luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
As best as I can tell, I contracted Lyme 10 years ago at which time I suffered a "mystery" illness for 6 mths which the drs never could identify. Lyme test was negative, but they treated me with a round of doxycycline anyway as well as a number of other antibiotics. My main symptom was fatigue with some joint pain. Fast forward to July of this year when I began a holistic program called Bioset for my allergies. This activated the Lyme (which really was not fully dormant, just causing problems no one ever related to Lyme). This time, I had severe joint pain and swelling. The chiropractor treating me sent me to a pain specialist in Maryland who diagnosed the Lyme. He said I have had this awhile and explained to me why antibiotics cannot kill this bacteria. He prescribed 13 homeopathic remedies including one titled Borrelia (I call this one the BAD MEDICINE, because I herx so badly on it) As I took the medicine my symptoms worsened which frightened me alot! I read and researched everything I could find about this disease and found that antibiotics are not a cure. I couldn't find much literature on the homeopathy except it does not cause adverse reactions, therefore, the incredible pain, swelling, numbness I was encountering was not an allergic reaction. I made an appt for a 2nd opinion from a known LLMD but he can't see me until 11/21/05, so I had no option but to continue the remedies. My first symptoms began in July. I started the remedies first of September. I AM GETTING BETTER!!!!! So much better. And this time I have not suffered any chronic fatigue. Based upon my research, here is what I believe. Antibiotics have limited success because the borrelia mutates and hides in a dormant state from the antibiotics. Hence, while on antibiotics you feel better, but once off, the problems return. Since antibiotics are not selective in what they attack, your own immune system is severely compromised which could be causing or at least excerbating chronic fatigue. Homeopathy, on the other hand, caused me more pain due to the effects of the die off. We know borellia can hide from the immune system, but the borellia can't hide from my immune system because, homeopathy works similar to a vaccine in that it is the essence of the disease. "Like cures Like". Borellia may trick my immune system into thinking it is ok to be there and my i.m. won't produce the needed antigen to kill the borellia, but the remedy comes into my system and says "Hey, Immune System, look at me! I'm Borellia!" So now my I.M. produces the needed antigen and whams the real bacteria. Since this process does not compromise my I.M., I have not suffered any chronic fatigue this time. My reactions are getting noticeably weaker and I am getting back to normal life again. I'm not well yet, but my doctor promised "cure" and by gosh, I believe he is right! I'm so excited, I want to shout this from the rooftops. Why is so little tx being done with Homeopathy and why is so much tx being done with antibiotics when all sources admit they aren't very effective?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
So what is this exactly?
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I think that generally speaking that it's the patients who don't believe in homeopathy...and then the fact that homeopathy is often being tauted as non-scientific and unproven.
The later is, IMO, a secondary outcome of the lack of big business in homeopathy. No money to be made by the drug companies.
But by any measure, antibiotics is also unproven as a cure, perhaps even more so for chronic Lyme.
The main thing is still, however, that the common conscensus is that homeopathy doesn't really work and is unscientific.
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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posted
Glad you are feeling better and wouldn't it be great if there was an easy magical cure waiting out there for all of us!
Individual reports about alternative treatments like this are called testimonials. By themselves, they do not prove the value of a therapy. There are several other explanations for your improvement. Case progression is quite variable in lyme patients as is their response to any sort of treatment.
Some people have posted here that homeopathy did nothing for them and set them back thousands of dollars. Also, a double blind placebo controlled trial was conducted on a homeopathic remedy and found to be no better than the placebo.
If you are interested, maybe do an archives search here. Think someone posted a news article about the study.
Was watching a tv show where a character was talking about homeopathy. Said she had an easier way to prepare her treatments. Instead of adding the agent to the water, and then diluting it until there was really none of it left, with only the memory of the agent now in the water.... her short cut was to show the water a picture of the agent and let it remember. Easier than all that dilution.
Posts: 8430 | From Not available | Registered: Oct 2000
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
Homeopathy, and Isopathy, did not work for me for Lyme symptoms. And, it set me back $$$$.
However, it did once work for hives, and once for sores in my mouth that I used to get frequently in my throat. It resulted in a 'healing crisis' in which I had 33 of the sores at once and could not eat or drink (very easily) for days. Once they healed, I did not get those sores for several years. But, I still had my other symptoms.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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posted
I would like to know more specifics about your protocol. There is so much variability out there that I don't think we can discount effectiveness of all homeopathy just because one particular protocol didn't work. I am interested in hearing about all experiences, negative and positive, in this area. I still question whether abx are doing the job. I would like to hear from people who have been off of them long enough to declare that they are "in remission". I won't use the word cured.
Posts: 422 | From Herndon, Virginia | Registered: Oct 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
luvs, good for you for wanting to shout from the roof top to maybe help someone else overcome this nightmare.
Your post was very well written. Well, except you should post in the future with short paragraphs, because many of us have a hard time reading large blocks.
Thanks for telling your story,
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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Where is the homeopathist that you see? I just started seeing one in Hopewell Junction, NY (Dr K). He told me that the homeopathic remedies work very slowly and to expect to flare and have all my old symptoms come out.
Posts: 66 | From Dutchess County, NY | Registered: Aug 2002
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
You could follow a very similiar course of treatment with antibiotics. The test will be in the long term, as to whether you continue to improve, and maintain your health. That is where Bb trips up so many.
Treatment for this illness is so individual. For some, antibiotics are very effective. For others, they need more, or different treatment. If homeopathy is working for you, I'm very happy to hear it. It was not an answer for me, though it was helpful in the past for other problems, for both myself and my son.
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Luvs, borrelia's trick is its VLSE mechanism, it changes antigens constantly, thus tricking the immune system. I'm not sure homeopathy would handle this.
Posts: 2276 | From united states | Registered: Jun 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
luvs2ride,
First, is this formula you are using from Deseret Biologicals? If not, who is the manufacturer?
Second, why do you feel the BioSET started the Lyme again? I have done over 40 BioSET treatments and was originally diagnosed with Lyme by BioSET (later confirmed by my MD via blood). I am unclear what the link between the BioSET and the Lyme reactivation would be. Please advise.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Hey Luvs, I am so glad you are feeling better Could you please tell us what protocol you are using and how you are getting them. Thanks mimi Posts: 343 | From usa | Registered: Dec 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Wow, much to respond to. Briefly, let me try.
I'm on 13 different remedies. Two of which are varying strengths of Borellia. The others address other deficiencies such as trace minerals, b complex, nervous system, fungi, bacteria. Dr S diagnosed me using auricular therapy. I had never done this before, nor heard of it, nor had any faith in it. In fact, when I began herxing, I was frightened to death. So forget the placebo effect.
I definitely feel we all respond differently to treatments because of our individual makeup and the physical and emotional condition we are in prior to illness.
I can only compare this go round to my first bout 10 years ago. At that time, on antibiotics, I felt so weak and drained, I felt if I would just let go, I would simply fade away and die. This time I have great energy and inspite of alot of physical pain, I feel very strong and healthy internally. Some of this is due to old symptoms such as asthma, migraines and foggy-brain clearing up with treatment.
The main reason I feel positive progress is each week when I take the borellia medicine, my reaction is milder and milder. I am on day 3 right now of no advil for pain.
I agree we should say remission rather than cure as there is no way to prove cure. But while I may speak cautiously on the exterior, internally, I know darn well I am feeling stronger than I have in years.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Can you post any names of the substances you are taking? I can't believe they are all unmarked containers.... Please share Posts: 546 | From Cascadia subduction zone | Registered: Mar 2002
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Pray tell, what are you taking specifically....
Where does one get this stuff...I'm more interested in this borelia or whatever as I know of dr B's supplements that help...
What dose and how many times a day? Are co-infections addressed with this protocol?
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
Homeopathic remedies address one patient at a time - you can't "take x for y" - it doesn't work like regular medicine that you're used to.
Remedies are not for symptoms, they are for the patient - the whole patient's disease picture.
Two kids in the same household with the same cold often need two different remedies. I know it sounds weird, but that's the way it is.
Posts: 369 | From Ohio | Registered: Mar 2002
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Mikken is right. My doctor is an MD as well as a board certified homeopathic and he did quite a study of me before prescribing my meds. Also someone else mentioned homeopathy is slow to work and old symptoms will come out. My symptoms really have been experienced in reverse. The newest symptoms experienced first followed by symptoms I experienced 10 yrs ago such as all over aching, chills, etc. I can't say it has been slow though as I began the tx 9/1/05, but had to ease way back at first due to the herxing. Finally, I was able to increase back to the full dosage and within 2 months, am feeling much better. This is hard to describe, but I feel I am healing from the inside outward. I feel strong inside, like my immune system is a tank moving around destroying borellia. I'm comfortable with my doctor because he does seem so Lyme literate and because he can prescribe antibiotics anytime he feels it will help.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Okay, now after reading all this, wow. I think I am in for a long journey. I havn't been diagnosed with anything yet but in july of this yr. I saw llmd and test positive for mycoplasma and was treated did igenex lyme and it was neg and said no need to check for co-infections. symptoms still persist. He did send me away with a boat load of supplements though and addressed some of the candida, fungi issues. Now 11/8 I see a llmd who was just at the conference and is also an md and Homepathy dr. So hopefully I can get some help. Has anyone done the VCS test?
Posts: 15 | From Arizona temporarily, WI is home. | Registered: Jun 2005
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I can only speak for myself, but I am very wary of this kind of Advertising that goes on here. New posters are always popping up with testimonials about a new herb, a new supplement, Rife, or a Homeopathy Tx that works great for them. People get sucked in to this kind of advertising because they think that the person making the claim is for real. Just a word of caution : Don't trust any such claims made on the internet where fake people make false statements at the drop of a hat. It's all about money and increasing sales. The sick are easy targets.
Posts: 132 | Registered: Jul 2005
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yes porsche, been there, done that with abx and modern medicine too. It didn't work for me. Things got worse. Been doing alternative for 2 1/2 yrs now and am improving and getting my life back.
I'm doing naturopath, rife, homeopathic, muscle testing doc and all that voodoo stuff and seeing results. Yes, there are people out there trying to take our money and many products out there that won't work. We are easy targets.
If this was an easy road then there would be no need for this site. Four years ago I was laughing at some of the crazy things people were doing to get well. Coffee enemas? Come on. Then reality struck and I realized I was going to have to take charge of my healthcare and try some things or this lyme hell was going to be my life. NO WAY.
So I looked outside the box and have been very blessed to find honest, caring alternative type doctors to help me. I've spent a small fortune, but what is remission worth? Priceless.
Notice I say remission. I don't use the cure word, because from my experience, I'm not sure there is one. But someday I may be blessed enough to say the cure word for me. I won't give up the this war.
Just my own opinion and experiences,
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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quote:Originally posted by Porsche: Been There - Done That - Doesn't Work
I can only speak for myself, but I am very wary of this kind of Advertising that goes on here. New posters are always popping up with testimonials about a new herb, a new supplement, Rife, or a Homeopathy Tx that works great for them.
Porsche,
True, but aren't folks also discussing which abx or combos work for them, too?
You'll notice there were no remedies named here - and again, it's because homeopathy doesn't work like that - you simply cannot take x remedy for y symptom. People naming remedies are only naming what works for them - and it certainly may not work for another, especially if their symptom picture is different or if they even have different personality types.
Homeopathy, rife, abx, etc. - all different paths. Not everyone can travel the same road to wellness.
That said, yes, buyer beware - always.
Posts: 369 | From Ohio | Registered: Mar 2002
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I agree with you, Meg. I don't have much patience with people on Lymenet trying to sell me things, but I'm here to get information.
What each of us has is our own experiences dealing with this very complicated, multi-systemic disease.
Earlier today, I printed out some guy's website about some of the treatments he had used in his Lyme battle and took it to my acupuncturist.
She told me it really helped make some things clear for her and, as a result, she tweaked both our session and my Chinese meds.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Porche,
I don't blame you for your skepticism. However, I didn't advertize a thing. Nor do I recommend self-treatment. My doctor is an MD and a board certified homeopathic. I have had great results in the past with herbs for far less serious ailments, however, Dr. S won't use herbs because they are not regulated. The remedies he prescribes are regulated. Several people have asked for my list of remedies, but I give them the name of my doctor instead. This is not a simple cold and should not be handled by amaturs. Please do not slam others for sharing medical treatments that are working for them. After all, isn't that the purpose of this forum? Also, while American is so leary of alternative medicine, European doctors are all trained in both fields and use both as needed. When will we catch up?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I have always done well with homeopathy. I'm one of those people who are VERY sensitive to chemicals - ie, meds and homeopathy has always helped me enormously. Homeopathy isn't some smoke and mirrors thing - it's a highly respected branch of medicine. ( the British monarchy has always had homeopaths). love dharma
Posts: 731 | From NH | Registered: Jan 2002
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yeah dharma...and ole Charlie turned out so well.......
Hee hee..
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I have done the VCS test a couple of times and am just starting the Shoemaker protocol from chronicneurotoxins.com this week in hopes of seeing some improvement by binding and pulling out the toxins using Questran.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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