posted
hi there, I started bart treatemnt a month ago and wanted to know how long before u know it's working and doing somehitng? so far I'm herxing , but in general when do u know if it's really working or not. I'm not even sure if I'm herxing or just being sick like always. can u share your experiences here and how long u had bart plus how lo9ng it took to feel better and the treatment protocols and doses. that would be very helpful as I'm feeling hopeless and would like to have an idea. I've had it guessing 15 years. so maybe 6 months before I feel anything? could u guys also share your first herxes with me. what were they like. thank you very much
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Have had lyme 19 years.My first 6 months on IV were brutal.Herxed everyday.
Two years of oral follow up and I am starting to have some good weeks.
This was my personal experience.Everyone's different.Depending on what strain you have,your germ load and how co-infected you are.
I hope you don't have a difficult time time.But be prepared you could be in for a long road back.
Emotionally I had to dig really deep to get thru it.What ever it takes.Faith,prayer,positive thinking ,relaxing music ,anything you can think of that can help pull you thru.
Keep in touch with the people on this board.They have been so important to me and give good emotional and medical advise.It's been a real God send to me.
Good luck and remember:NEVER give up .You will get better it will take some time and patience.
Blessing to you dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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lyme_suz
Unregistered
posted
Hi, I have had lyme 5yrs and have been treated 7mos with orals. I have had a breakthrough recently where I feel like myself and have energy.
I started to notice improvement after 3mos, I think. It is so hard to tell. I know that it has been extremely gradual. (Hey, I am not struggling with closing my eyes when I drive!) Then bursts of recovery.
One of the most challenging aspects of lyme is that we feel worse, and symptoms flare with antibiotic treatment. Can be very hard to tell if you are getting better. At times, seems worse, but can be the ole herx.
You have had this for a long time-thank goodness you are getting treatment. There are others here that have had lyme for decades that are well, or getting well. It definitely takes time and no one can tell you how long it will be. Try to patient and find ways to have a little fun while you rest. I read classic literature (fun to me) and watch DVD's with my kids. They are getting better too.
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hey, Citrus!
I probably went undx for about 9 years and started abx treatment in June.
The first two months were just awful; I kept a pretty detailed symptom chart and can see I felt just barely okay for only about 10 days out of those months...
Barely functioning meant a window of about 90 minutes in those better days.
I started gradually seeing a longer window in the third month, but I seemed to take a significant leap forward in month 4.
Everyone around me told me how much better I was looking, how much stronger my voice sounded, etc. I've only been on orals and supplements.
I'm working part time but continuing to feel more clarity and energy. Still, I'd only put myself at about 40%.
I figure 40 is better than the 15 or 16% (which was where I felt I was when I was dx).
It did help me to track the symptoms, so I could really have a clear sense of my progress.
Hang in there; Dana's right, I think. This isn't a fast process
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
thanx guys for the encouragement. I have been on abx ofr lme 15 months now or more. I started my coinfection journey.wanted to have an idea roughly how long that takes to battle.anyone know if it's fsater than lyme? it's the bart I'm asking for. thank you for your kind replies
If you keep a Lyme Log daily of your symptoms, you can look back after 6 months or a year and see how far you have come. That is encouraging.
It was a roller coaster ride for me and everyone is different, I think it's healthiest to compare where you are today with where you were a year or so ago.
-------------------- Nancy Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003
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