posted
Isn't it sad that I'm ELATED to have a positive Lyme diagnosis? I just saw Dr. J in Hermitage this morning who confirmed my urine tests (LDA) were positive. I am relieved.
My overwhelming symptoms have all been nuerological though I have also had some swelling, muscle weakness, and muscle pain. When he shifted my abx from 400mg doxy last month to 4000mg ammox./day I had horrible pain in my neck and arms for about a week 10 days into the new doseage.
Today he confirmed that the pain was from a Herx reaction and that the Igenex results were positive for Lyme. I couldn't be more ECSTATIC at the news. It's not ALS. And the muscle activity has really lessened so I now contend with pain and swelling but like I said, I"LL TAKE IT.
Thanks for reading this. MERRY CHRISTMAS TO ME... I have LYME!!!!!!!!!!!!!!!
posted
Merry Christmas and congrats on your diagnosis. Keep that good spirit up during your treatment and you will be just fine.
Posts: 16 | From MA | Registered: Oct 2005
| IP: Logged |
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Wow, Michelle, Merry Christmas. Lyme may suck, but sure beats the alternative, doesn't it?
You certainly put my and my son's battles with this disease into perspective.
Take care, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
| IP: Logged |
posted
I felt the exact same way when I found out my test results.
The medical assistant walked up with them in her hand and this serious "I am about to impart bad news" face on. She started to tell me that the doctor needed to figure out how to interpret the results (it was the Q-RiBb), when I looked at them and saw the 1:64 titer.
I immediately threw my hands up in the air and said wooohOOOoo and did a little happy dance and my dad started grinning.
The lady almost fainted she was so surprised at my reaction. Not a normal one for test results I'm sure!
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
| IP: Logged |
posted
I dont want to rain on your parade, but dont get too excited. I have had a pretty complex case, and I got much better for awhile, and I have taken a real change for the worse.
I will say I am now noticing more ALS and Alzheimer type symptoms, than I had before. This is a very complex disease and you really need to stay on top of it. I pray for you that it resolves itself quickly.
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
| IP: Logged |
posted
Want to share your happiness with you for I remember how I felt when they finally figured it out..wow a diagnosis!!certainly does feel great to have a name to something, a tiny piece of the puzzle and I do mean tiny.
I had been through hell for a long time with so very many different things happening everyday many of which were visible...so I knew I wasn't nuts.
I know everyone reacts differently and has entirely different symptoms. I pray this will be a short span in your life you can get through quickly.
Personaly everyone is different with symptoms, meds, drs. reactions to meds and so on.
Hope yours is short lived and feel better very quickly. Remember to read and educate yourself or no one else will. Know what makes you feel best and demand it.
Hope you have found an understanding dr. who listens to you and communicates. Try to be a team for you will need it. Work together and make sure the dr. knows what you are experiecing. Only you know your body and what you are feeling.
You are at a happy time right now and hope you can hold it there.However, if I was told what I have gone through over 17 yrs I would have said I was being told a horror story...well, it was but I was living it bearly.
So to you I add stay as strong as you can...listen to the dr but also make him listen to you for you know how you feel. Listen to what your body is telling you and follow you gut.
There are many great folks on here that will help you though so much...they are wonderful.
Good luck and God Bless..keep strong!
Posts: 139 | From nj | Registered: Mar 2005
| IP: Logged |
Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Congrats on finding out what your problems have been! I know you are relieved...
Happy dance to you. Hoping you get well soon!
Posts: 1366 | From Southeast | Registered: Sep 2005
| IP: Logged |
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Hi Other Michelle!
Congrats on your diagnosis! Yup, I was major relieved too -- we all gathered 'round the phone in my office and rejoiced -- all I could think was, "I DON'T HAVE MS!!!!! I KNEW IT!"
Not to say by any means it will always be a cakewalk but still, in my opinion, a far better and brighter diagnosis!
Keep that spirit - it's a good one!!
[the other] Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/