posted
Hi all, I am taking IV 200 doxy for 4 days, then 750Mg Vancomyocin 4 days and rotate. This has been 3 weeks and I am not having a reponse. Yrs past I took only Doxy up to 600 a day...for a year. I have new Dr. in a new state, he himself has Lyme. He claims you only herx while on abx, and ONLY when the spirocetes are in their growth cycle. I told him I have been having herxs monthly ever since my most current infection 10 months ago. He said this is news to him and something he is not aware of. It is called herxing when you have routine bad cycles, isn't it? and if my abx is not giving me a reaction could it be it is not strong enough? Thanks for being here for me, and all of us. Also, I did just have a total thyroidectomy because of cancer (and Hashimoto's disease) and I am on tons of calcium because my parathyroid has shut down. the side effects of the HYPO-parathyroid are very similar to some of the Lyme symptoms. very interesting to me because some of my symptoms have actually improved since my huge doses of calcium. Blessings, Sharon
Posts: 52 | From Arizona , USA | Registered: Jun 2002
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Hey Sharon, I'm from AZ too! Who says there's no lyme in AZ???
I'm on IVs too....IV rocephin. Been on it for 5 months as of yesterday. Day 28 after the IV went in is when I "fell apart"...which is what some say can happen after the start of IV antibotics. So...give yours another week and see what happens.
I also have monthly bad times. In fact I was just circling those on my calendar today...yep, every four weeks (once it was 3 weeks)...but every four weeks I don't do so well for several days to a week. I noticed this pattern before I was on antibiotics....I believe it is the growth phase of the bacteria...and our bodies are trying to fight it down. Dr. D mentions the cyclical worsening of symptoms in www.canlyme.com/donta.html I don't think it is technically called a herx if you aren't on the antibiotics, and the bad spells happen...a herx is a reaction to the antibiotics effect of killing off the bacteria. For instance...whenever I was given a strong antibiotic I would have a bad day(s) 10 - 12 days after starting it...to me that was my herx.
Hopefully, being on antibiotics, causes the bacteria to be killed during this growth phase. (I'm in the middle of one now, and I hate it! ) But, I'm trying to tell myself that the antibiotics are working to kill the beast.
The nice thing is that for the 3 weeks prior to this downtime I'm now in, I had the best 3 weeks I've had in the last 2 years! So, I think the antibiotics are doing something anyway!
Sharon...e-mail me privately if you would...I'd be interested in knowing what doctor you see in AZ.
Hang in there...better days are coming.... Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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WildCondor
Unregistered
posted
You need to give this more time! 3 weeks is just the beginning. Its good to hear you are on a good protocol, so hang in there, these things take persistence and patience.
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posted
Thanks for the info friends. After reading a bit more I do need to give this some more time. Also reading about the high TSH count from Dr Wiseass, I just got over cancer surgery and I had been running at 74 TSH for over a year, it's been high. No wonder i feel so good compared to how lousy I felt! Also I am on the RAW diet. RAW fruit and vegies, smoothies, salad, juice. I have been feeling great on that as well. 1 day i was enjoying a nice glass of carrot juice, telling my hubby how good i feel...i turned around to walk to the kitchen and had to drag my IV pole with me!!! LOL !!! Oh the life of trying to get well!! Posts: 52 | From Arizona , USA | Registered: Jun 2002
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Dido more time. Some one said something once here that stuck with me:
This is a long distance race not a sprint.Slow and steady wins the race.
Not the exact phrase but words to that effect
Take Care dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
I know it's important to take a "cyst buster" while taking ABX. Flagyl, tinidazole (sp?) or Plaquenil would do the trick.
You don't want those buggers walling themselves off so they can't be killed!
Consider discussing this with your doctor.
Steph
-------------------- Learning to love, and loving to learn. Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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WildCondor
Unregistered
posted
Definetly hang in there and give this time...many months. It took me a year to start feeling better. You really have to be prepared to be in this for the long haul. I agree, you may need to add in Flagyl as time goes on. Right now you are on a good protocol though. Stick with it, and be patient, this takes TIME.
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posted
Wildcondor, was it a year on orals or IV to feel better, or both? Just wondering.
Posts: 830 | From Colorado | Registered: Mar 2005
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) But, I'm trying to tell myself that the antibiotics are working to kill the beast.![[Wink]](wink.gif)
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