posted
I have been SOOOO sick(worse than usual) for the past month. For the past couple of weeks I have been having these episodes of tachycardia where I literally sit up in the bed and have to breathe through them. Afterwards my heart will stay at about 100 while resting and go to about 120 at times even while lying down. Anyway, yesterday I has moving around a little and all of the sudden I felt so sleepy that I had to literally lie down on the bed with all my clothes on. As soon as I lay down I get these chills and gooseflesh all over my bosy and my skin feels like someone rubbed icy hot all over me and my heart was racing. I fell alseep for about 15 mins and woke up to my skin burning like it was on fire and my feet throbbing like they were full of blood. The rest of the night I was tachy and my skin was burning. This morning I had sleep paralysis so bad I thought I was going into a coma!! I just came off 5 months of IV treatment and have been treated for babs with three doses of mepron with zith. I started on orals (omnicef & biaxin) but had to stop b/c the doc was afraid they were making me tachy and herxing too bad. So now I have been off everything for about 2 weeks and I feel the same, if not worse. So now I am scared that I wasn't herxing before. I am so scared. Does anyone else get any episodes like this and if so, what is going on and what helps? I am trying to be positive, but I am about to give up.
Thanks guys, tidegal
Posts: 44 | From GA | Registered: Nov 2005
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posted
I am not a doctor but I think we place a too much emphasis on herxing. My lyme (13 years and going) is basically the same on or off antibiotics. I might not be the normal case but after 18 months of antibiotic I simply went off them and fully expected to die. That was a decade ago and I'm far better now than then. However. I have crazy crap like you've just explained often. We try to tie it to something. What did I just do? Did I eat sugar, start a new anti-biotic? I'm convinced that lyme is just being lyme. Flaring up and attacking the nervous system. For me it has been the great "Fake" disease. Not that it isn't real, oh boy it is for sure, but that you have heart problems and go the doctor and your heart is fine (while you're sitting thier feeling like you're going to have a heart attack), you think you have a uriniary tract infection go to the doctor - nothing found. So - I'm convinced that in my case Lyme is messing with my nervious system and sending signals that say "Your on fire" and my body reacts exactly as if I was on fire. So the end result is in the end, the same. It doesn't matter if your body is really on fire, the fact is it thinks it is and the results are just a damaging. So, my advice is to stick with the best medical folks you can find but don't over react on the symtpoms. How many times have I thought to myself "This is it, this new symptom is dreadful and it's never going away" but in the end it always has. I hope I've helped. I have a strange view of Lyme probably.
Posts: 121 | From Memphis, TN | Registered: Dec 2004
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I have had periods of tachycardia. With heart symptoms, it is always important to check that nothing else is happening with the heart. If all checks out fine, it is possible to take beta blockers or some other meds to manage symptoms.
It doesn't really matter if the symptoms are due to herxing or Lyme, they can still be managed. I only had to take beta blockers for a few months. I'm not sure if treatment, or the beta blockers did it, but my usually high heart rate is now lower, the tachycardia and palpitations are gone, and no more angina.
I don't quite agree with IsThereHope. Some symptoms do not go away without treatment. That, at least, has been my experinece in 14 years of illness. Its why I finally found out I had Lyme, because the symptoms were NOT going away without treatment.
posted
I would ask your LLMD about co-infections returning...Babesia and Bartonella are quite similar in the symptoms they cause and I would suspect either of these.
An experienced LLMD should be able to diagnose based on your symptoms.
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