cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hello, me again....im starting to worry that my symptoms might be related to my herniated disc in my neck. When it was first discovered i went to 2 nuerosurgeons...at the time i didnt have frequent urination...so 2 out of 3 said it wasnt causing my symptoms. But i remember they asked about my bladder...and if i went during the nite or any inconstenance)sp) and now i have this frequent problem and im so worried...i go and then have to go again, and im not drinking that much and not taking any meds. And i usually go a lot when i do go...and my lower back is hurting on my right side and i have a twinge in my lower left side. Has anyone had this when dealing with lyme....like i said im really worried.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Ketes like the bladder, and frequent urination is a lyme symptom.
It might also be a urinary tract infection, for which cranberry is a good home remedy. Won't hurt you and doesn't require a prescription. The juice might have a lot of sugar. I get the berries, make sauce with some sweetener, not sugar. Eat a spoonful or two every day while the problem exists. If that doesn't work, it might just be the ketes.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
Sounds like my daughter, partially lyme, partially urinary tract infection (kidney also) for her. Actually, the kidney problems were a red herring for her for years; probably slowed down the diagnosis of lyme.
Make sure you get a urine culture (the dips don't always show infectin. If your doctor strongly suspects a kidney infection, you will probably have to stop antibiotics at least a week to get an accurate culture. At least we had to for my daughter.
Interestingly enough, once the lyme was under control, the urinary/kidney infections stopped also.
I have intermittent problems with urinary frequency depending on what antibiotic I'm taking. I'm on bactrim now and don't have any urinary problems.
Laura
Posts: 132 | From Kentucky | Registered: Dec 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
what is a urine culture??? My parents dr tested me the other nite, but i think he used one of those litmus tests :-/ and about a mounth ago i was tested at my dr, but i dont know what he did but he had the results in 5 min. thanks for your help.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I have the same problem most of the time. A few years ago, posters here came up with license plates for Lymies and my favorite was IPALOT!
Posts: 731 | From NH | Registered: Jan 2002
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posted
I don't know if this will help any but I recently had a cervical spine fusion for a bad disc in my neck and yes I did have frequency. I had a cervical myelopathy which means the disc is pushing on the spinal cord. I also had trouble walking. If the disc is bad enough to cause frequency it usually affects the legs too.
I'm not a doctor but that is how it affected me.
Patti
Posts: 340 | From Ohio | Registered: Oct 2005
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posted
I don't know if this will help any but I recently had a cervical spine fusion for a bad disc in my neck and yes I did have frequency. I had a cervical myelopathy which means the disc is pushing on the spinal cord. I also had trouble walking. If the disc is bad enough to cause frequency it usually affects the legs too.
I'm not a doctor but that is how it affected me.
Patti
Posts: 340 | From Ohio | Registered: Oct 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks Patti...i sent you a private mesg as well.
i just wish i knew if it was my neck...there is just so much that i was doing during the time i my first symptoms occured. I fell down my steps and landed on my back and 3 days later my symptoms started...a wierd feeling that everything inside me was moving....one dr wanted to do the surgery but 2 others said no.. what were the symptoms in you legs. if you want you can email me. thanks
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I also had this issue. My neurologist said it was directly related to CNS involvement from the Lyme.
I used Detrol for a few months. It sure helped with getting a better night sleep. I have not used for a few weeks and no longer feel I need it. One small step on the road back.
Take care and peace.
Posts: 221 | From S. Florida/Massachusetts | Registered: Mar 2005
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posted
My frequency became a lot worse when I got Morgellons. It seems to be a complication of Lyme and Candida. I'm up 2-3 times a night if I eat sweets. Reducing sweets helps.
Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO. Posts: 281 | From CT | Registered: Oct 2005
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posted
I had to get up to pee so many times a night for as long as I can remember. After starting adequate Lyme medication I began sleeping through the night, what a joy!
I believe I've had Lyme most of my life. I'm still on antibiotics and I don't need to get up during the night unless I've had alcohol or coffee (I rarely have either these days). hatsnscarfs
Posts: 956 | From MA | Registered: Nov 2004
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Do not over look blood sugar issues..My daughter's first symptom for juvenile diabetes was frequent urination.
Posts: 2360 | From SE PA | Registered: Mar 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Im feeling so helpless tonite...its halloween my favorite holiday...and i have yet another symptom of what i dont know. The frequent urination has stopped and is replace now with little if any...and when i do go there is a hesitation and my lower back hurts. My lower back is killing me right now....i have a heat pack on it..and some cranberry juice...i dread going to the bathroom. I tried calling a dr today..not in the office...no office hours listed (they never are)..if i cant get him tomorrow im going to the emergency room....im trying to stay strong...but its so tough....im just scared.
The quack i went to ran blood work..."its not in the blood work" was his famous line....glucose was 92....which was in range for that lab?? I asked about viatamin deficency since i dont eat meat...he said it would have showed up in the red blood cell count...he never checked for B12 or iron...its so sad.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
The frequency is getting a bit worse, but according to my llmd, the ketes do love the bladder. First it was urgency, then frequency. If you are not eating enough, that will make it worse. And you really should drink a lot of water.
Good idea to get this thoroughly checked out so you can stop worrying about it, tho.
tj
-------------------- tj Posts: 296 | From Portland, OR | Registered: Jun 2003
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks TJ...i didnt eat all that much today..becuase i felt bad and i know my liquid consumption is down because im afraid to drink...ive been craving sweets a lot lately, but think it is related to that time of the month...wich is next week and has been very painful since my symptoms started...i wonder if this UTi is just a preview. ive never had pelvic pain like this.
I will feel better once i reach my doctor and im sitting in his office. Hopefully i will be able to sleep tonite.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
It's hard for us NOT to worry a lot. It sems a lot of us have the same problems as you do. I've had bladder problems for years. I ditto the "drink lot's of water" comment. Also, it's important NOT to delay peeing. Don't put it off as the bacteria in the urine becomes increasingly concentrated. Sometimes it helps me to gently press a little on the bladder area while I'm peeing. After you think you're done, try again to get that last teaspoon of pee out. If you don't, its high concentration of bacteria gives the next bladder-full a head start on growing more bacteria. This was recommended to me by a doc when I had chronic cystitis years ago and would cry because it hurt so bad to pee. Hang in there, Susan
Posts: 23 | From Gainesville, FL | Registered: Oct 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
im hanging in my the hairs on my arms. I called my old dr today (not the quack i have been recently seeing) and guess what they actually send the urine sample out to a lab to be tested...no dip stick test :-) the dr wasnt in but the receptionist said for me to give a sample and i have an appointment tomorrow at 11. Lets just say the drive there was horrible...i will post on that on another thread.....
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
I get up every night, every two hours to urinate. It's impossible to get a decent night's sleep when it's broken up like that.
This has been going on since I started my new drug regimen in March.
Good to rule out other problems, but my bet is it's a Lyme thing.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I know the location of every bathroom in all the every stores I go into.
Lyme loves the bladder.
After 19 years I think they have set up condo's in my bladder.
Take care and blessings to you
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Sorry for my ignorance but what are Ketes? My son has suffered for years with frequent urination and also just the past few months with a definite burning. Took him to doctor many times and no UTI. I have been told it is lyme related also. I have been doing supplements to help him and it does seem to be helping. One of them was Cholrella. It seems to be what has helped the burning anyway. The frequent urination tho still continues but he is at the very beginning of lyme therapy.
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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posted
The day I got dreadfully ill with CFIDS/FM caused by lyme I urinated 22 times. I have not had a day like that in the 2.5 years since but I have had many days where I have gone up to 15 times. Frequently I go more during bad wheather. I was told in a seminar for CFIDS/FM that it is very common and is caused by blood volume.
Posts: 208 | From Greenville SC USA | Registered: May 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
well i got to the ducks office and the door was locked....they said they left a msg...but i didnt check them before i left....duck is out sick not sure when he will be back....they said to go to emergency......where i will be probed....yet another ER visit....the lower left pain is hurting a lot right now....my mom is done work at 3 and she will take me to the ER.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Ketes is a shortened slang work for spirochete....the spiral shaped bacterial, also referred to as borrelia. One type of spirochete is Borrelia Burgdorferi...the bacteria that causes lyme disease.
Other types of spirochetes can cause syphillis, leptotrosis, or periodontal disease.
Posts: 153 | From Watertown, CT USA | Registered: Feb 2004
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posted
Thanks for the info on Keytes. My son has had frequent urination for years and years and no doctor could tell me why. Does this get better as the lyme is treated? Thanks
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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quote:Originally posted by ebrischoux: Sorry for my ignorance but what are Ketes? My son has suffered for years with frequent urination and also just the past few months with a definite burning. Took him to doctor many times and no UTI. I have been told it is lyme related also. I have been doing supplements to help him and it does seem to be helping. One of them was Cholrella. It seems to be what has helped the burning anyway. The frequent urination tho still continues but he is at the very beginning of lyme therapy.
I have the exact same thing. I'm a male too. It comes and goes, NO UTI for me either. I suffer from lyme though take no medicine anymore. My symptoms just fade in and out. The urinary stuff is bothersome too. Does your son also get vertigo or feel spacy? Feel like he wants to panic/flee, get numbness / stabbing sensations / eye problems ? those are mine. My doctor doesn't believe in Lyme ( I moved to Indiana and can no longer get medicine for it ). I do believe in part that it is an inflamation problem system wide but I'm no doctor.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
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posted
"Ketes in the bladder" may be a simple answer that applies to some. But it may be ketes in the brain, or the ketes' toxins in the brain.
Get your ADH (anti-diuretic hormone) or AVP (arginine vasopressin) levels checked. If they're low, I think it means your pituitary is not secreting adequate hormones, so your kidneys don't function right. Something like that. Low ADH means thirst, dehydration, constant drinking and constant urinating. This condition can be diagnosed as Diabetes Insipidus, if you go through the testing.
Dr. S talks about this in "Mold Warriors" and explains how chronic neurotoxins affect brain hormone function, in the "biotoxin pathway."
There's a synthetic hormone that's used to treat this, DDAVP.
Posts: 204 | Registered: Jan 2005
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heiwalove
Frequent Contributor (1K+ posts)
Member # 6467
posted
this was one of my first lyme symptoms. i was also originally diagnosed with interstitial cystitis.
posted
I can't believe that the dr. wasn't there! So strange and I am really hoping that you will get a good break soon. Praying for you and let us know how it goes.
posted
Been sick so I havent been on computer much...Thanks for all the info..I will have those tests run for sure...He has had some low blood sugar tests also and does have a constant thirst but upon retesting the sugar it comes back normal, which seems to be the story of his life...I have been told that he has neurolyme for sure. He does get spacey...Will go into hysterical laughter, cry for no reason I can see, he has light sensitivity, hearing sensitivity, IBS, finger flicks in front of his eyes, hand flaps, I believe restless leg syndrome as he has a need at times to walk around our dining room for hours. Most of his symptoms have been attributed to his autism. BUT I can see alot of the symptoms of lyme are the same as symptoms of autism. I believe that he has cranial nerve palsy as most of his symptoms affect his senses. Hearing, Light, Smell, texture in foods. All of his are hyperacute. He has low upper body tone and no reflect in one of his legs. It just kills me that after all the years of going to THE BEST DOCTORS. Not one ever thought to test him for lyme...I agree that the inflammation is system wide. Eileen
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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posted
I have had lyme bladder problems for yrs. Done the awful testing, bladder dilation, Elmiron (for IC,makes your hair fall out) Detrol, Ditropan, etc. Didn't like the side effects of the bladder meds.
Well, recently started back on LDN (lowdosenaltrexone) and it is helping the bladder! I tried it yrs ago for the MS symptoms, looking back I think it helped the over all picture. I know other lymies who are on it or have tried it and said it did help their mood/energy. But it is not a magic pill for some others it is (with autoimmune stuff) It is cheap,no side effects really. I was not expecting relief in the bladder area, NICE. Posts: 315 | From USA | Registered: May 2005
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