posted
I have two questions. Has anyone been diagnosed with spinal and brain lesions as well as abnormal spinal tap with demylination? The neuro says MS, but my Bowen was positive and LLMD. says Lymes, but not sure about MS? I started the antibiotics 200 mg doxycycline and I am having back discomfort (lower rib cage on each side) and mild headache. No severe hexing after antibiotics for 7 days, and leg still pins and needle and bottom of both feet still numb. I find it hard to believe that with the Neuro issues going on in my body I would not get a more severe Herx reaction. Any ideas or comments would be great. Thanks
Posts: 7 | From Ohio | Registered: Oct 2005
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posted
I had all the lesions...brain, spine, ob bands in cfs etc. Have been on abx 2+ yrs without much improvement until babesia treatment started 9 wks ago. Sure wish I had treated babs a long time ago. My babs tests were neg..guess what
Posts: 740 | From BC Canada | Registered: Mar 2003
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posted
What was your Babesia treatment?
Posts: 7 | From Ohio | Registered: Oct 2005
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I have the brain lesions...;dx MS in 1988. 15 years later found out lyme. Two years on lyme treatmensts and doing wonderful.
The first year was tough with the herxs and increase of ms symptoms. Make sure to take magnesium complexs for the nerves. Build up gradually otherwise loose stool. I'm up to 600mg a day.
MS is a disease named for symptom - Multiple Lesions. "There is no cure" cause the doctors don't bother to find the cause. If you have lyme, you have Lyme induced MS. That's what I call it. I have the MS response to the lyme bacteria.
By the was, my sister this year tested positive for lyme, then had an MRI, yep, lesions. Her husband went the same root. He went to a different MRI facility which is lyme literate. His lesions (even more than I ever had) were written DX demylating disease due to Lyme.
I know it's scary but don't fret. Remember you found the cause, you can cure the ms.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
My herxheirmers consistently hit me between days 10 and 12....
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Jotj, I took 8 wks clindamycin/quinine and switched now to mepron/zithromax kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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200mg of doxy per day?? You need to be taking more like 400mg unless you are under 100 lbs maybe.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi JOTJ. You've gotten great advice here already! I too have brain lesions, 11 at last count, and my head has hurt through most of my six+ months of Lyme treatment (highly CDC positive through IGeneX). My neuro claims it's MS because I have some abnormal spinal tap stuff and abnormal evoked potentials.
However, if you have evidence of Lyme (and you clearly DO), then you know what's causing your MS-like symptoms. So go KILL IT already!
As pointed out, 200 mg of Doxy will barely kill a flea! Just kidding, OK, but you need the guidance of a good LLMD and likely many months of strong antibiotics to penetrate deep into your cells and tissues. Not herxing in 7 days on that low a dose doesn't prove much of anything. Your 'mild headache' will likely turn into a major headache if you were on an appropriate dose of antibiotics.
There are way too many success stories of people whose "MS" got better with Lyme treatment! Be one of them! Also, remember that treating for Lyme disease is not going to hurt MS in any way, whereas treating for MS (i.e., steroids, etc.) WILL definitely hurt and worsen Lyme.
Best of luck!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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