luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
After 2 months of steady progress and feeling really great, my symptoms suddenly changed. My only symptom had been joint pain which waxed and waned. After a pain free Sunday, I awoke on Monday to pain radiating from my neck down my arms to my hands. It was in the muscles or ligiments and was severe. One week later, I had my 2nd opinion appt with a well-known LLMD who thumbs downed the homeopathy, however, 3 weeks later, he has yet to put me on antibiotics. I just received my Igenex test which was positive for IgG. He mailed these results to me and scheduled a telephone appt for next Tues. He just doesn't seem to be in a hurry to help me. I also had a follow up visit with my current dr and he was very encouraged with my strong immune system (I totally agree as I have been feeling very strong) but I don't think I got him to understand the change of pain. The LLMD also tested me for R.A. which came back with a very high rheumatoid factor (normal ANAs) so now I'm trying to get an appt with a rheumatologist who again is taking weeks to even get on his schedule. Meanwhile, on my own, I have stopped the homeopathy in case it has revved up my immune system too much and is causing the high R.A. reading. There is no history of R.A. in my family. I want another blood test with nothing in my system. I hate giving up the homeopathy as it did make me feel so good. After the R.A. is determined, I may go back on it since I have paid for the remedies. I'm also ready to try antibiotics. I just wanted to let everyone know my latest condition even though it is not the way I had hoped to feel by now. I believe the bacteria mutated to get around the homeopathy. I am seriously praying I do not have R.A.!!! What a frustrating disease.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I'm so sorry. Hang in there.
Posts: 856 | From Texas | Registered: Jan 2005
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Having a positive Rheumatoid Factor test does not necessarily mean that you have RA. Lyme can cause elevated levels in this test, and treatment can cause the levels to go down.
Also, people with RA are also finding that antibiotic treatment can be effective. Maybe because they really have Lyme or other bacterial infections? I believe there is a current NIH study on the use of minocycline in the treatment of RA.
Have you seen your Igenex test results yet? It is possible that your IgM was not positive, but you still showed Lyme specific bands. Testing is much more complex than just positive or negative.
I don't know what is going on with your LLMD. Its possible he is not sure you want to do abx, since you were using homeopathy. Some doctors aren't as open as others to patients using alternatives.
Maybe he is just waiting till the appt. Few doctors will prescribe without an appt. Many won't even tell you the results of your test without an appt. If you are jumping to making an appt with a rheumatologist without your LLMDs recommendation, that may also make him wary. He may not want to treat if he feels you will be running to other doctors who will be criticizing his treatment choices. This is something ANY doctor could feel, not just an LLMD.
You have a choice of care, but if you run from one doctor to another, it is hard for any doctor to treat.
Have you read DR. B's Advanced Topics In Lyme Disease? Even if you have, its always good to look through again, as there is so much info there. It might give you some grounding in what to expect in treatment.
It is very common to have symptoms change, even without treatment. Your symptoms may have gotten better, and then worse, even without the hoemeopathic treatment. That is what I meant when I responded to your first post, saying that it was over time that you would find out how effective it was. Not even just months, but years.
They have done very good studies showing that Lyme disease is capable of evading even very vigorous immune system response. Which is why I think homeopathy alone is not sufficient. It may be a useful adjunct, because you do want a healthy immune system. It just isn't enough, by itself.
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
I'm sorry to hear this! That was my point whenever you posted your first thread. That because of the VLSE mechanism and other adaptive mechanisms, the organism keeps changing its antigenic surface. Plus it has cloaking mechanisms, dormant states of cyst and granule, and so on. So it is difficult I'd think to cure it with homeopathy unless there is some way you can get it to stop multiplying/dividing, through some kind of resonance with homeopathy. On the other hand, you could continue with the homeopathy in the hopes this is some kind of "healing crisis". Who knows.
Posts: 2276 | From united states | Registered: Jun 2004
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Have you spoken to your homeopath? A sudden change in symptoms can be either a dissimilar aggravation (in which case, you'll need to change remedies) or a lower layer of disease (in which case, you'll need to change remedies).
While I don't agree with your homeopath's methodology, I do think that you should make him aware of the change.
FWIW.
Posts: 369 | From Ohio | Registered: Mar 2002
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Hi guys, all is being handled as you suggest. My original doctor is clearly very lyme literate. As I have stated before, I didn't seek out homeopathy, but he had a very good argument of using it based on the failure rate of antibiotics. I was treated 10 yrs ago for lyme with antibiotics. I don't know if this is long term or reinfect, but the past 10 yrs has been a medical formula for Lyme, just no one ever put two and two together. The LLMD I went to for a 2nd opinion, ran the Igenex test and the R.A. test. He has referred me on to a rheumatologist. He told me Lyme can give a false positive but that he had never seen one as high as mine. Sigh...leave it to me to be a record breaker. It is very important to me that you understand I have not at anytime attempted to self treat. I have followed dr's orders from the get-go. The well-known LLMD also uses homeopathy and other alternative methods but only after antibiotics. Maybe he doesn't realize I am just as willing to take abx as anything else. I just want to get well! I'm sure you all feel that way. I don't think anyone should take the "I told you so" approach though as the abx have just as strong a failure rate.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Thank you Lymeloco. I am hoping the rheumatologist will rule out R.A. My sed rate and ANA were both normal. I have no history of RA in my family and the typical joints are not being affected. I wonder if Monocycline is any good against the ketes.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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