posted
My husband is in week 3 of IV rocephin. He has had a couple incidents of swimming head / dizziness but only on waking and while still in bed. OK as soon as he got up. Has anyone experienced this with rocephin?
posted
Im on my seventh week of rocephin and I dont get dizzy but I can tell you that out of 4 years of oral atbx that getting up on rocephin is VERY hard.It takes me a good two hours to clear the head out,also feel a bit nauseas when I wake up.Along with being dizzy do you find it hard to get up.I started herxing on day 23 on rocephin so maybe your dizziness is a herx starting,possibility.
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004
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posted
He doesnt find it hard to get up - but he finds it really hard to get motivated to do anything - even to go to the hospital for the IV (he does daily - you don't DIY in the UK). He says his head just feels like a woolly mess in the morning. This is Day 18 for us and yesterday and today have been horrific as far as his depression is concerned. I had to spend 3 hours today talking him out of getting the IV line removed tomorrow. Don't know if I have succeeded yet. You see, he does not believe it is LD. He agrees that his nervous system is shot to pieces but thinks it is all down to mental problems.
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Little doubt he's herxing. He'll experience all kinds of odd symptoms. Unfortunately for lymies, one of the dead giveaway's that you have the disease is when you actually feel worse initially on abx.
Most lymies do, as he is. Weld that PICC line in his arm if you have to ! Stay on the treatment, eventually he'll get better. If the herx's become too severe, let the doc know.
My son herxed so bad we had to get him a wheelchair, he had visual hallucinations [saw people that weren't there], had auditory hallucinations [heard gunshots]. When the abx hits the bacteria in the brain, all kinds of manifestations can occur.
Depression and dizziness are very common. Tell him to stay with the treatment, it's working. It certainly isn't easy, but in time he'll improve.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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posted
I'm in my fifth month of Rocephin and just thought I'd pass on that the first two months I was in bed, completely knocked out, almost around the clock. Then the window of my alert hours started to expand and I found myself improving rapidly.
So with your husband, at three weeks, it's early days.
If you think it could do any good, you might share that with him.
When Rocephin treatment succeeds at it's goal, which is to bring down the spirochete population at a rapid clip, you get enough die off to trigger a systemic immune response, and that's going to make you feel weak, tired, and in constant need of rest, but if you get that rest, just let the body go with the flow, you help conserve energy so the immune system can do its job.
If suppressed appetite is a problem, a juicer can be a help you get lots of nutrition in a light, easy to digest form. Protein shakes can be good if he tolerates whey. Yogurt smoothies (I use blueberries, bananas, and a bit of coconut milk) also help and shore up the gut.
Eat light and smart, get lots of rest, and he might find himeself feeling quite a bit better soon.
For me, the gains on Rocephin have actually built each month. I gained more ground in September than July and August put together, more in October than September, and more still in November. Today, a whole set of symptoms that were at crippling intensity have largely disappeared. Others are more stubborn, but the overall improvement is dramatic and very encouraging.
That of course does not mean that your husband will have the same response.
But I would urge him to keep the Rocephin flowing for as long as possible.
Good luck!
Paul S.
Posts: 199 | From Santa Cruz, CA | Registered: Oct 2004
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posted
I started getting dizzy on Week 3 of IV Rocephin. Only when I walk around or stand up though. I just finished Week 4. The dizziness is actually the only difference in how I feel. Nothing else has happened. Well I did throw up in Week 3 but that was probably because of the Actigall or because I may have been doing the infusions too quickly.
That stinks that you have to go to the hospital for infusions. I do them at home and they're very easy.
Posts: 449 | From Vermont | Registered: Nov 2004
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