDA (Osp A), 34 kDA (Osp B), 39kDA and/or 93kDA. If the Borrelia specific antigen(s) are present in the urine sample, a dot with a bluish-purple precipitate forms on the membrane.
The limit of detection in urine spiked with sonicated B. burgdorferi is 12.5 ng/ml of urine. In an in-house study performed on the ``general population'' (the age group was 3 years to 70 years) with no symptoms of Lyme, the assay specificity was greater than 96%. How Does the LDA Work?
Urine is collected in a Becton Dickinson's (BD) Vacutainer Brand Urine Collection kit and then sent to IGeneX. Urine can be stored in the refrigerator in the tube containing lyophilized maintenance formula (provided in the tube), and is stable for 7 days. The urine is processed following the IGeneX, Inc. proprietary sample processing protocol. The antigens present in the processed urine are immobilized onto a membrane in a DOT-BLOT format. The membrane is incubated with anti-B. burgdorferi specific antibodies. After washing the unbound antibodies, the bound anti-B. burgdorferi specific antibodies are reacted with horseradish peroxidase (HRP) conjugated anti-rabbit IgG. The membrane is washed to remove unbound conjugated antibody. Finally, the membrane is reacted with a precipitating color developing solution, which deposits a bluish-purple precipitate on dots that have antigens reacting to anti-B. burgdorferi specific antibodies: 23-25kDa (OspC), 31kDa (OspA), 34kDa (OspB), 39kDa and/or 93kDa.
Interpretation of the LDA
A positive result indicates that the urine reacted against rabbit anti-B. burgdorferi antibodies with specificity to the following B. burgdorferi antigens: 23-25kDa (OspC), 31kDa (OspA), 34kDa (OspB), 39kDa and/or 93kDa. Any positive sample is considered presumptive positive until confirmed by another method. We recommend the new Reverse Western Blot (RWB) and/or the Urine Multiplex PCR. A negative result indicates no reaction with the above listed antibodies.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
Gettng a + PCR is like winning the lyme lottery---it is VERY rare- with only one test--like being hit by lightening....
although they do lots of damage, there are not very many OF these spirochetes in your BLOOD so it is hard to get a sample that includes one spiro and then they have to make sure it is shipped right and tested properly and hence the lottery.
Dont despair--get the copies as betty said and look up the info that Tree has so diligently put together for us on the newbie links, and get treated for at least SOME time. Until YOU and your Doc can decide if this is what you need.
Often people can tell by how they feel while on ABX.
Lyme diagnosis is not through blood testing! It is clinical.
But I know this can be blow to your self awareness/understanding. I am sorry. Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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posted
Another important thing to keep in mind....many WB's look negative or equivocal before treatment starts. Mine was.
Two years after being treated with abx I had another WB done....it was positive using the CDC surveillance standards! +++'s all over the place!
Another reason why the diagnosis should be a clinical one!
-------------------- nan Posts: 2135 | From Tick Country | Registered: Oct 2000
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david1097
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posted
The results don't indicate that the symtoms are caused by lyme. 41 is present in most of the popluation as it is related the flagelin (the whip like thing) that are on many bacteris. 58 is not entirely understood as to the cause and is not regarded as an indicator for lyme if it appears alone due to cross reaction with other yet to be determined causes.
You are back at square one in this and you likley have to go with a clinical diagnosis of something (not necessarily lyme). I suppose you are lucky in that it might not be lyme. On the other hand if you have symtoms of some disease process it can be pretty hard to figure out what it is and this can be very frustrating at best.
As a final note if you have really bad symptoms, you might be late stage, which in many cases show very little on the WB's (but I don't think that show almost nothing like yours do!).
Bottom line is that with those results, lyme moves way down in probability, however there are lots of other nasty things that are as bad as lyme(and some worse), you will have to keep a very good record of symtoms to help the Dr figure out what is going on.
good luck.
Posts: 1184 | From north america | Registered: Feb 2003
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Yeah, really lucky when the clinical diagnosis defaults to Possible Multiple Sclerosis instead of any other possibility. Easy way to throw in the towel and not find the real reason and then everyone else will just attibute everything to that diagnosis... Even thogh so many symptoms do not fit...
So you think an equivocal band for a borrelia specific antibody is meaningless? I thought some people with lyme dont generate any antibodies ever. A lot of people here abviously think an equivical band means something. Can you explain why you dont think so, just curious to hear both sides here.
I see it this way:
A. I have had lyme or "mystery illness" for at least 8 years which would fit with some of the long time symptoms of periods of extreme fatigue and depression. Floaters in vision, cronic sore throat, insomnia... I never persued them as anything with a serious cause, but I did know they probably werent normal. Just tell doctors about them and they give antidepressants, sleeping pills, tell you you are lazy and you have allergies....
B: I have had lyme or "mystery illness" for 3 months, when serious symptoms started that alerted me something was wrong.... sudden blindness in one eye, constant fever, arthritic pain, muscle pain, tingling, fasciculations, etc....
C: I have MS, of which the only symptom I have that's attibutable to MS would be optic neuritis and all the other things are just a coincidence even though they started at the same exact time. and all flare up at the same time. The MS also by sheer coincidence seems to on some part respond to antibiotics... (no fever, arthritic pain, muscle pain, reduced fasciculations, etc since starting doxy/ceftin). Seriously my Nero attibutes all this "other stuff" to be a simple coincidence, lol
Obviously scenario A-B would have different antibody profiles. If it was A I might not be making them anymore and if it was B maybe it is too soon for them to be showing up.
This is a blow for me because I need something to get my vision back, and an IV was what I was hoping could penetrate the BBB faster and better than the orals.... This makes it hard to get the insurance company to approve them...
Steroids could probably bring back the vision pretty quicly but since this seems infectious I can't....
It just all seemed to fit with Lyme and nothing else I have seen/researched does.
Obviously I am slightly biased because I don't want MS, but I am not in denial, I am logically taking into account that there is something more going on here than fits with that diagnosis...
I just don't what else I can explore that shares all of these symptoms? Syphilis?
I am going to seek lyme treatment, it is just scary not to now if that is indeed the right thing. Especially where it seems from my experiences thus far that any other possibilites will have to be explored by my own research since the MD's are not thinking of anything else.
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
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trails
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Bob, whatever you do----DO NOT TAKE STEROIDS!
I know you know this, but I you can EASILY be convinved otherwise by a doctor and there are folks like me a YEAR after one shot still trying to get back to where I was BEFORE that one shot.
I don't know the answer for you. I do think you should continue to pursue ALL possible diagnoses, but perhaps begin treatment with antibiotics so as to not waste time if it IS infectious and is lyme or syph.
Trails Posts: 1950 | From New Mexico | Registered: Sep 2001
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Andie333
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posted
Bob, I tested CDC positive for Lyme, but your symptoms sound very similar to mine -- arthritic conditions, blurry vision, exhaustion, floaters...
I think there's some controversy about steroids among folks on the Lyme board, but for me, they were a HUGE mistake. Before I even considered Lyme, a highly regarded sports doc on this area (for a pro football team) drained my knee twice and shot it full of cortisone.
Both times, the pain, swelling and degeneration got markedly worse within a week or so.
It's not something I would do again now, unless I had little or no choice.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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SForsgren
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posted
I think steroids are more often a mistake than otherwise.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Bob, I agree with nan that your test may show positive after some amount of treatment. For me, my test was almost CDC positive after several WEEKS of abx.
I think "IND" is the same as a "+" .... SOMETHING has caused the band to show up. What else could it be besides Lyme?
When our bodies have been broken by years of untreated lyme, the tests come out skewed.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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lpkayak
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posted
its been awhile since i have been into testing...i stopped wasting my money after my 1st pos pcr. but i think i remember if you have band 41 and you never took the vaccine then you have to have it. am i remembering this right. it was so stupid. they used that band to make the vaccine but then cdc decided it wasn't important. don't take this as fact. i'm pretty foggy-but maybe someone else will remember this too.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Oh I know about not taking steroids... I was just hoping for some sort of test result that would justify me not taking them all this time when they could restore my vision... but I guess getting what you want is a rare thing with lyme....
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
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david1097
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Hi again
You had asked the question so I gave the response to the best of my ability, I detect a bit of hostility (or maybe futility) in your opening sentences.... so let me clarify on you questions:
----- Yeah, really lucky when the clinical diagnosis defaults ..... ----- I am not suggesting anyone jump to a default diagnosis. I have been there and done that. It is unacceptable to get a diagnosis which is classified as "ATYPICAL what ever". This is just plain wrong and unacceptable by any definition. MS has very specifuc markers that are present in >99% of the patients. If you do not have 2 of the 3 markers you should not have MS on the differential PERIOD. A single diagnositc MRI alone is NOT good enough even for possible, let alone probable or confirmed MS diagnosis. Some arogant or self illusionary Dr's may hand out an MS diagnosis by default, which is wrong. Once labled with that you are on a dead end road of sytompatic treatment.
So you think an equivocal band for a borrelia specific antibody is meaningless?....
Absolutely I do, I have seen it, my Doctors have seen and in the absense of certain hsitoriv symptoms is consitently considered as a extrnaious result. As You (and I) have mention, in late stages the antibodies are often not readily detectable, but as far as I know, there is some indication of multiple low level lyme related bands. I have not seen a lot of late stage WB's but the one I have seen which where CDC negative all had multiple bands at either low or equivical levels. The appearance of a single band which is not fully documented or proven to be lyme related I would think would be highy questionable. The heat shock and fusion bands are not fully understood and there may be cross reactions with other disease antibodies. 41 is a very common band that can be caused by exposure to any number of bacteria. The Igg will persist with 41 even after the pathogen has been eliminated (as far a I know)
I see it this way:
A. I have had lyme or "mystery illness" for at least 8 years ..........
Fully understood, I to had just ignored these types of symtoms until they degenerated into major progressive neurological problems, suspected MS but it did not fit (at least with knoledgable MS Dr's). In explining the WB intepretation in my first post I was trying to say is that based ont he WB is not sugestive of Lyme and you should look at other possible causes. Note that I say CAUSE, MS is a syndrome, the casue is unknow so anyone who atributes any symtms to MS does not understand what MS is. MS IS caused by something and what that something is is unknown and may have other markers or presentations that unless properly recorded and presented to a knwoledgable Dr may be overlooked in which case the patient may default to MS (because there are no other symptoms.)
If you respond to antibiotics this si a strong indicator that some other type of infection is present. I donl;t by this "anti inflamatory affect of antbiotics" at all.
There are lots of possible infections to name a few Brucellosis, Chagas, Undulant fever (bartonella), leptospira, any number of protozoan infections etc, etc. The probabilty that you have these has to be gauged by a good, open minded clinician. The probaility all depdens on your travel and history and exposure risk. As far as the slow systematic infections (some mentiomned above) go, all ofthese are clinical diagnoses due to the bad tests. Some of these diseases respond to some antibiotics but many need other types of drugs or anitbiotic combinations.
B: I have had lyme or "mystery illness" for 3 months.....
Also understood. I also have severe neurological involvement. Optical neuritis is a tip off for nerolgists to suspect MS. There is ALSO SPECIFIC BACTERIAL INFECTIONS THAT I SEEM TO RECALL, PRESENTS WITH OPTICAL NEURITIS, I will see if I can look at my texts to see if I can remember wat that is. For me, I was confirmed as having Lyme but as it turns out I also had several other infections, both baterial and parasitic. it turn out (at least for me) that the lyme was not the major cause of the neurological problems.
If you had long term symtoms and they just took a turn for the worse, this is apprently typical o systemtic disease of some sort. From my sdisucsions with Dr's who deal with "problem patients" that nobody can fgure out, it appears than many cruise along, asymtomatic of semi-asymtomatic and then just crash. The crash may be triggered by stress, vacination , injury or some ther stressor that is place on the body. many of these patients are never diagnosed with a specific disease but are helped by reducing the stressors that consume part of the reserve of the bodies anitbody system.
Then there is the whole story of viruses. VERY difficult to deal with and treat, particulalry those that the vertinarian communuty have called "slow viruses", which many of the vets feel is the cause of mad cow disease. (sheep have fro amny many years had a similar disease, which is apprently transmissible between simply by close contact...)
C: I have MS, of which the only symptom I have that's attibutable to MS would be optic neuritis and all the other things are just a coincidence even though they started at the same exact time. and all flare up at the same time. The MS also by sheer coincidence seems to on some part respond to antibiotics... (no fever, arthritic pain, muscle pain, reduced fasciculations, etc since starting doxy/ceftin). Seriously my Nero attibutes all this "other stuff" to be a simple coincidence, lol
The pattern of response to antibiotics IS VERY VERY VERY IMPORTANT. the dosage, the time to response and the persitence of response AFTER stopping the antibiotics provide very important clues to the disease cuase. As far as i know, antibiotics has never helped a "real" patient.
As I said, the ABX seem to help but do not be fixated on lyme as the only cause. There are other infections that can look EXACTLY like lyme and respond to anitbiotics. Similalry there are likely viruses that can look like lyme but do not respond to anti biotics. Maybe a virus s the cause of MS. In any case if you reposnd to antibiotics you are one of the luck ones (like me).
It is very important to record when the symtom flare ups occur if they occur on a regular interval, this si highly indicative of particuar infections. Baronella and brcellosis come to mind ut I am oretty sure there are others. While these two respond to antibiotics the treatment protocol is different than for Lyme. For example, with neuro brucellis, treatment requires taking 3 antibiotics at once. Interestingly brucellis can also affects the joints like Lyme.
Obviously scenario A-B would have different antibody profiles. If it was A I might not be making them anymore and if it was B maybe it is too soon for them to be showing up.....
There is a ood paper written by nick harris at Igenex that explains the Igx profiles as a function of time. If I recall correctly the Igg for lyme shows up before the Igm decays, lyme is very tricky in thsi regard because the Igm and Igg half lifes and persistence do not follow the accepted trends. the easy what to remember what they are
IgM, is what you get when you are sick in the MORNING (ie early response) IgG is what you take to the GRAVE.(ie persistent late response)
Then there is all othe other Ig' but I dont remember the phases for those.
This is a blow for me because... I understand your dispair and I have to be so blunt in wht I write but you have to continue searching for the cause, or at least fond a Dr's who will. In terms of insurance coverage, insurance companies provide coverage to maintain a certain quality of life. In this regard if it can be proven that antobiotics help with the symptoms then you have a very good argument. This argument has to be backed up of recorded fact as seen by Dr's. ie the ON goes away with antobiotics AND COMES BACK ONCE THEY ARE STOPPED, is highly suggestive of a persistent infection. In this regard if you had alyme diagnosis you (sadly ) would liley have LESS of a chance of the insurance company approving more anitbiotic treatment (due to the disagreement about treatment). If you had some other "possible" diagnosis of some type of infection, there is far less controversy about lng term treatment and for quality of life arguments alone youe would be in a much stronger position to defend the need.
Steroids could probably bring back the vision pretty quicly but since this seems infectious I can't....
ou an take steriods. In fact this is how I figured out what I had. I was diagnosed with a degenerative brain disorder (ie parkinsons plus, which really means nothing execpt your brain is being chewed up by something) There was considerable depate as to an auto immunue diease or an infectious one. The solution.... take sterids and see what happend. The steriods helped to start with but soon te effect wore off and after stopping I was was worse than when I started. At that point infection was most likely. I have seen some people that keep having to up the dose of steriods to keep the symptoms at bay, this becasue someone told them they had an autoimmuune disease. Well guess what, it turns out that they where infectious in nature.. Also steriod are sometines given WITH antibiotics to minimize the inflamitory effect of the pryrogenic nature of the lysed bacterial fragments...example... menegitis can be made wirse with antibiotic treatment, and steroid s are given co-commitently.
It just all seemed to fit with Lyme and nothing else I have seen/researched does....
You have to dig deeper. There ae losts of other diseases that can mimic lyme. patuient oreitned resources typically given little or no information on these, mainly becasue they are so "rare", which is a self fulfilling prophecy since it will remain rare until people start to diagnose it, but people will not diagnosis it becasue it is considered rare and nobody knows about it....
Obviously I am slightly biased because I don't ....
Agree'd. There is something wrong. You have to keep trying to figure out what. If it is any consulation, Lyme is a *bas tar d* of a disease to get rid of, not having it may be a very good thing.
I just don't what else I can explore that shares all of these symptoms? Syphilis?...............
This would present with specific lesions and woudl typically resutl in sever herxheimer with IV antibiotics. It would start very quickly. The response of Lyme is delayed by a few days for some unknown reason. I will try to compile a list of other diseases that can casue neuroligical problems for you, but I too an sick so i cannot guarantee as response time.
I am going to seek lyme treatment, it is just ....
Most Lyme Experienced Dr's are good. Lyme is increasig being seen as a complex of diseases. Lyme is like gasolene on a smoldering fire. without the smoulder of a low level, asymtomatic disease or co-infection there is no raging fire, similalry gas by its self does not burn until ignited by something (but might eventually blow up). But you mix the two together and bam... Lyme and babesia is one of these bad combo's ( I now this from personel experience).
Since Lyme is seem as a combination disease, the Lyme clinicians can spot specific items of other types of infections. I WOULD STRIONGLY SUGGEST YOU SEE ONE OF THESE DR's OVER OTHER TYPES OF DR's as they have likely seen all sorts of other "co-infections" and since lme affects all parts of the body, they are very good at the other things that may affect those parts.
Sorry for the long response but I wanted to give some direction on this. I appologize if I may at times seem a bit terse in what I say or how i say it but you sound like you are really sick and in search of an answer. i know what it is like, I have been there and to a certian degree I still am. It is difficult for both me and my family but I have to kepp pushing on as do you. I really take issue with some people on this site that put blinders on to any other diases besides lyme. Lyme is NOT the only disease out there and to support the idea of lyme even with low probability results is a dis service to the new comer that is sick.
Finally, as noted, antibiotics are typucally broad specturm with the result that even if it is taken for suspected Lyme, it may get rid of other pathogens (at least on a temporary basis). The ones used fo Lyme ay not be optimal for ither disease, but given in the high doses may be just as effective. In eaither case it may halt the disease process.
Also remember that there are some anitbiotics that do penetrate th brain quite well, rifampin and flagyl (notan ant-biotic by any known mechanism). to name two, I am sure there are others also. IV is not the only option, althiugh it is the most efficient meansof delivery.
You can email me at [email protected] if you wish to discuss further. If not, good luck and I hope what I have written helps.
My Iv drip is done now so i will sign off. i am quite sure that there are many many typos in what i have written but I hope that it is readable.
Posts: 1184 | From north america | Registered: Feb 2003
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I apologize, the hostility was not meant towards you but due to the doctors that I have seen while trying to figure out what this is.They just arent exploring anything else, they didnt even run an infectious disease panel on me. It seems they are the ones with the blinders on.
I had to research and find a doctor just to test me for lyme because the other doctors are just not doing anything. I appreciate your response, I am looking for all views on this. I am very open minded but I am at my wits end and running out of energy, especially with my vision degraded, it makes me pretty depressed.
I am sick and doing as much research as I can, I really dont want to be responsible for finding causes for my sickness but it seems at times that I will have to figure this mystery out on my own. I would much prefer to have a doctor do the testing and diagnosing, but something seems to be broken with the thought process of the ones I have seen. Optic Neuritis does not equal a diagnosis of MS, but they all act like it does.. And since I can't drive at the moment it is hard to go from doctor to doctor trying to find the right one. I know I am not a doctor but I do know when something is wrong, I have researched MS in depth, and talked to people with MS, they just do not have a presentation of symptoms like this, although many are very familiar with ON. That's because 60% of MS patients will get ON at some point, but that statistic doesnt mean 60% of all ON patients have MS.
I am not ruling anything out, I have looked at the publicly available information on tons of conditions, when I bring these up to the neuro (who is the one in charge of everything since the neuritis started) he poo poos them and treats me like i'm a fool. I need to dump this guy asap, I am seeing an infectious disease doctor in two weeks... I know many here hate ID doctors, but I dont know where else to go. At least he will test me for some things and will listen to -all- of my symptoms.
The neurologist even had the nerve to tell me that viruses don't cause optic neuritis, and borellia does not effect the optic nerve only facial nerves.... It doesnt take someone with much medical knowledge to know that the statement is absolutely wrong....
I really want to get better, I would like an accurate diagnosis of whatever this is. I guess I am just losing faith in the diagnostic ability of doctors...
What kind of doctor should I see next, and who would be appropriate to diagnose this stuff..
Anyway thanks for taking the time to respond!
-Bob
Posts: 67 | From New Hampshire | Registered: Sep 2005
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
I just sent a private message.
In general Lyme Dr's are a very good resource even if you DON'T have lyme. This is because lyme affects so many body systems and can imitate so many other diseases they have to be able to figure out what is what. Do go see one if you can.
As far as ON goes, I think that there was a lady on lymenet that had a similar problem. I have not seen her around here for quite some time(although I am not here much) the user name was artbyjessi. You might try to private message her.
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