posted
You have certainly encouraged me and I'm feeling better now. I'm been herxing for 5 weeks on treatment for Epstein Barr and Mycoplasmas. This was prio to the Lyme results received a week ago. In addition, I have Babesis which is another major hurdle to overcome.
I'll be starting treatment for the Lyme in a few weeks. Right now, too much going on in my body and the doctor wants to work on some of these coinfections. Needless, all this has just set me back emotionally and physcially.
But, just reading your'r and others post that you know people who have gone into remission and/or well is so promising. And, thank you for your consideration.
As for the FFC, this is "Fibro/Fatigue Center. They are the ones that pulled 26 viles of blood on firt visit to find out how my blood system, hormones, etc. was functioning. This is the first step. They found my blood cells contained a bilbrin which makes hiding of the coninfections etc. difficilt to identify in blood work. So then, I began Heparin 2 shots daily for two weeks, then more blood test. It was the second time of test that Lyme was dected via the Western Blott in California Inigex Labs.
At least now, I know that 14 years of what was thought to be CFS/FM, it was Lymes disease. They mimick each disease. I wish doctors woould begin testing the patients towhom they just hand a diagonsis of Fibro/CFS..............thre are so many out there with this misdiagonis that will never get any help for the Lyme..............
I'm in late state Chronic Lyme.............the treatment will be more aggressive and probably last a year + if not longer. But, I'm ready for anything and think I can take the herxing for all these months just to see improvement...........and possibly get my life back.........
Hope this anseres your question. Thanks, Dalpha
Posts: 97 | From Tennessee | Registered: Nov 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Dalphia. My, you've been ill a long time! Compared to how long you've been sick, treatment time will be a drop in the bucket. Thanks for explaining your treatment center initials.
Yikes -- 26 vials of blood! Did you stagger off the table, or what!!
Fibro/Chronic fatigue are definitely "real" things; however, what most doctors never address is what's causing them!!! If you DO manage to get lucky enough to have an ID doc run a test for Lyme, it'll be at a junk lab that wouldn't know Lyme from a hole in the ground, or they'd run a worthless "ELISA" test, where you'd have to be the actual tick to test positive.
In Lyme treatment you really have to hunker down and hang in there, there are definitely going to be rough times. But take heart from knowing the rough times are caused by dying borrelia burgdorferi bacteria. That makes it kind of satisfying in a sick way!! You will see progress after each level of treatment is addressed. Stay on LymeNet, read everything you can get your hands on, and have faith!!!
There ARE better days ahead!!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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You will see progress after each level of treatment is addressed. Stay on LymeNet, read everything you can get your hands on, and have faith!!! ![[group hug]](graemlins/grouphug.gif)
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