I do not post very often but I do follow the board faithfully. Just a reminder to all, I was infected on my Federal Government job back in 1992, have an approved Federal Compensation claim and my health is continuing to deteriorate.
I have had 10 positive tests for tick borne diseases in the last 13 years, I was on the PICC line 4 times and have tried every oral ABX on the market.
I have been down the road that many people from this board have travled, such as a positive Brain Spect for white matter lesions, swollen knees, Lyme arthitic hips, persistant back and muscle spasms just to name a few ailments. I do not know if I`m alone on this one, but I`ll try to explain.
I, like many here, have had constant muscle twitches all over my body in the last 13 years. About 2 years ago these twitches started in my neck area, on both sides but mainly on my right. They were non stop, my LLD tried changing my ABX on many occasions but these twitches would not cease. In this same time frame I started to develop rashes on both sides of my neck, right in the area were the muscle twitching was happening, the first rash appeared on my left side and then a while later, the right side.
I went to an ENT when this first started, he had ordered a CT scan which came back negetive. As time progressed the muscle twitches on my right side of my neck had now slowly turned into a spasm making it difficult to swallow. In the next few months pain would follow, sometimes radiating down the back of my neck.
My LLD ordered an MRI for the (right) side of my neck but the Government did not want to pay for it, it took a Congressman and 5 months later for the MRI to be approved. I just got the results today, maybe someone can share on this:
There is T1 low signal and T2 hyperintense lesion noted in the superficial lobe of the right and the left parotid gland. On the right side there are 2 lesions noted measuring 5-6mm in size. On the left side there are 3 lesions noted measuring 6-7 mm in size. The possibility of bilateral intraparotid lymph nodes versus bilateral pleomorphic adeoma versus Warthin`s tumor would be in the differential diagnosis. Further clinical correlation recommended. Then they go on to say everything else is okay.
Has this happened to anyone else out there or can someone relate to this? If so please share. Does anyone know of a ENT in New Jersey who is Lyme literate? What scares me worse is that I`m still having muscle twitches on my left side of my neck and I`m afraid the same thing is going to happen there also. Any info or help will be greatly appreciated. POP
Posts: 57 | From N.C. | Registered: Jun 2003
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