When I first became sick, I had the constant chills, night sweats and cold feet and hands. Now a year later, still have the COLD feet and hands, but now it's where socks and hot baths dont really help too much.
In addition, like many here, I've the very low BP (recent was 90/60) and low temps...but noticing my right thumb turning "purplish"...off and on. Now, it's seems like it's staying more purple, and today the fingertps and hand were turning the same tinge. (though the skin around hand/wrist or arm doesn't have a "bluish lace" pattern as others have mentioned.)
The cold feels right down to the bone...and a numbness that runs from the feet all the way up to the knees.
So, I've been reading and searching here...and noticed 'hypercoagulation' keeps coming up...and Raynauds. Everything sounds like circulation problems...(with low BP and Temp, that would make sense) But, are these conditions different than just your basic lymie cold feet and hands problem?
Read someone has a cold nose too...which I seem to always have. Though it is fall, and I'm always worse when it's cold out. I've been thinking its thyroid...maybe not now? Which tests should I ask for, and what do the treatments do for you? (does it make you feel warmer or less numb? That would be a piece of heaven for a change!)
Thanks all for keeping all this information flowing...
JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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In the case of the low body temp, I noticed that mine normalized after my doctor put me on a low dose of thyroid hormone, levothyroxine 25 mcg. My blood tests did not show low thyoid however, just on the low side of normal range.
It might be better (more physiologic) to take Armour throid, as it is taken from pig's glands and they have the same chemical structure of their thyroid hormones as we do. The synthetic form may not be as good.
For the numbness (and possibly tingling)in hands and feet, this has been a very vexing and difficult symptom for me to endure, but I have come up with a list of things to take that keeps it in remission:
1) methylcobalamin shots daily for awhile, then less frequently. This is vitamin B12. The dose I use is 1000 mcg or 1 CC. It is administered under the skin with a very thin needle. It can be ordered online from either Apothecure or Wellness Pharmacy. You can order needles from them too. I'm not sure if you need a prescription.
2)phosphatidylcholine capsules daily
3)phosphatidylserine capsules daily
4)fish oil capsules or cod liver oil daily. Make sure there is no mercury in it.
5) Magnesium glycinate 400 mg two to three times daily
It will take awhile for this regimen to yield results but it is definitely worth it.
As for the problem of just feeling cold, I found that sitting in the sauna at a health club for about 20-25 minutes weekly (or some people make their own at home) is good for resetting the body thermostat and seems to help. Usually I go into the whirlpool first because it is hot and after I am heated up from that, I go into the sauna.
I hope that some of these ideas may work for you!
Elizabeth
Posts: 156 | From MA | Registered: Jul 2003
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posted
Hi Kidsatlast, I'm not sure I understand your administration of the B-12 injections. I have pernicious anemia (my body doesn't produce intrinsic factor, and it won't absorb into my body through foods or oral vitamins)
I have to have an injection once a month (for life) 1 CC.
For my condition it has been made very clear to me that an IM (one inch intra-muscular) needle be used in any fatty area (stomach, hip, thigh) for it to be absorbed into my system.
If administered by myself, it has to go in straight (cannot do my hip, as it would go in tilted) so I do legs.
I am just curious if you are getting the full benefit of the B-12, or is mine just specific to my condition? I HATE those big needles! I buy my syringes at the pharmacy for .25 each, but the B-12 I have to get a prescription for.
Thanks, Jill
Posts: 203 | From Jacksonville, FLorida | Registered: Oct 2005
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
You can have all three or just one or two. My daughter has thyroid and the hypercoagulation. I have/had the hypercoagulation and the Raynauds'. Tht being said you often see Raynaud's and hypercoagulation together.
Hypercoagulation in our case usually has to do with chronic infection, it can also be a part of certain gentetic disorders. Since the hypercoagulation is in the blood and there is infection there, you can also end up with infection in the blood vessels themselves. Actually more like irritation. Raynaud's is vascular spasming. Cold often brings on bouts of Raynaud's because blood vessels are already likely irritated along with everything else.
The lace like pattern (Livido Reticularis) on the skin may not be there on the arms and legs. Sometimes it can even be on the torso. Often it can be seen on the hands. Depending on how severe your hypercoagulation, will determine how just how badly your body is effected.
Right now I feel like I have Raynaud's in my brain, can't think. So hope this answers some of your questions.
Posts: 1251 | From california | Registered: Apr 2005
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