I am relatively new to this board. I was diagnosed with chronic lyme about 2 months ago, but have been sick for over 10 years. I am feeling very confused and hopeless about getting better from some of the stories I hear. I am also feeling so depressed and feel as if I am in such a mental fog, I cannot get out. I have many questions I will post in a separate post, but just wanted to say hello to everyone and introduce myself.
-------------------- "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of the doctors I shot when they said "You're perfectly healthy, It's all in your head"
Hope and healing, Nancy Posts: 26 | From originally from NY- now living in AZ | Registered: Nov 2005
| IP: Logged |
bettyg
Unregistered
posted
Nancy, WELCOME to the board! We all have many questions regardless of how long diagnosed & during our many treatment meds.
Use the SEARCH feature 1st since many questions have been asked over & over; ok.
Welcome to this 24/7 educational & support group board, www.lymenet.org !
Here's TREEPATROL's and TINCUP'S combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.
print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.
Also, see Cheryl's extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful!
Some guidelines from Betty/others on using this message board:
* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.
* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.
* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.
* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.
* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out!
* Also, we have ``lyme'' disease; not lymes... We are ``lymies''.
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Nancy, Hi and welcome to Lymenet. I'm glad you're here but sorry you're feeling so depressed and confused.
You mentioned being dx but not how or if you were actually being treated. If you're not, I would really encourage you to get what's known around here as a Lyme-literate doctor (LLMD).
These are doctors who are well-informed about Lyme disease and are located via various Lyme groups around the country (go to the Support Groups link on the left of the Lymenet home page).
For me, starting treatment with a knowledgable doctor is making all the difference.
Betty has mentioned a lot of good places to get information, and I agree with what she said about searching for topics that have previously been posted.
It may also help to remember that a the things you described: depression, confusion, mental fogginess -- are all symptoms of this disease. Sometimes those same feelings will wash over me when the day is bright and sunny and everything seems to be going my way.
Again, if you're seeing a LLMD, you may want to bring this up at your next appointment.
Keep reading and posting and know that a lot of people do get well, even with late-stage Lyme.
...and welcome!
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
posted
I just sent you a private message to welcome you and offer help in any way I can! You will find alot of help and understanding here. You will get tons of information too. WELCOME!
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Hi Nancy,
Oh there is plenty of hope. Alot of people go on to normal lives. You will get better.
Some people check in to say how good they are doing.
Love your saying........... "Grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to hide the bodies of the doctors I shot when they said "You're perfectly healthy, It's all in your head"
You are just the smarty we need around here.
So you've only been on antibiotics for 2 months? Are you taking yogurt / acidophilus and probiotics? Magnesium? Multi vitamin?
Maybe you can list your regimine in a new post. I have listed mine in the past and people were very helpful with suggestions.
I have been sick for now almost 8 years and have been on antibiotics one year coming up in January.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
| IP: Logged |
Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
Welcome!
Love your quote.
I hope you are now seeing a doctor whose body you will not have to dispose of who is treating you effectively with antibiotics!
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
![[hi]](graemlins/hi.gif)
![[group hug]](graemlins/grouphug.gif)
Printer-friendly view of this topic