robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
This is a great question ......... Bringing it up for responses
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
My LLD goes by when I stop herxing on a med and or not improving or taking a dive.
Do you have a LLD and what are his feelings?
Everyones so different and the abx program has to carefully planned by a LLD acoording to each persons symptoms and how co-infected they are.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
My LLMD says when I am not making improvements, it's time to try another antibiotic. Herxing is not really a criterion.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
| IP: Logged |
posted
I've been on a lot of ABX and combinations, and I've usually given them a month or two before switching them. If I didn't herx or see an improvement with my symptoms in that time period, my LLMD would switch one out for another.
If you cannot get up to the full dosage of your current prescription(s) due to herxing, perhaps it is the right combo for you and you should stay on it until you can handle the full dosage. Once your up to the full dosage, and feel like you plateau, you could swap an antibiotic at that time.
Wishing Wellness, Jewl
Posts: 79 | From Chicago, IL | Registered: Sep 2003
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I'm bumping this back up for any additional insights. I have been on the same abx (ceftin) for all 7 months of my treatment.
I continue slowly, slowly getting better (d*#n, it's slow, though!) and herx when/ if I add new supplements.
My LLMD hasn't even broached the subject of switching antibiotics, and I was wondering how other people feel about it -- especially people who are off abx completely now. My LLMD seems to believe that as long as progress is being made, there's no real reason to make that kind of change.
Thanks for all the wisdom on this board!
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
The way my Dr does it or did it was to.
Say I start abx1 in june then I start abx2 in july Then stay on both till aug Then in sept out with abx1 replace with new abx1 b. then in oct in with new abx2 stopping old abx2.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
What is a good oral to take if you have chronic lyme? I was on IV rocephin for 8 weeks, a few symptom went away but the main ones are still here.
Posts: 146 | From New Jersey | Registered: Jun 2005
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Coach,
I've been on Ceftin. It really tastes awful, but besides, that, I've been getting slowly better.
I've heard from others on the board who seem satisfied with it, too.
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I would agree with dana.
several LLMDs have prescribed months of orals changing them up every 30-90 days so as to keep the bugs from developing any sort of resistance and to keep hammering them from all sides.
Some feel they platuea and then it is time to change, others just change the meds up even when they havent had clear times of less sx.
I felt that my LLMD moved me on from mepron/zith alittle too fast though...
I feel that I still have babs in here.
But since I changed meds _WOWWWWEEEEEE
I am herxing like the dickens! In ways that are very new for me too!
So I dont know how to answer your question for sure. Every doc treats differently. If you are still having herxes on your med then I'd stick to it for now...if you find that you are neither better nor worse then maybe time to change?
Posts: 1950 | From New Mexico | Registered: Sep 2001
| IP: Logged |
char
Frequent Contributor (1K+ posts)
Member # 8315
posted
Hi,
Sorry to hear it is taking so long for you to get well...
I am curious as to why you have been taking one abx at a time rather than a combination of 2 or more?
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Hey, Char
I never thought of 7 months as a long time for healing this disease. I was bitten in 1996 but not diagnosed until last June.
Those little buggers had a lot of time to settle in and do a lot of damage.
In the past 7 months, several of my symptoms have disappeared completely, and others are definitely better. Some things, though, are persisting.
As far as combo abx, I haven't really given it a lot of thought. Mostly, I follow my LLMD's suggestions. And because I do continue to improve bit by bit, she seems to think this is all working well.
Honestly, I don't know enough to think differently.
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
bettyg
Unregistered
posted
Andie,
I met w/my LLMD after 6 months of holding & no changes occuring last Monday.
New symptoms to address were: my being plugged up both nostrels every night at bedtime plus off/on during the day; my 24 hr. days w/NO SLEEP, other breathing problems, etc. Dr. gave me some freeblie sleeping pills: sonato & e________. Sorry, don't feel like getting up right now to go to other end of house for name of it.
He rx me FLONASE nostrel spray before bedtime.
Then he surprised me after 1.5 yrs. on doxy and biaxin..3 days on each, 2 days off, then 3 days on the other abx; 2 days off, and start other abx again.
Mon. he prescribed FLAGYL every other day. It was a poor report day comparing me to another individual who is really bad and had been on ivs for 10 years! Didn't make my day.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Just trying to keep my sense 
![[Eek!]](eek.gif)
Printer-friendly view of this topic