posted
Howdy friends, Been awhile since I've been on....been sliding backwards more and more, thinking it was just lyme. Had a hair test come back high with Mercury/Nickle, but ND doesn't put alot of faith in those alone, so did a DMPS urine challenge from Doctor's Data (same as hair test).
Norm for most folks is less than 4 (Mercury), mine was 49. So, now we're looking at chelation series (with colonics) along with Toxi HMF, Chorella and Fiber Cleanse (apple pectin, apple fiber, bentonite clay, vitamin C, flax seed).
LLMD has started me on Diflucan for lyme and is trusting ND for heavy metal treatments. Now, I'm to start looking at BioDentist for amalgram replacments.
Guys, I'm spinning here....HOW does one treat ALL this at the same time?? I'm still working on keeping my gallbladder which has isn't functioning well. I'm just now getting a small hold on bowels functioning again with alot of help and colonics from ND.
Anyone done heavy metal detox with lyme/co-infection treatments? How do you know where to start first? Anyone have similiar experiences? Please share....I'm worn out with worrying with all this. Did having fillings change make any difference in cognitive/energy functions.
Many thanks to all, JavaBeing
Posts: 208 | From Portland, OR USA | Registered: Oct 2004
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
You might review the work of Dr. Klinghardt at www.neuraltherapy.com. My heavy metal issue was not high so I treated it with NDF and PCA-RX. However, other chelation therapies may be warranted in your case. It gets complex and frustrating dealing with all of these different things at once, but know that most of us with Lyme have several issues that all have to be addressed to get well. So, you are not alone...
Another excellent suggestion I would have and that I use is Far Infrared Sauna. Get one and do it at home several days a week. The sweating is often an excellent way to help get out metals, chemicals, etc.
Good luck
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
I am currently doing most of the things you list, ie: diflucan and the other stuff plus rife and bi-cillin.
My LLMD says the tortoise wins the race and I have found that to be true. My body does best when I take med breaks, supplement breaks and detox when it's telling me it's time. Taking one day at time helps also.
Do you take the bentonite in water mixed with something?
Regards!
Bug
-------------------- Every experience God gives us, every person He puts in our lives, is the perfect preparation for a future only He can see....Corrie Ten Boom Posts: 343 | From Northcentral Iowa | Registered: May 2005
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liz28
Unregistered
posted
I've done all three, and here's my ironclad opinion, which will be contrary to what a lot of people think: drop the mercury detox until after you've dealt with the bartonella, and have the Lyme either cured or under unshakeable maintenance antibiotic control.
First of all, if you are sure you have bart, you should just assume, as a matter of course, that your judgement is impaired. Please trust me on this, that you cannot IMAGINE the difference in your thinking that bartonella treatment will make. The herx is bad, there's no getting around it, but then on your good days, your anxiety level will go way down and you will be much more clear-headed. Then you can look at alternative stuff.
If you really do have high mercury levels, you will have plenty of time to deal with them--remember, there are thousands of people who really do recover from Lyme with relatively minimal treatment, who live next to rivers made entirely of industrial sludge and have never done mercury detox. The universal ingredient to an intractable chronic condition seems to be co-infections.
Before I started co-infection treatment, I was in your shoes. I was totally desperate, and was thinking about all these alternative treatments (most of which I'd be too ashamed to tell you about, they are so shamelessly fake). The mercury detox actually did temporarily improve some of my symptoms, but I have no proof it came from mercury fillings. And all those symptoms came back. It also stirred up a massive babesia relapse.
And it didn't do anything for Lyme, bartonella, or babesia. The only thing that worked on those is antibiotics. If you want to start improving your immune system, you can take CoQ10 ($16 a bottle), magnesium ($8 a bottle), and the best probiotics you can afford.
What IS true, however, is that having mercury fillings removed by just a normal, everyday dentist cost $800. A BioDentist will cost a lot more. And going to a doctor every month for a variety of alternative treatments cost $500 a month, while going to a more mainstream doctor who is willing to prescribe these same antibiotics (for now, at least) costs $115 a month. With this kind of money at stake, you are better off starting with the stuff you know works, antibiotics for co-infections and Lyme.
If you are on IV rocephin, you should be taking Actigall to support your gallbladder.
For treating all this at the same time, two suggestions, which are entirely my own opinion: one, take a lot of liver support, in at least three different forms, and two, go for the stronger antibiotics and drop them if you can't tolerate them, instead of using weaker antibiotics that might build drug resistance. Like I do great on rifampin and omnicef, but can't tolerate minocycline and levaquin. Others are just the opposite.
You've made me think about the alternative treatments I do use, and what they might have in common. First, they are cheap. I take several fringey vitamin-type supplements, but the most expensive don't go over $20, and I always have seen a sustained shift in symptoms within two weeks. I take one expensive supplement, a $50 liver support. Second, no one has ever told me they are my only hope. I heard about them, researched them, and tried them once to see if they helped.
The bogus ones were always described as "my last hope," they always cost a significant amount of money, there was always some sort of time constraint, like I had to spend the money soon or my chance at health would be gone forever, and I always was required to try them before trying an actual antibiotic to see if it worked. If you feel any sense of threat or desperation, if you feel like you have to spend your money right now or you'll be abandoned by someone on whom you are dependent, STOP.
This doesn't mean there's anything wrong with your doctor's suggestion--a lot of LLMDs do all this stuff all at once. But you sound very, very anxious, which can often be a prelude to spending lots of money. It's okay for you to go to the Lymenet search engine and read years and years of posts until your eyes pop out. Being well-informed is often good protection.
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
Java,
It is a delicate balancing act to treat everything without overdoing it. Your body should give some signals when you need to back off. I was referred to the frequent dose chelation yahoo group- the Andy Culter Protocol- for mercury issues. Basically involves frequent but low-doses of Alpha Lipoic Acid and possibly DMSA. The key is low doses to avoid making things worse. A nice side-effect of the ALA is that it protects your liver, which is good if you are on ABX. Don't overdo it and start slow. Check out the group for more info.
Later,
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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posted
Try Detox Foot Pads! They are cheap over the counter and very effective. I was very surprised at how much improvement I got from 10 pads over just 5 days. Now for the 100 more that are on their way.
Posts: 499 | From Western NY | Registered: Dec 2000
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