posted
Just read that Dr. C. (my doc) says no vitamins and that Vitamins B and E and antioxidants are not a good idea either.
I really need help learning what supplements to take! Have been taking all of the above....
Would appreciate input on the essential supps. that support antibiotic treatment.
And HOW to take them - which ones together, which ones alone, which with food or on an empty stomach...
I've been taking Magnesium so at least am getting some of it right. I had thought it should be taken with food and a fat soluble vit. such as E but now read that it's better to take the full dose (I only take 800mg.)just before bed to aid sleep? So that would mean taking it on an empty stomach?
Thanks in advance.
Posts: 63 | From Deer Grove, Illinois, United States | Registered: Jan 2005
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posted
Im just as confused as you so anything I say is hardley good info but its what I do. I say balancing my supplements, scrips and different advice from different docs is like juggeling chain saws.
I use to take all kinks of supplements but when I started with Dr. D about 5 months ago I stopped everything except heavy doses of fish oil, and cal/mag supplement.
None of the supplements I took for several years ever did me any good, that I could tell, except for the magnesium. That was what I started with and my pain level went down immediately. At that time I had no doc.
My gp told me to take big doses of fish oil for my cholesterol and its helps. It has mixed topocerols (sp?) in it as additional ingredients but I ignore that cuz I need to keep my cholesterol at a decent level
Had my amalgams out and added 2mgs chlorella per day and that has some natural vitamins in it that Dr. D wasnt thrilled with but I told him for the first time in my life I actually feel like I completely empty my bowels and didnt know what else to so. Ive tried psyllium and everything else to no avail. The vit level is low so Im not too worried. After seeing him I did cut the chlorella down to 2mgs from 3.
I just do the best I can looking from all angels. If there is no specific reason I have to have a supplement I dont take it. They never did me any good anyway.
Dont worry about it. Follow your lyme doc path and see where it takes you. Hopefully it will be to a good place. Eat a real good diet of lots of veggies and lean meats that are free from contaminents. A good diet will give you the vitamins your body needs.
Forgot about magnesium. I take it at breakfast & lunch 3 hrs away from my antibiotics and then at bedtime on an empty stomach. Well Ive recently added a fish oil at bedtime to get in the 4th tablet. They all say to take with food but I swallow them with lots of water and so far so good.
Posts: 561 | From connecticut | Registered: May 2004
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posted
in many, there is a paradoxical effect of certain vitamins and minerals worsining signs and symptoms
those so far identified to worsen symptoms are:
oral intake of vit. C, esp. in megadoses. i haven't read anything on i.v. vit. C.
vits. B6,and B2
zinc and perhaps manganese.
vits. and mineral(s) that seem to be helpful:
niacin(B3) and Magnesium seem to help to, at least, temporarily decrease the production of quinolinic acid by brain macrophages[and,perhaps other kinds of macrophages].
see essays by Tom Grier that occur on this and other sites.
Posts: 2708 | Registered: Feb 2005
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posted
I get more confused than ever with all this...I was giving my son B6 supplements due to autism and I thought lyme needed it also but he had a really hard time with it and I think I figured out it was not good for him. I have read conflicting things with this one. He definetly did worse on it...I am just now giving him a transdermal magnesium that seems to be helping him alot...Just started 2 weeks ago and he seems to be in a much happier mood. I also started liquid zinc with him last week, I did notice yesterday that he had his facial tic more pronounced again, but better today....What is the deal with zinc? Why is it not a good idea to supplement with it..I also give him fish oils at dinner-2 caps of Omega 3...His LLMD does not promote or discourage supplements so I am flying by the seat of my pants on this....EB
Posts: 127 | From Rock Tavern, New York | Registered: May 2005
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
Take supplements at least an hour or two before or after ABX..... but I am surprised that docs would say to avoid supplements / vitamins, since ABX deplete many of the vitamins / minerals that you need for health. If you are going to follow their advice, perhaps they should be testing you monthly to make sure you are not developing any nutritional deficiencies due to the ABX....
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Where'd you read that about Dr C? He recommended Vitamin C, Zinc, Magnesium all to us
I'm don't understand where you're getting your info?
Posts: 1366 | From Southeast | Registered: Sep 2005
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Fourth comment from the bottom. (Author of that comment - please forgive me if I misinterpreted what you were saying - you scared me!)
Seems like we're all muddling through. Dr. C. has always advocated vitamins, minerals, supps. and alternative treatments with me so I was taken aback at the thought that I may be doing more harm than good.
Don't have much $ to pay for supps. that are doing diddly. I plan to continue following Dr. B's guidelines. I DO believe in vit's. and other supps.
Even bought some injectable B-12 but am being a baby about giving myself an IM injection - have never done that before. Will do a search on here to see if I can get some tips or call my pharmacist or doc.
Thanks everyone for comments and info. I need to "digest" (ha ha!) your info.
One last question: Vit. C. - yes or no? I've heard both now and that one was a biggie in my book.
My sympathies to everyone else struggling out there. Guess we need to just keep plugging away as best we can...
Good luck to everyone. We seem to all be in the same big old stinking boat!
Lymebites
Posts: 63 | From Deer Grove, Illinois, United States | Registered: Jan 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Thanks limebites! That scared me too when I read your post!!I was like.....what is going on here? I spoke to Dr. C's office today and meant to get this clarified, but forgot...argghh!
I know in the info I have from the doc he encourages vitamins and supplements. That's why I was confused too....
Still muddling with you.
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
the paradoxically negative effects of certain vits, and minerals, is a function of one's load of a given microbe; the number of different kinds of insect/tick-borne infections; length of time infected, and many other variables.
this would explain the variability of responses from person to person.
Posts: 2708 | Registered: Feb 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I agree with no vitamin E but deffinatly dissagree on vitamin B or magnesium or cq10 or glocosomine.
The latter took my shakes and numbness and tingling and joint pain away in combo but not at the same time . Allways 2to3 hrs after abx .Timewise
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Fourth comment from the bottom. (Author of that comment - please forgive me if I misinterpreted what you were saying - you scared me!)
Seems like we're all muddling through. Dr. C. has always advocated vitamins, minerals, supps. and alternative treatments with me so I was taken aback at the thought that I may be doing more harm than good.
Don't have much $ to pay for supps. that are doing diddly. I plan to continue following Dr. B's guidelines. I DO believe in vit's. and other supps.
Even bought some injectable B-12 but am being a baby about giving myself an IM injection - have never done that before. Will do a search on here to see if I can get some tips or call my pharmacist or doc.
Thanks everyone for comments and info. I need to "digest" (ha ha!) your info.
One last question: Vit. C. - yes or no? I've heard both now and that one was a biggie in my book.
My sympathies to everyone else struggling out there. Guess we need to just keep plugging away as best we can...
Good luck to everyone. We seem to all be in the same big old stinking boat!
Lymebites
That is not Dr. C in MO. We've seen him many times and he believes in good quality vitamin and minerals supplements.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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