GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
how many of you have had a c.b.c.?this check's for elevated white blood cell's.
elevated wbc indicate's an active infection.(lyme) or other infection.
i have this.i have been tested for other medical problem's.all negative.only my tissue biopsy for lyme and w.b. have come back positive..
do you have elevated w.b.c. ? be well, gary
Posts: 1108 | From PA. | Registered: Jun 2003
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
My bloodwork shows that also but my lyme doctor hasn't seemed concerned. When my primary (who knows nothing about lyme) got copies of the lab work both months - her office called saying they were watching the numbers.
I am having blood drawn today and see the llmd on Wednesday and I will ask about the white blood cell count.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
Mine have been elevated since I got reinfected 1-1-05. I just started IV abx so they should come down. It is just showing your body is fighting infection and with Lyme that is a good thing. I don't think LLMD make much about it because if they already have a positive test for Lyme, they know what infection your body is fighting. take care Sharon
Posts: 52 | From Arizona , USA | Registered: Jun 2002
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GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
this info could help those sitting on the fence,wondering if they have lyme.
they will know that they have an active infection,and to have themselves checked for lyme or something else.they will have there foot in the door.
elimination of other infection's,could help pinpoint lyme disease..it is most important. , gary
Posts: 1108 | From PA. | Registered: Jun 2003
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Geden, Yeah, my WBC is always or has always been between 11 to 13 when my lyme has been active and 6 to 8 when it is inactive...
unfortunately a lot of ducks don't or did'nt see this as a big problem...
some rheumies think...oh let's see your wbc is elevated...hmmm that can mean arthritis cuz you're old ya know....horsefeathers...
or it's some other unknown reason... when I suggested to my wife's rheumie that she may have caught lyme from me or I her...and her sciatic pain and elevated wbc could be lyme he just dismissed it as nonsense out of hand....
Would'nt even entertain the thought...
Sheesh.......good luck...hope you got some good stuff to help you out...zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
My WBCs stay lower than normal. Not a good thing for someone with multiple infections. Think they have given up. My killer cells seem to be pacifists.
BTW, how are you Gary? Been wondering if you are finally getting some treatment.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
My total WBC stay around 8 or 9 which is okay. My total lymphocytes are at low normal range. And my cd4 b helper cells were a little low the last time I had a stryker panel done.
I am like Lou I think my immune system is giving up. I would much rather see my WBC elevated meaning the immune system is still trying to fight this thing. I feel the only defense I have is abx anymore. I think treatment is much tougher when you don't have your immune system working with the abx.
Posts: 649 | From United States | Registered: Dec 2003
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posted
Yeah, my white count has been 15 and my doctor couldn't figure it out. Made me go see a cancer specialist who couldn't figure it out either. It would go down to 9 at times. I've had some real intelligent doctors. I think the last diagnosis for the high white count was stress?? Kathy
Yeah, my WBC is always or has always been between 11 to 13 when my lyme has been active and 6 to 8 when it is inactive...
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
thank's for all your replies..very helpful.
lou..i am still fighting for abx.i have to see an infect doc..he told me some time ago,that i would need a tissue biopsy or a lumbar puncture ,for him to treat me....
i got the tissue biopsy.show's positive.now,he want's a lumbar punture.i am very pissed off at him dodging me,and side stepping.
he also want's synovial fluid from my knee.i had an open synovectomy.dx? my synovial lining,was destoried by the lyme..sooo,no synovial fluid.(synovial lining,make's synovial fluid)..see where this is going?
now, my orthopedist well not do a knee replacement.why? i have an active infection.(LYME?) i also have elevated wbc.i have seen an oncoligist.he cleared me through test's.said,more than likely lyme disease..
meantime,i am in so much pain,i am eating vicodin like candy.also have the durgesic patch.(100mcg,every 48hrs)..
i am also dealing with RSD.(REFLEX SYMPATHETIC DYSTROPHY) ..this is what hell feel's like.the burnning and pain in my thigh's ,calf's and spreading throughout my body..
i really have no other choice's,i cannot pay out of pocket.the ssi i get,just get's me by.thank God,i am living with my mother.that's another thing,just turned 51,and living here..no life at all..
i am going to a lyme support meeting in doylestown hospital tomorrow nite.i am praying and hopeing that they can get me outa this situation.help..
i am not gonna start talking about the neuro,but i can't even comprehend what is being told to me.........gary
p.s. i WILL NOT see a neuroligist.get another clinical dx? they are just guessing.....sorry for going on so long. , gary
Posts: 1108 | From PA. | Registered: Jun 2003
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posted
Sorry gary, was hoping for better news. Sounds like those guys are going to dodge forever.
Guess you know spinal tap not likely to find this. Also, study said Bb more likely to be found in synovial tissue, not in synovial fluid.
Any chance you could show the recent Johns Hopkins abstract to the ID? It says AGAIN that lyme tests not good.
Are you dealing with HMO? Maybe it is time to try to find a pro bono lawyer to throw a scare into them, and get you some treatment.
Posts: 8430 | From Not available | Registered: Oct 2000
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
quote:Originally posted by lymie tony z: Geden, Yeah, my WBC is always or has always been between 11 to 13 when my lyme has been active and 6 to 8 when it is inactive...
unfortunately a lot of ducks don't or did'nt see this as a big problem...
some rheumies think...oh let's see your wbc is elevated...hmmm that can mean arthritis cuz you're old ya know....horsefeathers...
DITTO!!!
My count is in the normal range now that I've completed over 3 years of abx and have been abx free for over a year now...hang in there, it's Lyme and get it treated!!!
lymebrat
Frequent Contributor (1K+ posts)
Member # 3208
posted
Hey Gary,
Yes mine and both kids were elevated.
Sorry to hear your still having a hard time getting abx. It truly upsets me that we have to fight so hard to receive adequate medical care.
I had to fight tooth and nail to get my son to be treated for Lyme, despite having a clearly positive WB.
And it's not just lyme. My daughter was seen in a children's hospital 3 weeks before she went into diabetic shock..yet no one picked up that she had diabetes. Because no one bothered to do a simple finger prick or urine test.
I never thought she would have diabetes, but I knew something was wrong. I made 3 calls to the doctor on call the week before she was diagnosed, and I could tell they all thought I was just another worried mom.
Thank God I listened to the nagging voice in my head to take her to the doctors that morning. Even then, the doctor on call thought she probably just had a yeast infection and wasn't going to do a urine test!
I had to say, but she is drinking an awful lot and is in the bathroom all the time. So she did the test thinking she might have a urinary tract infection. ( that's what I thought she might have as well)
2 hours later she was in diabetic shock and I was scared to death. Her blood sugar was 971. The doctors at the children's hospital had never seen a child her age have a sugar level above 700 and not be in a comma.
I hate to think what would have happened had I not taken her to the doctors and questioned them not doing a urine test...
Or had I not been so persistent with getting my kids treated for lyme. I was the one who spent countless hours researching lyme, calling doctor after doctor and the insurance company..
The sad truth is that doctors seem to be totally incompetent, or they are just so over worked that they just can't do the job they need to do.
So keep fighting and I will pray that you will find someone who is knowledgeable about lyme and start you on meds.
And please, a word of caution about the Vicodin. When I let the auto immune doctor talk me into doing a lumbar puncture for a lyme diagnoses, I ended up having a real duck, and as result I could barley walk.
I was put on Vicodin for the pain and before long, I was eating them like candy from a Pez! It is real easy to get hooked on them. I still have to take them for back pain occasionally, but I have a new respect for them.
I know when your in pain, you will do anything to make it stop... I was on the couch for 3 months..it sucked. I know you are a responsible guy and I'm not saying you'll get hooked. I just like you too much not to warn you that Vicodin can become very habit forming, I was hooked on them in less that 2 weeks.
Not trying to lecture, honestly!
Best wishes Gary, I am keeping you in my prayers
~Missy
Posts: 3154 | From NH , USA | Registered: Oct 2002
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While I was researching the new RX med for nerve pain, Lyrica (anti-seizure for diabetic neuropathy), I saw a lot of sites about it being prescribed for RSD.
It's supposed to be like Neurontin, but better because it has less side effects.
I sure wish you lived close to a Pain Management Specialist who could probably give you sampes of Lyrica.
I know you're taking other pain meds so you'd really need your Doc's help to coordinate your meds to be able to take this safely. The dose is determined by your condition.
Anyway, I know you're in severe pain all the time, so I've found some sites about Lyrica. Just read when you're up to it.
I sure hope this will give you some hope. It is so hard to read your post and see how much needless suffering is allowed to go on.
I sure hope you can get your ABX for LD soon.
Here are the sites:
For the brain talk site below, read the entire thread to get that information; it gives a link to find an RSD support group in your area. I would definitely e-mail them for information because they do understand the kind of unrelenting pain you have with RSD
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