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»	LymeNet Flash » Questions and Discussion » Medical Questions » Welcome me to the Lyme club...

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Topic: Welcome me to the Lyme club...

Slappy3243
Member
Member # 7889

posted

Six years ago, I came down with Atrial

Fibrillation out of no where. I was treated for it

and sent on my way. Ever since then, I have had

PVC's, anxiety, floaters, visual snow, entopic

phenomenon, ringing in the ears, and

derealization/depersonalization. I was tested for

Lyme using the standard Elisa test which was

negative of course. Anyway, I never gave up and a

few weeks ago, I went to an LLMD. He sent my blood

samples to several labs including IgeneX and

MDlanbs. I tested indeterminate for Lyme from

Igenex showing some positive bands but showed very

positive for babesia from MDlabs. How reliable is

this test from MDlabs? Anyway, I started, ketek

and in two days I start Omnicef, and then in two

weeks I start the dreaded Flagyl! [Frown]

All of my

symptoms seem to be neurological. I never have

muscle aches or swollen joints. I have just felt

"out of it" for six years now. Anyway, I have two

questions. How reliable do you think the MDlabs

test is for Babesia, and if I have Lyme, do I have

to herx when with treatment? Thanks guys.

[ 09. December 2005, 01:52 PM: Message edited by: Slappy3243 ]

Posts: 11 | From Florida | Registered: Sep 2005 | IP: Logged |

SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

posted

If you tested positive with MDLab for Babesia, I would find it reliable. As for herxing, it depends on your detox capabilities, but generally, yes, you will herx if treatment is effective.

Ketek/Omnicef/Flagyl are not the common treatments for Babesia. Is the doc treatming the Lyme first or the Babesia? Ketek has been used in combination with other items such as Mepron, but I don't see much about it solely being used for Babesia. I have seen Dr. B. indicate Flagyl may be used with Babesia but no evidence of effectiveness.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005 | IP: Logged |

lesley1954
LymeNet Contributor
Member # 7626

posted

Hi Slappy,
"Welcome" to Lymenet. I'm sure you'll find lots of helpful info here as I have over the past few months.

We spoke a few months ago about doctors in Northern VA and the similarity between your visual symptoms and my daughter's. I'd be interested in hearing who you are seeing if you want to send me a private message.

Ironically, since we spoke about my daughter, I have had an indeterminate IgM from Igenex (but with positive #18 and #28 bands, which both Dr. B's guidelines and the LLMD I am seeing have indicated are specific for Lyme). I also had a positive Babesia titer and a positive Bartonella PCR from MDL.

I've been on Zithromax and Mepron for about a week. (No herx, yet.) I'm going to talk to my doctor about adding Artimesinim.

BTW, although my daughter has seen some improvement in her energy level, there has been no improvement in her visual disturbances or other neurological symptoms over her four months of treatment (including 3 mo of IV abx). We're taking her to CT next week to see Dr. J and for a SPECT scan at Columbia.

Good luck with your treatment. Stay in touch and send me a PM if you have a chance to let me know which doctor you're seeing.
Lesley

[ 08. December 2005, 04:00 PM: Message edited by: lesley1954 ]

Posts: 164 | From USA | Registered: Jul 2005 | IP: Logged |

Slappy3243
Member
Member # 7889

posted

quote:
Originally posted by SForsgren:
If you tested positive with MDLab for Babesia, I would find it reliable. As for herxing, it depends on your detox capabilities, but generally, yes, you will herx if treatment is effective.

Ketek/Omnicef/Flagyl are not the common treatments for Babesia. Is the doc treatming the Lyme first or the Babesia? Ketek has been used in combination with other items such as Mepron, but I don't see much about it solely being used for Babesia. I have seen Dr. B. indicate Flagyl may be used with Babesia but no evidence of effectiveness.

Right now, he wants me to take these meds for a month and then do some more blood tests to look for any dead Lyme bacteria. You are correct, it seems like I am on only half of the drugs needed to treat Babesia. I will speak with my doctor about this on my next visit. Thanks!

Posts: 11 | From Florida | Registered: Sep 2005 | IP: Logged |

bettyg
Unregistered

posted

Welcome Slappy to our large group.

Be sure to go to 1st page, medical, and print off TREEPATROL'S NEWBIE LINKS which he updates constantly.

Check off the most importnt things as there are months of reading there.

Also you could edit your long paragraph to shorten it to 6-8 lines and double space between them for us CHRONIC lymies who can't read/understand that much. We need space galore.

IP: Logged |

Slappy3243
Member
Member # 7889

posted

quote:
Originally posted by bettyg:
Welcome Slappy to our large group.

Be sure to go to 1st page, medical, and print off TREEPATROL'S NEWBIE LINKS which he updates constantly.

Check off the most importnt things as there are months of reading there.

Also you could edit your long paragraph to shorten it to 6-8 lines and double space between them for us CHRONIC lymies who can't read/understand that much. We need space galore.

Hey, I went and doublespaced my paragraph for you. It should be easier for you to read now. [Smile]

Posts: 11 | From Florida | Registered: Sep 2005 | IP: Logged |

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