Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I just got my MRI results yesterday. IT's the only one I have had after being sick for about 15 months. It was perfectly normal, and I'm embarrassed to say I actually found myself feeling disapppointed! I was hoping for some validation, some lesions to say "hey, this chick really IS sick!" I have so much neurological involvement, brain fog, depression, the works...how can my MRI have been normal? I just feel like it's one more piece of medical information that DOESN:T support or validate my diagnosis. I have never had a positive Lyme test, but had the rash and all the symptoms, and on IgM was positive for band 23, which Dr. D says is a positive result. Do most people have abnormal MRI's? My sister with chronic Lyme had a brain lesion, I feel cheated! ( and stupid to have said that, but I bet you understand! )
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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WildCondor
Unregistered
posted
Its is a good thing that your MRI was normal. If I were you I would focus my time, strength and energy on my treatment, instead of all the testing. If you still want to see some results regarding neurological stuff, maybe you should have a SPECT scan or neuropsychological testing. They will not do anything to treat you, but if you arent worried about the $$, then you can do the tests, and maybe you will have some results there. Many people who have chronic neurological Lyme do not have lesioins on their brain. Then again, many people who have MS, have lesions on their brain, actually have Lyme. Either way, its good that you have a normal MRI. Hang in there, learn more about the disease and treatment and keep your focus on treating and getting well. All the BEst!
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posted
My wife had several negative MRIs, spinal taps and lyme tests....Just remember that this is a clinical diagnosis.
My wife had numerous neurological problems from this disease(been sick 6 years). Most of them have been eradicated after 3 weeks of ABX. We still have a long way to go but we are on the right track.
Hang in there!!!
Posts: 82 | From Summerville, SC | Registered: Sep 2005
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posted
I've been where you are many, many times. I've had every test available to disprove MS, all normal. I also remember feeling like giving up. I want my tombstone to read "See, I told you I was sick!"
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